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FP6

Final Report - ORPHANPLATFORM (Platform of information services for the coordination of rare disease research with various stakeholders from research, SMEs and patient organisations and…)

Project ID: 503246
Funded under: FP6-LIFESCIHEALTH

Abstract

In the field of rare diseases, it is impossible to reach a critical mass of resources at national level. To achieve a European critical mass of experts and operational partners, all the proposed actions are based on the coordination and development of already existing and active networks and organisations across Europe: Orphanet, Eurordis, EPPOSI, EuropaBio, EBE. The ORPHANPLATFORM project aimed to develop information tools to address in a comprehensive and integrated approach the set of factors that currently affects research on rare diseases and its coordination.

Their final report is pleased to report that they have achieved this objective. Ultimately, the project will benefit to paediatric drugs and cancer treatments development. This represents another major public health objective for the European Union on which the European Commission envisages specific regulatory and research initiatives.

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