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HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren’s Syndrome (pSS) towards improved stratification, treatment and health policy making

Objective

HarmonicSS vision is to create an International Network and Alliance of partners and cohorts, entrusted with the mission of addressing the unmet needs in primary Sjogren Syndrome; working together to create and maintain a platform with open standards and tools, designed to enable secure storage, governance, analytics, access control and controlled sharing of information at multiple levels along with methods to make results of analyses and outcomes comparable across centers and sustainable through Rheumatology associations. The overall idea of the HarmonicSS project is to bring together the largest well characterized regional, national and international longitudinal cohorts of patients with Primary Sjögren’s Syndrome (pSS) including those participating in clinical trials, and after taking into consideration the ethical, legal, privacy and IPR issues for sharing data from different countries, to semantically interlink and harmonize them into an integrative pSS cohort structure on the cloud. Upon this harmonized cohort, services for big data mining, governance and visual analytics will be integrated, to address the identified clinical and health policy pSS unmet needs. In addition, tools for specific diagnostic procedures (e.g. ultrasonography image segmentation), patient selection for clinical trials and training will be also provided. The users of the HarmonicSS platform are researchers (basic/translational), clinicians, health policy makers and pharma companies. pSS is relevant not only due to its clinical impact but also as one of the few “model” diseases to link autoimmunity, cancer development (lymphoproliferation) and the pathogenetic role of infection. Thus, the study of pSS can facilitate research in many areas of medicine; for this reason, the possibility for sustainability and expandability of the platform is enhanced. Moreover, pSS has a significant impact on the healthcare systems, similar to that of rheumatoid arthritis.

Call for proposal

H2020-SC1-2016-RTD
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Coordinator

ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON
Address
6 Christou Lada Str
10561 Athina
Greece
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 761 247,50

Participants (36)

INSTITUTE OF COMMUNICATION AND COMPUTER SYSTEMS
Greece
EU contribution
€ 411 250
Address
Patission Str. 42
10682 Athina
Activity type
Research Organisations
PANEPISTIMIO IOANNINON
Greece
EU contribution
€ 765 000
Address
Panepistemioypole Panepistemio Ioanninon
45110 Ioannina
Activity type
Higher or Secondary Education Establishments
ELLINIKO MESOGEIAKO PANEPISTIMIO
Greece
EU contribution
€ 202 500
Address
Estavromenos
71004 Heraklion
Activity type
Higher or Secondary Education Establishments
ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS
Greece
EU contribution
€ 200 000
Address
Charilaou Thermi Road 6 Km
57001 Thermi Thessaloniki
Activity type
Research Organisations
UNIVERSITA DEGLI STUDI DI UDINE
Italy
EU contribution
€ 362 500
Address
Via Palladio 8
33100 Udine
Activity type
Higher or Secondary Education Establishments
UNIVERSITA DI PISA
Italy
EU contribution
€ 280 740
Address
Lungarno Pacinotti 43/44
56126 Pisa
Activity type
Higher or Secondary Education Establishments
UNIVERSITA DEGLI STUDI DI PERUGIA
Italy
EU contribution
€ 275 793,75
Address
Piazza Dell Universita 1
06123 Perugia
Activity type
Higher or Secondary Education Establishments
UNIVERSITA DEGLI STUDI DELL'AQUILA
Italy
EU contribution
€ 275 175
Address
Piazza Santa Margherita 2
67100 L Aquila
Activity type
Higher or Secondary Education Establishments
UNIVERSITA DEGLI STUDI DI ROMA LA SAPIENZA
Italy
EU contribution
€ 279 503,75
Address
Piazzale Aldo Moro 5
00185 Roma
Activity type
Higher or Secondary Education Establishments
SCUOLA SUPERIORE DI STUDI UNIVERSITARI E DI PERFEZIONAMENTO S ANNA
Italy
EU contribution
€ 200 000
Address
Piazza Martiri Della Liberta 33
56127 Pisa
Activity type
Higher or Secondary Education Establishments
MEDIZINISCHE HOCHSCHULE HANNOVER
Germany
EU contribution
€ 277 648,75
Address
Carl-neuberg-strasse 1
30625 Hannover
Activity type
Higher or Secondary Education Establishments
CHARITE - UNIVERSITAETSMEDIZIN BERLIN
Germany
EU contribution
€ 277 031,25
Address
Chariteplatz 1
10117 Berlin
Activity type
Higher or Secondary Education Establishments
FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V.
Germany
EU contribution
€ 290 000
Address
Hansastrasse 27C
80686 Munchen
Activity type
Research Organisations
GOTTFRIED WILHELM LEIBNIZ UNIVERSITAET HANNOVER
Germany
EU contribution
€ 175 000
Address
Welfengarten 1
30167 Hannover
Activity type
Higher or Secondary Education Establishments
THE UNIVERSITY OF BIRMINGHAM
United Kingdom
EU contribution
€ 275 793,75
Address
Edgbaston
B15 2TT Birmingham
Activity type
Higher or Secondary Education Establishments
QUEEN MARY UNIVERSITY OF LONDON
United Kingdom
EU contribution
€ 280 122,50
Address
327 Mile End Road
E1 4NS London
Activity type
Higher or Secondary Education Establishments
UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom
EU contribution
€ 279 503,75
Address
Kings Gate
NE1 7RU Newcastle Upon Tyne
Activity type
Higher or Secondary Education Establishments
CONSORCI INSTITUT D'INVESTIGACIONS BIOMEDIQUES AUGUST PI I SUNYER
Spain
EU contribution
€ 280 122,50
Address
Calle Rossello 149 Puerta Bjs
08036 Barcelona
Activity type
Other
FUNDACIÓN PARA LA INVESTIGACIÓN E INNOVACIÓN BIOSANITARIA DE ATENCIÓN PRIMARIA
Spain
EU contribution
€ 93 750
Address
Avenida Reina Victoria 21, 6ª Planta
28003 Madrid
Activity type
Other
ATOS SPAIN SA
Spain
EU contribution
€ 358 750
Address
Calle De Albarracin 25
28037 Madrid
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UNIVERSITE DE BRETAGNE OCCIDENTALE
France
EU contribution
€ 276 411,25
Address
Rue Des Archives 3
29238 Brest
Activity type
Higher or Secondary Education Establishments
UNIVERSITE PARIS-SACLAY
France
EU contribution
€ 308 250
Address
Batiment Breguet - 3 Rue Joliot Curie
91190 Gif-sur-yvette
Activity type
Higher or Secondary Education Establishments
LUNDS UNIVERSITET

Participation ended

Sweden
EU contribution
€ 0
Address
Paradisgatan 5C
22100 Lund
Activity type
Higher or Secondary Education Establishments
UPPSALA UNIVERSITET
Sweden
EU contribution
€ 277 401,25
Address
Von Kraemers Alle 4
751 05 Uppsala
Activity type
Higher or Secondary Education Establishments
ACADEMISCH ZIEKENHUIS GRONINGEN
Netherlands
EU contribution
€ 278 885
Address
Hanzeplein 1
9713 GZ Groningen
Activity type
Higher or Secondary Education Establishments
UNIVERSITAIR MEDISCH CENTRUM UTRECHT
Netherlands
EU contribution
€ 277 031,25
Address
Heidelberglaan 100
3584 CX Utrecht
Activity type
Higher or Secondary Education Establishments
STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG
Netherlands
EU contribution
€ 228 750
Address
Otterstraat 118-124
3500 BN Utrecht
Activity type
Research Organisations
EUROPEAN LEAGUE AGAINST RHEUMATISM
Switzerland
EU contribution
€ 0
Address
Seestrasse 240
8802 Kilchberg
Activity type
Research Organisations
UNIVERSITETET I BERGEN
Norway
EU contribution
€ 276 411,25
Address
Museplassen 1
5020 Bergen
Activity type
Higher or Secondary Education Establishments
UNIVERSITE LIBRE DE BRUXELLES
Belgium
EU contribution
€ 276 411,25
Address
Avenue Franklin Roosevelt 50
1050 Bruxelles
Activity type
Higher or Secondary Education Establishments
ISTRAZIVACKO RAZVOJNI CENTAR ZA BIOINZENJERING BIOIRC DOO
Serbia
EU contribution
€ 206 250
Address
Prvoslava Stojanovica Street 6
34000 Kragujevac
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
OKLAHOMA MEDICAL RESEARCH FOUNDATION
United States
EU contribution
€ 290 633,75
Address
825 N.e. 13Th Street
73104 Oklahoma City
Activity type
Research Organisations
SJOGREN'S SYNDROME FOUNDATION INC.
United States
EU contribution
€ 178 750
Address
6707 Democracy Blvd Ste 325
20817 Bethesda Md
Activity type
Other
MARIOS LYMARAKIS KAI SIA EE
Greece
EU contribution
€ 182 500
Address
Ethnikis Antistaseos 132
15344 Gerakas Attiki
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
CHAROKOPEIO PANEPISTIMIO
Greece
EU contribution
€ 279 132,50
Address
Eleftheriou Venizelou 70
17671 Athina
Activity type
Higher or Secondary Education Establishments
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS
France
EU contribution
€ 60 500
Address
3 Avenue Victoria
75000 Paris
Activity type
Research Organisations