Wspólnotowy Serwis Informacyjny Badan i Rozwoju - CORDIS

FP5

ECARUCA Streszczenie raportu

Project ID: QLRI-CT-2002-02746
Źródło dofinansowania: FP5-LIFE QUALITY
Kraj: United Kingdom

Network of National Coordinators, who act as intermediate between ECARUCA and professionals in the field of (cyto) genetics

RESULT DESCRIPTION:
In order to facilitate communication and collaboration between countries, physicians and scientists, a European Network of National Coordinators has been set up.
A National Coordinator has been assigned in each participating European country.

DISSEMINATION:
The National Coordinator represents ECARUCA during national meetings and informs colleagues on new developments within the project. Furthermore, the National Coordinator can assist and stimulate colleagues to submit new cases to the ECARUCA database. An up-to-date list of all National Coordinators including contact information is available on the ECARUCA website.

INNOVATIVE FEATURES:
The National Coordinators have formed a novel European Network that will facilitate the exchange of information regarding ECARUCA related issues and the input of both cytogenetic and clinical data into the Database.

CURRENT STATUS AND USE OF RESULTS:
The European Network of National Coordinators has been established. Each National Coordinator is either currently or will be promoting ECARUCA in his/her country through meetings and national publications.

EXPECTED BENEFITS:
Further spreading of the awareness and knowledge on the possibilities of the Register for both clinical and cytogenetic purposes. This will lead to better care of the individuals with a rare chromosomal abnormality and better information to their families and involved physicians and other medical care takers.

Reported by

NATIONAL GENETICS REFERENCE LABORATORY(WESSEX)
Dept. Human Genetics 849, P.O. Box 9101
6500 HB Salisbury
United Kingdom
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