Community Research and Development Information Service - CORDIS

FP7

RARE-BESTPRACTICES

Project reference: 305690
Funded under: FP7-HEALTH

Platform for sharing best practices for management of rare diseases [Print to PDF] [Print to RTF]

From 2013-01-01 to 2016-12-31, ongoing project

Project details

Total cost:

EUR 2 299 401,8

EU contribution:

EUR 2 000 000

Coordinated in:

Italy

Call for proposal:

FP7-HEALTH-2012-INNOVATION-1

Funding scheme:

CSA-CA - Coordination (or networking) actions

Objective

Related information

Coordinator

ISTITUTO SUPERIORE DI SANITA
Italy

EU contribution: EUR 675 016


Viale Regina Elena 299
ROMA, Italy
Administrative contact: Rosa Maria Martoccia
Tel.: +39 06 49902688
Fax: +39 06 49903007
E-mail

Participants

JAMARAU
United Kingdom

EU contribution: EUR 210 000


VANBRUGH PARK ROAD WEST 4B
LONDON, United Kingdom
Administrative contact: Joanne Auld
Tel.: +447941760146
E-mail
KAROLINSKA INSTITUTET
Sweden

EU contribution: EUR 150 000


Nobels Vag 5
STOCKHOLM, Sweden
Administrative contact: Miles Davies
Tel.: +46 8 524 865 93
Fax: +46 8 310343
E-mail
HEALTHCARE IMPROVEMENT SCOTLAND
United Kingdom

EU contribution: EUR 120 000


SOUTH GYLE CRESCENT 1
EDINBURGH, United Kingdom
Administrative contact: Karen Ritchie
Tel.: +44 141 225 6864
Fax: +44 141 248 9746
E-mail
LONDON SCHOOL OF ECONOMICS AND POLITICAL SCIENCE
United Kingdom

EU contribution: EUR 120 000


Houghton Street 1
LONDON, United Kingdom
Administrative contact: Dorota Rejman
Tel.: +44 20 7852 3604
Fax: +44 20 7955 6187
E-mail
CONSIGLIO NAZIONALE DELLE RICERCHE
Italy

EU contribution: EUR 95 000


PIAZZALE ALDO MORO 7
ROMA, Italy
Administrative contact: Patrizia Re
Tel.: +39 06 492724 265
E-mail
EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION
France

EU contribution: EUR 168 000


RUE DIDOT 96
Paris, France
Administrative contact: Patrice Regnier
Tel.: +33 1 56 53 56 14
Fax: +33 1 56 53 52 15
E-mail
Associazione per la Ricerca sulla Efficacia della Assistenza Sanitaria Centro Cochrane Italiano
Italy

EU contribution: EUR 100 000


Via Fra Cristoforo 14/D
Milano, Italy
Administrative contact: Riccardo Sclavi
Tel.: +39 2 84800635
E-mail
UNIVERSITAETSKLINIKUM FREIBURG
Germany

EU contribution: EUR 60 000


HUGSTETTER STRASSE 49
FREIBURG, Germany
Administrative contact: Jürgen Dreyer
Tel.: +49 761 270 20810
Fax: +49 761 270 18890
E-mail
BULGARIAN ASSOCIATION FOR PROMOTION OF EDUCATION AND SCIENCE
Bulgaria

EU contribution: EUR 71 984


BRATYA SVESHTAROVI STR 4
PLOVDID, Bulgaria
Administrative contact: Georgi Iskrov
Tel.: +359 32 575797
Fax: +359 32 575797
E-mail
FUNDACION CANARIA DE INVESTIGACION Y SALUD
Spain

EU contribution: EUR 60 000


BARRANCO DE LA BALLENA s/n
LAS PALMAS DE GRAN CANARIA, Spain
Administrative contact: Yeray Suarez
Tel.: +34 928 45 09 69
Fax: +34 928 45 09 18
E-mail
UNIVERSITEIT MAASTRICHT
Netherlands

EU contribution: EUR 40 000


Minderbroedersberg 4-6
MAASTRICHT, Netherlands
Administrative contact: Judith Doomen - Dormans
Tel.: +31 43 38 81801
Fax: +31 43 38 81890
E-mail
UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom

EU contribution: EUR 40 000


KINGS GATE
NEWCASTLE UPON TYNE, United Kingdom
Administrative contact: Blinova Aleona
Tel.: +44 191 2824528
Fax: +44 191 2824524
E-mail
EUROPEAN ACADEMY OF PAEDIATRICS AISBL
Belgium

EU contribution: EUR 30 000


AVENUE DE LA COURONNE 20
BRUXELLES, Belgium
Administrative contact: Ingrid Maervoet
Tel.: +32 3 821 5745
E-mail
INSTITUTO DE SALUD CARLOS III
Spain

EU contribution: EUR 60 000


CALLE SINESIO DELGADO 4-6
MADRID, Spain
Administrative contact: Miguel ángel Cabo López
Tel.: +34 91 822 2764
E-mail
Record Number: 105806 / Last updated on: 2015-03-11