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Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool.

Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool.

Objective

Cystic Fibrosis (CF) is a genetic disease with the higher incidence in Europe showing c.a. 5% mortality in childhood. The majority of patients suffer from lifelong pancreatic insufficiency leading to maldigestion of food and malabsorption and consequently with malnutrition and growth stunting. An accurate enzyme replacement arises as an early nutritional intervention able to provide better nutritional status and patients’ welfare from early stages avoiding complications associated to the development of the disease. By means of our innovative and portable ICT tool we will improve the socio-economic impact of the disease, promoting healthy lifestyle, intertwining patient empowerment, education and training with self-management and prevention of secondary CF-complications. The multidisciplinary and complementary approach of this co-developed integrative PROJECT guarantees the patient’s adherence to the treatment and the best outcome of the nutritional intervention mainly in childhood. The beneficiaries of the application comprise patients, care-givers, families and health professionals as well as health monitoring authorities. MyCyFAPP is tailored designed and will be clinically validated for CF self-management and monitoring becoming a competitive market product in Europe. This APP will have a key role as decision support system, boosting the growth and competitiveness of the participating SMEs in Europe which will ensure the commercial exploitation of the results, the market uptake and the MyCyFAPP distribution for the benefit of the patient.

Coordinator

FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA

Address

Av Fernando Abril Martorell 106
46026 Valencia

Spain

Activity type

Research Organisations

EU Contribution

€ 1 316 451,50

Participants (12)

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SOLUCIONES TECNOLOGICAS PARA LA SALUD Y EL BIENESTAR SA

Spain

EU Contribution

€ 94 700,06

YOUSE GmbH

Germany

EU Contribution

€ 336 955,75

IMAGINARY SRL

Italy

EU Contribution

€ 331 955,75

STIFTELSEN SINTEF

Norway

EU Contribution

€ 661 325

UNIVERSITAT POLITECNICA DE VALENCIA

Spain

EU Contribution

€ 619 674,94

KATHOLIEKE UNIVERSITEIT LEUVEN

Belgium

EU Contribution

€ 526 375,50

Associação para Investigação e Desenvolvimento da Faculdade de Medicina

Portugal

EU Contribution

€ 318 191,75

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Netherlands

EU Contribution

€ 342 220

UNIVERSITA DEGLI STUDI DI MILANO

Italy

EU Contribution

€ 222 665,90

SERVICIO MADRILENO DE SALUD

Spain

EU Contribution

€ 130 674,85

CYSTIC FIBROSIS EUROPE EV

Germany

EU Contribution

€ 108 816

SINTEF AS

Norway

EU Contribution

€ 77 500

Project information

Grant agreement ID: 643806

Status

Closed project

  • Start date

    1 January 2015

  • End date

    31 December 2018

Funded under:

H2020-EU.3.1.4.

  • Overall budget:

    € 5 087 507,50

  • EU contribution

    € 5 087 507

Coordinated by:

FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA

Spain