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Screening to improve Health In very Preterm infantS in Europe

Screening to improve Health In very Preterm infantS in Europe

Objective

Very preterm birth is a principal determinant of motor and cognitive impairment in later life. About 50 000 infants in the EU survive very preterm birth annually and are at much higher risk of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and behavioural problems than infants born at term. However, the long term prognosis at initial discharge from hospital for each individual infant is unknown. Follow-up screening and prevention programmes aim to identify health problems early, enable interventions to improve outcome and to allow optimal management of health care. Despite the recognised importance of these programmes, little is known about their actual application and impact. These programmes consume significant resources because of the multidisciplinary staff required for clinical and developmental assessments and interventions, the coordination required to maintain contact with children after discharge and the time input from families.
This project uses a unique resource – the EPICE cohort of 6675 babies born before 32 weeks of gestational age and surviving to discharge home in 18 geographically diverse regions in 2011/2012 – to assess the impact of these screening programmes on health, care and quality of life for very preterm infants and their families as well as on coverage, ability to meet needs, health equity and costs at the population-level. It will also generate new knowledge about assessment tools and methods. Four inter-related studies will be carried out in 11 EU countries by a multi-disciplinary consortium of clinicians (in obstetrics, paediatrics, and child development), researchers (in epidemiology, health services research and health economics) and a user organisation. Partners have the expertise to implement this project and the national and international renown to translate its result into better programmes and policies.

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE

Address

Rue De Tolbiac 101
75654 Paris

France

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 534 500

Participants (13)

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UNIVERSITY OF LEICESTER

United Kingdom

EU Contribution

€ 480 041

PHILIPPS UNIVERSITAET MARBURG

Germany

EU Contribution

€ 313 437,50

STICHTING KATHOLIEKE UNIVERSITEIT

Netherlands

EU Contribution

€ 128 250

REGIONE LAZIO

Italy

UNIWERSYTET MEDYCZNY IM KAROLA MARCINKOWSKIEGO W POZNANIU

Poland

EU Contribution

€ 113 375

UNIVERSITEIT ANTWERPEN

Belgium

EU Contribution

€ 216 250

UNIVERSIDADE DO PORTO

Portugal

EU Contribution

€ 294 615

REGION HOVEDSTADEN

Denmark

EU Contribution

€ 120 437,50

KAROLINSKA INSTITUTET

Sweden

EU Contribution

€ 137 125

TARTU ULIKOOL

Estonia

EU Contribution

€ 100 062,50

OSPEDALE PEDIATRICO BAMBINO GESU

Italy

EU Contribution

€ 326 812,50

THE UNIVERSITY OF WARWICK

United Kingdom

EU Contribution

€ 84 518,75

EUROPEAN FOUNDATION FOR THE CARE OF NEWBORN INFANTS

Germany

EU Contribution

€ 143 750

Project information

Grant agreement ID: 633724

Status

Closed project

  • Start date

    1 September 2015

  • End date

    31 January 2019

Funded under:

H2020-EU.3.1.2.

  • Overall budget:

    € 2 993 175

  • EU contribution

    € 2 993 174,75

Coordinated by:

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE

France