Keys for quality performance management of the care of older persons in Europe

Individual data extraction form for institutional clients for extraction of data from the individual documentation including: identification information, background information on client status and resources assessment instruments, care palan and professional QoC scales.

Client interview instrument for the collection of data by interview from the clients and/or informal carers and/or formal carer in cases of incapacity of the client. Questionnaire cosists of following subscales,basic identification,background information on home/life situation, subjective IADL, ADL and need of help subjective QoC, subjective QoL scales: WHOQOL-Bref, and PGCMS. For clients suffering from dementia the subjective QoL scales are the following: Qualid and Cornell-Brown Scales.

A handbook for use of the CareKeys Toolkit is provided in English. It describes in detail how to use the CK instruments and gives practical examples. The user manuals for TEFF, MAssT and MAssT-D are part of the handbook and they are also available in www.carekeys.net

Individual data extraction form for home care clients for the extraction of data from the individual documentation including: - Identification information (case no.). - Background information on client status and resources. - Assessment instruments; care plan, service plan, professional QoC scales.

Management data extraction form for the collection of data from the institutional documentation and from the care managers. Data include: basic information on the service organisation, staff and resources information, management concept / quality management, evaluation (subjective) of management performance (last 6 months), cost information .

Care Keys key indicators represent the most essential variables characterizing four quality of life domains (from WHO QOL Bref and PGMS)of care-related persons; in addition, it includes list of background and care-related variables having the biggest impact on QOL of clients. Care Keys key indicators are the result of statistical analysis where we succeeded to compress the initial list of variables about 10 times, saving 75% of useful information. There are two lists of Care Keys key variables: For home care and institutional care. In addition, specific adaptations have been made for clients with dementia. Partners are going to use CareKeys key variables for developing standards for quality management of LTC in their countries and for continues evaluation of quality of LTC. Furthermore the key indicators can be computerized.

Policy-Breaf consists Issues relating to the care process Results of analyses and Role of CareKeys. Care process: This section highlights some key problems in the documentation and evaluation of long term care: need for a systematic approach to documentation; careplans inadequate; no comprehensive needs assessment to enable a broad evaluation; lack of/need for valid, reliable instruments; lack of/need for standardisation of documentation. Results of CareKeys research: This section highlights several key issues: the need to respect the voice of the older person; good care must be based on sound knowledge/evidence; need to define a practical model/concept of crQoL; care has an impact on a persons well-being; the importance of having a comprehensive needs assessment. The role of CareKeys: This section will demonstrate that CareKeys will help in: Improving quality of life and quality of care in long term care; providing a rational and systematic approach to care planning; ensuring equity of care provision; developing crQol (Care-related quality of life) as a multidimensional concept; providing model instrumentation.

Client interview instrument for the collection institutional clients by interview the client and/or informal carer and/or formal carer in cases of incapacity of the client. Data include, basic identification, background information on home/life situation, subjective IADL, ADL and need of help subjective QoC, subjective QoL scales: WHOQOL-Bref, PGCMS. For demented clients Subjective QoL Scales are the folllowing: Qualid and Cornell- depression scale.

Q-MAT - Quality Matrix- is a monitoring and strategic planning tool for higher level care managers. Its underlying matrix brings together quality indicators for the three stakeholders clients, professionals and managers, differentiated in input, process and outcome quality, with the outcome quality split again into documented (e.g. in care and managerial documentation) outcome and into subjective outcome (to be gained from interviews with the stakeholders). In another sub-dimension, for each of the three stakeholders four quality dimensions are considered: quality concepts, procedures, resources and cooperation. Bringing these three sub-dimensions together, a matrix with 3x4x4=48 cells is constituted. This matrix is usable for quality imaging through a comprehensive but concise picture, e.g. with help of traffic lights to show the quality in each cell. The matrix is also a base for benchmarking, e.g. between care units of a bigger provider and it can be used for a well balanced planning and goal setting by the care manager, as it addresses all managerial quality aspects at a time. The consortioum is looking for continuation project to fully develop the matrix and software that support the use of it.

Care-Related Quality of Life in old age. The concept and empirical exploration. Vaarama M, Pieper R, Sixsmith A.,In: Mollenkopf, H. & Walker, A. 2006: Quality of life in old age. Springer Science and Business Media. New York. (In print). This paper based on the results of Care Keys.

Theoretical model of Care related Quality of life, which guides research and evaluation of quality of life and quality of care of care dependet old people. The model is published in the www.carekeys.net/research findings (deliverable 9.6 Care-related Quality of Life - exploring a model Marja Vaarama , Richard Pieper, Petteri Hertto & Andrew Sixsmith). Later in Mollenkopf H& Walker A 2006. Quality of life in old age.

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