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My Health - My Data

Objective

Issues of data subjects’ privacy and data security represent a crucial challenge in the biomedical sector more than in other industries. The current IT landscape in this field shows a myriad of isolated, locally hosted patient data repositories, managed by clinical centres and other organisations, which are subject to frequent and massive data breaches. Patients are disenfranchised in this process, and are not able to have a clear understanding of who uses their personal information and for what purposes. This makes it the ideal field to build and test new models of privacy and data protection, and the technologies that encode them. MyHealthMyData (MHMD) aims at changing the existing scenario by introducing a distributed, peer-to-peer architecture, based on Blockchain and Personal Data Accounts. This approach will determine new mechanisms of trust and of direct, value-based relationships between people, hospitals, research centres and businesses, in what will be the first open biomedical information network centred on the connection between organisations and the individual. The system will develop a comprehensive methodology to guide the implementation of data and identity protection systems, specifically defining approaches and tools to profile and classify sensitive data based on their informational and economic value, to assess the most suitable and robust de-identification and encryption technologies needed to secure different types of information, to allow advanced analytics, and to evaluate the overall reliability of a generic multi modular architecture. MHMD will also analyse users’ behavioural patterns alongside ethical and cultural orientations, to identify hidden dynamics in the interactions between humans and complex information services, to improve the design of data-driven platforms and to foster the development of a true information marketplace, in which individuals will be able to exercise full control on their personal data and leverage their value.

Call for proposal

H2020-ICT-2016-2017

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Sub call

H2020-ICT-2016-1

Coordinator

LYNKEUS
Net EU contribution
€ 573 750,00
Address
Livenza 6
00198 Rome
Italy

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Region
Centro (IT) Lazio Roma
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00

Participants (16)

ATHINA-EREVNITIKO KENTRO KAINOTOMIAS STIS TECHNOLOGIES TIS PLIROFORIAS, TON EPIKOINONION KAI TIS GNOSIS
Greece
Net EU contribution
€ 419 375,00
Address
Artemidos 6 Kai Epidavrou
151 25 Maroussi

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Region
Βόρειος Τομέας Αθηνών Aττική Αττική
Activity type
Research Organisations
Non-EU contribution
€ 0,00
CONSIGLIO NAZIONALE DELLE RICERCHE
Italy
Net EU contribution
€ 212 250,00
Address
Piazzale Aldo Moro 7
00185 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Research Organisations
Non-EU contribution
€ 0,00
DIGI.ME LIMITED
United Kingdom
Net EU contribution
€ 197 812,50
Address
The Old Coach House Grange Court Grange Road
GU10 1DW Tongham

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
MAAT FRANCE SARL
France
Net EU contribution
€ 468 576,25
Address
Impasse Des Pres D En Bas
74370 Argonay

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Auvergne-Rhône-Alpes Rhône-Alpes Haute-Savoie
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
HAUTE ECOLE SPECIALISEE DE SUISSE OCCIDENTALE
Switzerland
Net EU contribution
€ 0,00
Address
Route De Moutier 14
2800 Delemont

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Region
Schweiz/Suisse/Svizzera Espace Mittelland Jura
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 526 250,00
H W COMMUNICATIONS LIMITED

Participation ended

United Kingdom
Net EU contribution
€ 170 218,75
Address
Greaves Road Parkfield
LA1 4TZ Lancaster

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
NEGRI-CLEMENTI, TOFFOLETTO, MONTIRONI & SOCI

Participation ended

Italy
Net EU contribution
€ 0,00
Address
Via Agnello 12
20121 Milano

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Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
SBA RESEARCH GEMEINNUTZIGE GMBH
Austria
Net EU contribution
€ 275 560,00
Address
Floragasse 7, 5 Og
1040 Wien

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SME

The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.

Yes
Region
Wien Wien
Activity type
Research Organisations
Non-EU contribution
€ 1,25
SIEMENS HEALTHCARE GMBH
Germany
Net EU contribution
€ 284 687,50
Address
Henkestrasse 127
91052 Erlangen

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Region
Bayern Mittelfranken Erlangen, Kreisfreie Stadt
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,00
UNIVERSITATEA TRANSILVANIA DIN BRASOV
Romania
Net EU contribution
€ 147 750,00
Address
Bdul Eroilor 29
500036 Brasov

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Region
Macroregiunea Unu Centru Braşov
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
DEUTSCHES HERZZENTRUM BERLIN

Participation ended

Germany
Net EU contribution
€ 0,00
Address
Augustenburger Platz 1
13353 Berlin

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Region
Berlin Berlin Berlin
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
OSPEDALE PEDIATRICO BAMBINO GESU
Italy
Net EU contribution
€ 101 250,00
Address
Piazza Sant Onofrio 4
00165 Roma

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Region
Centro (IT) Lazio Roma
Activity type
Research Organisations
Non-EU contribution
€ 0,00
QUEEN MARY UNIVERSITY OF LONDON
United Kingdom
Net EU contribution
€ 189 531,25
Address
327 Mile End Road
E1 4NS London

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Region
London Inner London — East Tower Hamlets
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
UNIVERSITY COLLEGE LONDON
United Kingdom
Net EU contribution
€ 92 125,00
Address
Gower Street
WC1E 6BT London

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Region
London Inner London — West Camden and City of London
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
CHARITE - UNIVERSITAETSMEDIZIN BERLIN
Germany
Net EU contribution
€ 91 875,00
Address
Chariteplatz 1
10117 Berlin

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Region
Berlin Berlin Berlin
Activity type
Higher or Secondary Education Establishments
Non-EU contribution
€ 0,00
PANETTA & ASSOCIATI STUDIO LEGALE
Italy
Net EU contribution
€ 231 427,25
Address
Vicolo Della Palombra 19
00186 Roma

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Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
Non-EU contribution
€ 0,25