Objective
This project will be an in-depth qualitative study of the practice and social consequences of the diagnostic and predictive genetic testing of children, focusing specifically on the experiences of parents and health professionals.
The study will be based a t the Research Centre for Biotechnology, Society and the Environment (BIOGUM) at the University of Hamburg and carried out by Dr. Jacquelyne Luce in cooperation with children's hospitals, clinics and genetic research centres in a multicultural region of Germany.
The objectives of this project are to use rich in-depth interview and participant-observation methods to investigate:
- how distinctions between diagnostic and predictive testing are made;
- what meanings are given to the age of the child at the time of the proposed test; and
- the reasons given for the test request, by either parent or professional.
In doing so, the project will open up a discussion of current guidelines based on empirical findings, explore the implications of a current proliferation of possible genetic tests following the completion of the Human Genome Project, and address the genetic testing of children for not only healthcare purposes but also current research into the complexities of genomics.
Dr. Luce will achieve:
- new disciplinary skills in clinical and lab settings;
- skill at translating findings into policy recommendations;
- German language fluency and cultural competencies; and
- advanced leadership and teaching skills.
The fellowship will enable Dr. Luce to lead a multi-disciplinary project involving parents, clinicians, geneticists, technicians, and science and medicine students with the support of high profile mentors, further contributing to the identified Community objective of developing ¿scientists¿ critical thinking and responsiveness to societal concerns.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: https://op.europa.eu/en/web/eu-vocabularies/euroscivoc.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: https://op.europa.eu/en/web/eu-vocabularies/euroscivoc.
- humanities languages and literature general language studies
- social sciences sociology governance
- natural sciences biological sciences genetics genomes
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
FP6-2005-MOBILITY-7
See other projects for this call
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
IIF - Marie Curie actions-Incoming International Fellowships
Coordinator
HAMBURG
Germany
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.