Objectif The research proposal intends to investigate the emerging field of personalized, preventative and participatory medicine through the analysis of a new generation of genetic testing, known as direct-to-consumers genetic testing (DCGT). DCGT can be bought directly on the Internet and provides information about personal susceptibility to widespread multifactorial (i.e. not only genetic) diseases. Merging the advancement of molecular genetics in reducing the cost and time of DNA sequencing with the extensive diffusion of information technologies, DCGT is dramatically expanding the number of people who will get a genetic test. It is thus popularizing a large amount of health-related genomic data, which can be shared and discussed through a growing number web sites, blogs, and social networks specifically dedicated to genomics.Assuming a biopolitical and biosocial perspective, this research will consider, first, the capacity of DCGT to disseminate the logic of genomic risk and susceptibility in our daily life, by turning DCGT users in “asymptomatic patients” who intervene on their own bodies, thoughts, conducts and lifestyles by actively taking and demanding responsibility from their own medical futures (and those of their families and groups). Second, it will analyse biosocial interactions and digital subjectivities as instances of participatory medicine aimed at establishing new forms of cooperation between laypeople, patients, doctors, and researchers.On one hand the popularization of genomics seems to reinforce the privatization of care and thus threat universal health care by instilling the compulsion for perfect fitness with imprecise and/or pointless information. On the other it could empower patients and laypeople, letting them to be more actively involved in healthcare and biomedical research. This project intends to conduct deep qualitative research into the practices that inform these possibilities. Champ scientifique natural sciencesbiological sciencesmolecular biologymolecular geneticsnatural sciencescomputer and information sciencesinternetnatural sciencesbiological sciencesgeneticsDNAnatural sciencesbiological sciencesgeneticsgenomes Programme(s) FP7-PEOPLE - Specific programme "People" implementing the Seventh Framework Programme of the European Community for research, technological development and demonstration activities (2007 to 2013) Thème(s) FP7-PEOPLE-2012-IEF - Marie-Curie Action: "Intra-European fellowships for career development" Appel à propositions FP7-PEOPLE-2012-IEF Voir d’autres projets de cet appel Régime de financement MC-IEF - Intra-European Fellowships (IEF) Coordinateur UNIVERSITE PARIS I PANTHEON-SORBONNE Contribution de l’UE € 202 405,80 Adresse Place du Pantheon 12 75231 Paris France Voir sur la carte Région Ile-de-France Ile-de-France Paris Type d’activité Higher or Secondary Education Establishments Contact administratif Sandra Mereu (Ms.) Liens Contacter l’organisation Opens in new window Site web Opens in new window Coût total Aucune donnée
