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Interdisciplinary training network for Tourette Syndrome; structuring European Training capacities for neurodevelopmental disorders

Objective

There is a striking lack in structured and standardized training infrastructure for neurodevelopmental disorders across Europe. Such training will be fundamental to promoting standards of care across Europe and will ultimately lead to strategies for the promotion of childhood mental health in Europe. The focus of this Initial Training Network (ITN) is Gilles de la Tourette Syndrome (TS), an inherited neuropsychiatric disorder that provides an excellent paradigm for the study and training needs for neurodevelopmental disorders of childhood onset. TS is marked by multiple motor and vocal tics and high comorbidity rates with attention deficit hyperactivity disorder and obsessive compulsive disorder. Due to lack of education of medical professionals, educators, and the general public, TS is underdiagnosed and patients are severely discriminated against. Efforts to elucidate the etiology and pathophysiology of TS are fragmented across Europe and hampered by low statistical power. Standards of care are not uniform due to lack in structured training modules for this disorder. We have built an comprehensive interdisciplinary and intersectorial training program in the field of TS and related disorders, that will deliver the next generation of young researchers who will shape the field in Europe and around the world. Their research within this ITN will lead to discoveries that will ultimately provide new therapies and increase the quality of life for patients and their families. At the same time, their engagement to society will increase awareness about the disorder in a pan-European effort to promote childhood mental health across Europe.

Call for proposal

FP7-PEOPLE-2012-ITN
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Coordinator

DIMOKRITIO PANEPISTIMIO THRAKIS
Address
Panepistimioupoli Rectorate Building
69100 Komotini
Greece
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 498 988,75
Administrative Contact
Peristera Paschou (Prof.)

Participants (10)

KENNEDY CENTRET

Participation ended

Denmark
EU contribution
€ 319 725,04
Address
Gamle Landevej 7
2600 Glostrup
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Zeynep Tumer (Prof.)
ISLENSK ERFDAGREINING EHF
Iceland
EU contribution
€ 222 867,50
Address
Sturlugotu 8
101 Reykjavik
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Administrative Contact
Frosti Jonsson (Mr.)
SEMMELWEIS EGYETEM
Hungary
EU contribution
€ 223 559,17
Address
Ulloi Utca 26
1085 Budapest
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Csaba Barta (Dr.)
REGION HOVEDSTADEN
Denmark
Address
Kongens Vaenge 2
3400 Hillerod
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Klaus Tofting (Mr.)
UNIVERSITEIT UTRECHT
Netherlands
EU contribution
€ 532 227,69
Address
Heidelberglaan 8
3584 CS Utrecht
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Danielle Cath (Prof.)
ACADEMISCH ZIEKENHUIS GRONINGEN
Netherlands
EU contribution
€ 266 113,75
Address
Hanzeplein 1
9713 GZ Groningen
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Pieter Hoekstra (Prof.)
UNIVERSITAET ULM
Germany
EU contribution
€ 251 437
Address
Helmholtzstrasse 16
89081 Ulm
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Frank Gleixner
BOEHRINGER INGELHEIM PHARMA GMBH &CO KG
Germany
EU contribution
€ 249 494,40
Address
Binger Strasse 173
55218 Ingelheim
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Administrative Contact
Bastian Hengerer (Dr.)
MEDIZINISCHE HOCHSCHULE HANNOVER
Germany
EU contribution
€ 249 494,40
Address
Carl-neuberg-strasse 1
30625 Hannover
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Frank Dittrich (Mr.)
STICHTING RADBOUD UNIVERSITEIT
Netherlands
EU contribution
€ 262 490,20
Address
Houtlaan 4
6525 XZ Nijmegen
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Wim Van Oijen (Mr.)