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Expanding the European EHRxF to share and effectively use health data within the EHDS

Project description

A European prescription to solve healthcare’s data dilemma"

In digitalisation of the healthcare sector, interoperability remains a persistent challenge. Fragmented systems hinder the seamless exchange of vital health data, impeding patient care and stifling research efforts. As such, GDPR obligations further complicate matters, as individuals struggle to navigate the complex landscape of data sharing consent. With this in mind, the EU-funded xShare project will develop an innovative button for health portals and patient apps that can be used to effortlessly share personal health data in compliance with the GDPR. The xShare aims to establish common specifications and elements, fostering collaboration among stakeholders. From hospital networks in Italy to national portals in Greece and Ireland, xShare promises a future of interconnected healthcare systems.

Objective

xShare envisions everyone sharing their health data in EEHRxF with a click-of-a-button. The xShare button to be featured across health portals and patient apps and allow people to exercise their data portability rights under GDPR. Hence, the European EHRxF will be the driver for research and innovation in EHDS. xShare will establish the European EHRxF Standards and Policy Hub, the “Hub” partnership of six standards developing organizations (CEN/TC251, HL7 Europe, IHE Europe, SNOMED, CDISC, IEEE) market actors (DIGITAL Europe, MedTech-Europe and EUCROF), supported by competence centers, nationals and regional authorities and European SMEs. xShare will develop:
1) Harmonized common specifications, create and maintain xBundles i.e. collection of common data specifications including FHIR implementation guides, tools and data sets, and educational support for key EHRxF health information domains as noted in the EHDS draft regulation Annex 1.
2) A set of common elements across EHRxF health information domains applicable across EHDS-1 (JA-9), public/population health (EHDS-2), and clinical research.
3) Extended harmonized IPS specification to include care plans and making it fit for the purpose of clinical research use cases i.e. clinical trial eligibility, real world data, patient reported outcomes, and returning clinical research data to patients.
4) xShare feature the xShare Button in 8 adoption settings in Hospital network (Italy), National portal (Greece, Ireland, Cyprus), regional network with emphasis in medical tourism and the connection of the public to the private sector (Catalunya and Madeira), entry of digital health applications to the myHealthSpace ecosystem in France. Care plans will be demonstrated in Denmark.
xShare investigate the feasibility and value of the EU xShare Industry label as a vehicle towards implementing the draft EHDS regulation. Lastly open calls at the last year of the project aim to onboard with EHRxF almost 100 settings across Europe.

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Topic(s)

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Funding Scheme

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HORIZON-RIA - HORIZON Research and Innovation Actions

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Call for proposal

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(opens in new window) HORIZON-HLTH-2023-IND-06

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Coordinator

MEDCOM
Net EU contribution

Net EU financial contribution. The sum of money that the participant receives, deducted by the EU contribution to its linked third party. It considers the distribution of the EU financial contribution between direct beneficiaries of the project and other types of participants, like third-party participants.

€ 1 178 125,00
Address
FORSKERPARKEN 10
5230 Odense M
Denmark

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Region
Danmark Syddanmark Fyn
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
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Total cost

The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.

€ 1 178 125,00

Participants (33)

Partners (6)

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