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FP7

Final Report - ENCE-CF-LAM-LTX (European Networks of Centres of Expertise for CF (Cystic Fibrosis), LAM (Lymphangioleiomyomatosis), and LTX (Lung Transplantation))

Project ID: 223355
Funded under: FP7-HEALTH

Abstract

This is the final report of the ENCE-CF-LAM-LTX project, funded under the European Commission (EC)'s Seventh Framework Programme (FP7). The ENCE-CF-LAM-LTX project aimed at the optimisation of the delivery of health care to European citizens by developing a general blueprint of how to implement quality management and guidelines for rare diseases and how to develop and build European networks of centres of expertise for rare diseases.

The report covers in detail the project context and the main objectives as well as the achieved results. A thorough discussion is provided on the potential impact of new knowledge and technologies on the improvement of public health in Europe and globally.

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