Community Research and Development Information Service - CORDIS

  • European Commission
  • CORDIS
  • Projects and Results
  • Platform of information services for the coordination of rare disease research with various stakeholders from research, SMEs and patient organisations and the coordination of early clinical trials
FP6

ORPHANPLATFORM

Project ID: 503246
Funded under

Platform of information services for the coordination of rare disease research with various stakeholders from research, SMEs and patient organisations and the coordination of early clinical trials

From 2004-04-01 to 2006-06-30 | ORPHANPLATFORM Website

Project details

Total cost:

EUR 474 992

EU contribution:

EUR 400 000

Coordinated in:

France

Objective

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
France
101 Rue de Tolbiac
PARIS
France
See on map
Administrative contact: Ségolène AYMÉ, (Research Director)
Tel.: +33-156538137
Fax: +33-156538138
E-mail

Participants

UNIVERSITY COLLEGE CORK, NATIONAL UNIVERSITY OF IRELAND, CORK
Ireland
Western Road
CORK
Ireland
See on map
Administrative contact: Brendan BUCKLEY
Tel.: +353-214321563
Fax: +353-214321568
E-mail
IRCCS - OSPEDALE CASA SOLLIEVO DELLA SOFFERENZA
Italy
Viale Cappuccini 1
SAN GIOVANNI ROTONDO
Italy
Administrative contact: Bruno DALLAPICCOLA
Tel.: +39-0644160504
Fax: +39-0644160548
E-mail
UNIVERSITAT POMPEU FABRA
Spain
¨Placa de la Merce, 12
BARCELONA
Spain
See on map
Administrative contact: Miguel DEL CAMPO
Tel.: +34-935422823
Fax: +34-935422802
E-mail
THE VICTORIA UNIVERSITY OF MANCHESTER
United Kingdom
Oxford Road
MANCHESTER
United Kingdom
Administrative contact: Dian DONNAI
Tel.: +44-1612766002
Fax: +44-1612766145
E-mail
KATHOLIEKE UNIVERSITEIT LEUVEN
Belgium
Oude Markt 13
LEUVEN
Belgium
Administrative contact: Jean-pierre FRYNS
Tel.: +32-16345899
Fax: +32-16346051
E-mail
EUROPEAN ORGANIZATION FOR RARE DISEASES
France
Rue Didot 102
PARIS
France
Administrative contact: Lesley GREENE
Tel.: +44-18707700326
Fax: +44-78707700327
E-mail
ACADEMISCH ZIEKENHUIS BIJ DE UNIVERSITEIT VAN AMSTERDAM
Netherlands
Meibergdreef 9
22700 AMSTERDAM
Netherlands
Administrative contact: Raoul Cm HENNEKAM
Tel.: +31-205667508
Fax: +31-206917735
E-mail
UNIVERSITY OF TURKU
Finland
N/A
TURKU
Finland
Administrative contact: Helena KÄÄRIÄINEN
Tel.: +358-23337453
Fax: +358-23337300
E-mail
LES ENTREPRISES DU MEDICAMENT
France
Rue de la Faisanderie, 88
PARIS
France
Administrative contact: Catherine LASSALE
Tel.: +33-145038804
Fax: +33-145038843
E-mail
VERENIGING SAMENWERKENDE OUDER- EN PATIENTENORGANISATIES
Netherlands
Vredehofstraat, 31
SOESTDIJK
Netherlands
Administrative contact: Cor OOSTERWIJK
Tel.: +31-356034040
E-mail
EUROPEAN PLATFORM FOR PATIENTS'ORGANISATIONS, SCIENCE AND INDUSTRY
Belgium
Avenue de Tervuren, 402
BRUSSELS
Belgium
Administrative contact: Ysbrand POORTMAN
Tel.: +31-0356034040
Fax: +31-0356027440
E-mail
EUROPEAN FEDERATION OF PHARMACEUTICAL INDUSTRIES ASSOCIATIONS
Belgium
Rue du Trone 108
BRUXELLES
Belgium
Administrative contact: Juergen REDEN
Tel.: +49-619227996
Fax: +49-619227996
E-mail
INSTITUTO DE GENETICA MEDICA JACINTO MAGALHAES
Portugal
Praca Pedro Nunes 88
PORTO
Portugal
Administrative contact: Margarida REIS LIMA
Tel.: +351-226070307
Fax: +351-226070399
E-mail
MEDIZINISCHE HOCHSCHULE HANNOVER
Germany
Carl-Neuberg-Strasse 1
HANNOVER
Germany
Administrative contact: Joerg SCHMIDTKE
Tel.: +49-5115326537
Fax: +49-5115325865
E-mail
EUROPABIO
Belgium
Avenue de l'Armée, 6
BRUSSELS
Belgium
Administrative contact: Patrick SQUIBAN
Tel.: +33-388279173
Fax: +33-388279141
E-mail
MEDIZINISCHE UNIVERSITAET WIEN
Austria
Spitalgasse, 23
WIEN
Austria
Administrative contact: Till VOIGTLANDER
Tel.: +43-1404005502
Fax: +43-1404005511
E-mail
VERENIGING VOOR CHRISTELIJK HOGER ONDERWIJS WETENSCHAPPELIJK ONDERZOEK EN PATIENTENZORG
Netherlands
De Boelelaan 1105
AMSTERDAM
Netherlands
See on map
Administrative contact: Martina CORNEL
Tel.: +31-204448910
Fax: +31-204448181
E-mail
Follow us on: RSS Facebook Twitter YouTube Managed by the EU Publications Office Top