CORDIS
EU research results

CORDIS

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My Health - My Data

Project information

Grant agreement ID: 732907

Status

Closed project

  • Start date

    1 November 2016

  • End date

    31 December 2019

Funded under:

H2020-EU.2.1.1.

  • Overall budget:

    € 3 982 440

  • EU contribution

    € 3 456 188,50

Coordinated by:

LYNKEUS

Italy

Objective

Issues of data subjects’ privacy and data security represent a crucial challenge in the biomedical sector more than in other industries. The current IT landscape in this field shows a myriad of isolated, locally hosted patient data repositories, managed by clinical centres and other organisations, which are subject to frequent and massive data breaches. Patients are disenfranchised in this process, and are not able to have a clear understanding of who uses their personal information and for what purposes. This makes it the ideal field to build and test new models of privacy and data protection, and the technologies that encode them. MyHealthMyData (MHMD) aims at changing the existing scenario by introducing a distributed, peer-to-peer architecture, based on Blockchain and Personal Data Accounts. This approach will determine new mechanisms of trust and of direct, value-based relationships between people, hospitals, research centres and businesses, in what will be the first open biomedical information network centred on the connection between organisations and the individual. The system will develop a comprehensive methodology to guide the implementation of data and identity protection systems, specifically defining approaches and tools to profile and classify sensitive data based on their informational and economic value, to assess the most suitable and robust de-identification and encryption technologies needed to secure different types of information, to allow advanced analytics, and to evaluate the overall reliability of a generic multi modular architecture. MHMD will also analyse users’ behavioural patterns alongside ethical and cultural orientations, to identify hidden dynamics in the interactions between humans and complex information services, to improve the design of data-driven platforms and to foster the development of a true information marketplace, in which individuals will be able to exercise full control on their personal data and leverage their value.

Coordinator

LYNKEUS

Address

Livenza 6
00198 Rome

Italy

Activity type

Private for-profit entities (excluding Higher or Secondary Education Establishments)

EU Contribution

€ 573 750

Participants (16)

ATHINA-EREVNITIKO KENTRO KAINOTOMIAS STIS TECHNOLOGIES TIS PLIROFORIAS, TON EPIKOINONION KAI TIS GNOSIS

Greece

EU Contribution

€ 419 375

CONSIGLIO NAZIONALE DELLE RICERCHE

Italy

EU Contribution

€ 212 250

DIGI.ME LIMITED

United Kingdom

EU Contribution

€ 197 812,50

MAAT FRANCE SARL

France

EU Contribution

€ 468 576,25

HAUTE ECOLE SPECIALISEE DE SUISSE OCCIDENTALE

Switzerland

H W COMMUNICATIONS LIMITED

United Kingdom

EU Contribution

€ 170 218,75

NEGRI-CLEMENTI, TOFFOLETTO, MONTIRONI & SOCI

Italy

SBA RESEARCH GEMEINNUTZIGE GMBH

Austria

EU Contribution

€ 275 560

SIEMENS HEALTHCARE GMBH

Germany

EU Contribution

€ 284 687,50

UNIVERSITATEA TRANSILVANIA DIN BRASOV

Romania

EU Contribution

€ 147 750

DEUTSCHES HERZZENTRUM BERLIN

Germany

OSPEDALE PEDIATRICO BAMBINO GESU

Italy

EU Contribution

€ 101 250

QUEEN MARY UNIVERSITY OF LONDON

United Kingdom

EU Contribution

€ 189 531,25

UNIVERSITY COLLEGE LONDON

United Kingdom

EU Contribution

€ 92 125

CHARITE - UNIVERSITAETSMEDIZIN BERLIN

Germany

EU Contribution

€ 91 875

PANETTA & ASSOCIATI STUDIO LEGALE

Italy

EU Contribution

€ 231 427,25

Project information

Grant agreement ID: 732907

Status

Closed project

  • Start date

    1 November 2016

  • End date

    31 December 2019

Funded under:

H2020-EU.2.1.1.

  • Overall budget:

    € 3 982 440

  • EU contribution

    € 3 456 188,50

Coordinated by:

LYNKEUS

Italy