Community Research and Development Information Service - CORDIS

FP6

DIS-QOL — Result In Brief

Project ID: 513723
Funded under: FP6-POLICIES

Analysing conditions for those living with disability

Providing optimal care and quality of life for people with disabilities, both physical and intellectual, constitutes an important area of research in Europe. A major European project was set up to investigate particular aspects of the current reality of this population group.
Analysing conditions for those living with disability
The 'Quality of care and quality of life for people with intellectual and physical disabilities' (DIS-QOL) project was set up with EU funding to study the quality of care for people with disabilities. The approach focused on social policy developments and typical examples of service practice, with particular emphasis on the experiences of individuals with disabilities within these frameworks.

DIS-QOL partners investigated the options available, in European and partner countries, for care and support of individuals with physical and intellectual disabilities. The aim of this action was to determine to what extent these typical care and support options promote social inclusion, integrated living and participation of service users. Project members examined the role of attitudes to disability and persons with disabilities, as this relates to the delivery of care and the social justice experiences of service users. The project also studied how various service models and care practices impact the quality of life of individuals with disabilities.

To achieve project objectives, three cross-cultural measures were developed and tested at the 18 participating and contributing centres. Each measure included versions for physical disability (D) and intellectual disability (ID). QOCS-D and QOCS-ID measure quality of care and support, while WHOQOL-DIS, based on the World Health Organization's (WHO) quality of life measure (WHOQOL-BREF), measures quality of life of disabled persons. QOCS-ID and WHOQOL-DIS both have proxy versions for family members or care providers in cases where individuals are unable to self-report due to severe intellectual disabilities.

The third measure was designed to explore attitudes to disability and to persons with disabilities (the ‘attitudes to disabilities’ scale), with parallel versions for general attitudes to disabilities and for attitudes to personal disabilities.

Other project activities included cross-cultural comparisons of quality of care, quality of life and attitudes to disability, across geographical locations and cultures. Partners also examined the impact of relevant socio-demographic information, including age, gender, and health and disability status.

Providing knowledge for improved quality of life in Europe and globally, outcomes of the DIS-QOL project will be useful for determining social policy and practice in this important area.

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