Project description
Standardised measurement of patient outcomes
Increasing the quality of healthcare involves capturing the information from the patient's perspective regarding outcomes and experience. Unfortunately, the systematic collection and use of this information is difficult due to a lack of standardisation and accurate measurement methods. To offer a solution, the EU-funded H2O project will design and configure independent, patient-centred health outcomes observatories (H2Os) that will collect and accurately measure information from the patient's perspective. The data from patients, providers and healthcare decision-makers will be collected and elaborated, enabling the evaluation of new technologies and encouraging better decision making in the healthcare sector. The project will establish ethical and legally sound H2Os in four countries for three diseases. Connecting these under a pan-European umbrella will allow the H2O methodology to be adopted by other countries as well.
Objective
Patients' outcomes and experience of health care can be improved through the systematic capture and use of information from their perspective. We are currently not using all the information we could gain fromPatients' outcomes and experience of health care can be improved through the systematic capture and use of information from their perspective. We are currently not using all the information we could gain from Patient-Reported Outcomes (PROs) to accurately measure value from the patient perspective. This is due to the lack of standardisation, interoperability and implementation of PRO measurement schemes. We urgently need a European scale network of outcomes data collection, analysis and evidence sharing to inform clinical practice and healthcare decisions. To tackle these issues, this public-private consortium brings together scientists, clinicians and professionals to design and set up independent, patient-centred, Health Outcomes Observatories (H2Os). With input from patients, providers and health care decision makers (health ministries, health insurers, regional health authorities, public health agencies, medicines regulators, health technology assessment agencies), these Observatories will collect data and provide information not only for individual clinical care, but also for evaluation of new technologies and for healthcare decision making. We will establish ethically and legally sound national, or regional, H2Os and run these initially in four countries for three diseases. Based on a hybrid model of federated and centralised data collection, management and analysis, these Observatories will operate under a governance model that will guarantee that data are protected under jurisdictional data protection law. H2Os will be connected to a pan-European umbrella H2O to facilitate interoperability, guide reproducibility in other countries, and promote the benefit of measuring and using patient-centred outcomes at regional, national, European and global levels.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques.
- medical and health scienceshealth sciencespublic health
- social sciencessociologygovernance
- natural sciencescomputer and information sciencescomputer securitydata protection
- social scienceslaw
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Funding Scheme
RIA - Research and Innovation actionCoordinator
1090 Wien
Austria
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Participants (24)
10117 Berlin
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3015 GD Rotterdam
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08007 Barcelona
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
08035 Barcelona
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WC2R 2LS London
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3000 Leuven
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BRUSSELS Brussels / Bruxelles
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9860 OOSTERZELE
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3511 MJ Utrecht
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
08007 Barcelona
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
104 22 Stockholm
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20132 Milano
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3511 LC UTRECHT
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8152 Glattpark
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4056 Basel
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60064 North Chicago Il
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RG21 4FA Basingstoke
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1131 Tolochenaz
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CT13 9NJ Sandwich
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4070 Basel
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94250 Gentilly
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10281 NEW YORK
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1165 Copenhagen
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151 85 Sodertaelje
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