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Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool.

Objective

Cystic Fibrosis (CF) is a genetic disease with the higher incidence in Europe showing c.a. 5% mortality in childhood. The majority of patients suffer from lifelong pancreatic insufficiency leading to maldigestion of food and malabsorption and consequently with malnutrition and growth stunting. An accurate enzyme replacement arises as an early nutritional intervention able to provide better nutritional status and patients’ welfare from early stages avoiding complications associated to the development of the disease. By means of our innovative and portable ICT tool we will improve the socio-economic impact of the disease, promoting healthy lifestyle, intertwining patient empowerment, education and training with self-management and prevention of secondary CF-complications. The multidisciplinary and complementary approach of this co-developed integrative PROJECT guarantees the patient’s adherence to the treatment and the best outcome of the nutritional intervention mainly in childhood. The beneficiaries of the application comprise patients, care-givers, families and health professionals as well as health monitoring authorities. MyCyFAPP is tailored designed and will be clinically validated for CF self-management and monitoring becoming a competitive market product in Europe. This APP will have a key role as decision support system, boosting the growth and competitiveness of the participating SMEs in Europe which will ensure the commercial exploitation of the results, the market uptake and the MyCyFAPP distribution for the benefit of the patient.

Field of science

  • /social sciences/economics and business/business and management/commerce
  • /social sciences/sociology/demography/mortality
  • /natural sciences/biological sciences/biochemistry/biomolecules/proteins/enzymes

Call for proposal

H2020-PHC-2014-single-stage
See other projects for this call

Funding Scheme

RIA - Research and Innovation action

Coordinator

FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA
Address
Av Fernando Abril Martorell 106
46026 Valencia
Spain
Activity type
Research Organisations
EU contribution
€ 1 316 451,50

Participants (12)

SOLUCIONES TECNOLOGICAS PARA LA SALUD Y EL BIENESTAR SA

Participation ended

Spain
EU contribution
€ 94 700,06
Address
Ronda Auguste Y Louis Lumiere 23 Nave 13 Parque Tecnologico De Valencia
46980 Paterna Valencia
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
YOUSE GmbH
Germany
EU contribution
€ 336 955,75
Address
Florastrasse 47
13187 Berlin
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
IMAGINARY SRL
Italy
EU contribution
€ 331 955,75
Address
Via Mauro Macchi 50
20124 Milano
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
STIFTELSEN SINTEF

Participation ended

Norway
EU contribution
€ 661 325
Address
Strindveien 4
7034 Trondheim
Activity type
Research Organisations
UNIVERSITAT POLITECNICA DE VALENCIA
Spain
EU contribution
€ 619 674,94
Address
Camino De Vera Sn Edificio 3A
46022 Valencia
Activity type
Higher or Secondary Education Establishments
KATHOLIEKE UNIVERSITEIT LEUVEN
Belgium
EU contribution
€ 526 375,50
Address
Oude Markt 13
3000 Leuven
Activity type
Higher or Secondary Education Establishments
Associação para Investigação e Desenvolvimento da Faculdade de Medicina
Portugal
EU contribution
€ 318 191,75
Address
Av. Prof. Egas Moniz
1649-028 Lisbon
Activity type
Higher or Secondary Education Establishments
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands
EU contribution
€ 342 220
Address
Dr Molewaterplein 40
3015 GD Rotterdam
Activity type
Higher or Secondary Education Establishments
UNIVERSITA DEGLI STUDI DI MILANO
Italy
EU contribution
€ 222 665,90
Address
Via Festa Del Perdono 7
20122 Milano
Activity type
Higher or Secondary Education Establishments
SERVICIO MADRILENO DE SALUD
Spain
EU contribution
€ 130 674,85
Address
Plaza Carlos Trias Bertran 7
28020 Madrid
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
CYSTIC FIBROSIS EUROPE EV
Germany
EU contribution
€ 108 816
Address
In Den Dauen 6
53117 Bonn
Activity type
Other
SINTEF AS
Norway
EU contribution
€ 77 500
Address
Strindvegen 4
7034 Trondheim
Activity type
Research Organisations