Community Research and Development Information Service - CORDIS

FP7

RARE-BESTPRACTICES

Project ID: 305690
Funded under

Platform for sharing best practices for management of rare diseases

From 2013-01-01 to 2016-12-31, closed project | RARE-BESTPRACTICES Website

Project details

Total cost:

EUR 2 293 654,86

EU contribution:

EUR 2 000 000

Coordinated in:

Italy

Call for proposal:

FP7-HEALTH-2012-INNOVATION-1See other projects for this call

Funding scheme:

CSA-CA - Coordination (or networking) actions

Objective

Coordinator

ISTITUTO SUPERIORE DI SANITA
Italy

EU contribution: EUR 653 477,21


Viale Regina Elena 299
00161 ROMA
Italy
Activity type: Research Organisations
Administrative contact: Rosa Maria Martoccia
Tel.: +39 06 49902688
Fax: +39 06 49903007

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Participants

FUNDACION CANARIA DE INVESTIGACION Y SALUD
Participation ended
Spain
BARRANCO DE LA BALLENA s/n
35010 LAS PALMAS DE GRAN CANARIA
Spain
Activity type: Other
Administrative contact: Yeray Suarez
Tel.: +34 928 45 09 69
Fax: +34 928 45 09 18

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JAMARAU
United Kingdom

EU contribution: EUR 210 000


VANBRUGH PARK ROAD WEST 4B
SE3 7QD LONDON
United Kingdom
Activity type: Private for-profit entities (excluding Higher or Secondary Education Establishments)
Administrative contact: Joanne Auld
Tel.: +447941760146

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KAROLINSKA INSTITUTET
Sweden

EU contribution: EUR 63 800


Nobels Vag 5
17177 STOCKHOLM
Sweden
Activity type: Higher or Secondary Education Establishments
Administrative contact: Miles Davies
Tel.: +46 8 524 865 93
Fax: +46 8 310343

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HEALTHCARE IMPROVEMENT SCOTLAND
United Kingdom

EU contribution: EUR 120 634,43


SOUTH GYLE CRESCENT 1
EH12 9EB EDINBURGH
United Kingdom
Activity type: Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative contact: Karen Ritchie
Tel.: +44 141 225 6864
Fax: +44 141 248 9746

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LONDON SCHOOL OF ECONOMICS AND POLITICAL SCIENCE
United Kingdom

EU contribution: EUR 121 304,36


Houghton Street 1
WC2A2AE LONDON
United Kingdom
Activity type: Higher or Secondary Education Establishments
Administrative contact: Dorota Rejman
Tel.: +44 20 7852 3604
Fax: +44 20 7955 6187

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CONSIGLIO NAZIONALE DELLE RICERCHE
Italy

EU contribution: EUR 95 000


PIAZZALE ALDO MORO 7
00185 ROMA
Italy
Activity type: Research Organisations
Administrative contact: Patrizia Re
Tel.: +39 06 492724 265

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European Organisation for Rare Diseases
France

EU contribution: EUR 168 000


RUE DIDOT 96
75014 Paris
France
Activity type: Private for-profit entities (excluding Higher or Secondary Education Establishments)
Administrative contact: Patrice Regnier
Tel.: +33 1 56 53 56 14
Fax: +33 1 56 53 52 15

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Associazione per la Ricerca sulla Efficacia della Assistenza Sanitaria Centro Cochrane Italiano
Italy

EU contribution: EUR 100 000


Via Fra Cristoforo 14/D
20142 Milano
Italy
Activity type: Research Organisations
Administrative contact: Riccardo Sclavi
Tel.: +39 2 84800635

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UNIVERSITAETSKLINIKUM FREIBURG
Germany

EU contribution: EUR 176 200


HUGSTETTER STRASSE 55
79106 FREIBURG
Germany
Activity type: Higher or Secondary Education Establishments
Administrative contact: Jürgen Dreyer
Tel.: +49 761 270 20810
Fax: +49 761 270 18890

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BULGARIAN ASSOCIATION FOR PROMOTION OF EDUCATION AND SCIENCE
Bulgaria

EU contribution: EUR 60 584


BRATYA SVESHTAROVI STR 4
4017 PLOVDIV
Bulgaria
Activity type: Other
Administrative contact: Georgi Iskrov
Tel.: +359 32 575797
Fax: +359 32 575797

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SERVICIO CANARIO DE LA SALUD
Spain

EU contribution: EUR 61 000


PÉREZ DE ROZAS, 5, 4 PLANTA
38006 SANTA CRUZ DE TENERIFE
Spain
Activity type: Research Organisations
Administrative contact: Roberto Moreno Díaz
Tel.: +34922475701
Fax: +34928118796

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UNIVERSITEIT MAASTRICHT
Netherlands

EU contribution: EUR 40 000


Minderbroedersberg 4-6
6200 MAASTRICHT
Netherlands
Activity type: Higher or Secondary Education Establishments
Administrative contact: Judith Doomen - Dormans
Tel.: +31 43 38 81801
Fax: +31 43 38 81890

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UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom

EU contribution: EUR 40 000


KINGS GATE
00017 NEWCASTLE UPON TYNE
United Kingdom
Activity type: Higher or Secondary Education Establishments
Administrative contact: Blinova Aleona
Tel.: +44 191 2824528
Fax: +44 191 2824524

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EUROPEAN ACADEMY OF PAEDIATRICS AISBL
Belgium

EU contribution: EUR 30 000


AVENUE DE LA COURONNE 20
1050 BRUXELLES
Belgium
Activity type: Other
Administrative contact: Ingrid Maervoet
Tel.: +32 3 821 5745

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INSTITUTO DE SALUD CARLOS III
Spain

EU contribution: EUR 60 000


MONFORTE DE LEMOS 5
28029 MADRID
Spain
Activity type: Research Organisations
Administrative contact: Miguel ángel Cabo López
Tel.: +34 91 822 2764

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FUNDACION CANARIA DE INVESTIGACIONSANITARIA (FUNCANIS)
Participation ended
Spain
AV JUAN XXIII NUM 17 PLANTA 6
35004 LAS PALMAS DE GRAN CANARIA
Spain
Activity type: Other
Administrative contact: Yeray Suarez
Tel.: +34 928 45 09 69
Fax: +34 928 45 09 18

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