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RECAP preterm: Research on European Children and Adults born Preterm

RECAP preterm: Research on European Children and Adults born Preterm

Objective

The project’s overall aim is to improve the health, development and quality of life of children and adults born very preterm (VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g) – approximately 50 000 births each year in Europe – by establishing an ICT platform to integrate, harmonise and exploit the wealth of data from 20 European cohorts of VPT/VLBW children and adults and their families constituted from the early 1980s to the present, together with data from national registries.
VPT/VLBW births have higher risks of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and social problems than infants born at term and account for more than a third of the health and educational budgets for children. They may also face higher risks of non-communicable disease as they age. There is emerging evidence of reduced mental health, quality of life, partnering, family life and employment chances and wealth in adulthood.
The platform will enable stratified sub-group analyses of sociodemographic and clinical characteristics, neonatal complications, and otherwise rare medical conditions that cannot be studied in national population cohorts. The broad temporal, geographic, cultural and health system diversity makes it possible to study the impact of socioeconomic and organisational contexts and determine the generalisability of outcomes for VPT/VLBW populations.
The RECAP platform creates a value chain to promote research and innovation using population cohorts, beginning with the integration of VPT/VLBW cohorts to the translation and dissemination of new knowledge. It will be based on a sustainable governance framework, state-of-the art data management and sharing technologies, tools to strengthen research capacity, a hypothesis-driven research agenda and broad stakeholder participation, including researchers, clinicians, educators, policy makers and very preterm children and adults and their families.
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Coordinator

NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO

Address

Anna Van Buerenplein 1
2595 Da Den Haag

Netherlands

Activity type

Research Organisations

EU Contribution

€ 840 210

Participants (20)

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THE UNIVERSITY OF WARWICK

United Kingdom

EU Contribution

€ 1 062 338,75

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE

France

EU Contribution

€ 819 678,75

INSTITUTO DE SAUDE PUBLICA DA UNIVERSIDADE DO PORTO

Portugal

EU Contribution

€ 642 500

VAN VEEN EVERT BERNARD

Netherlands

EU Contribution

€ 19 320

INESC TEC - INSTITUTO DE ENGENHARIA DE SISTEMAS E COMPUTADORES, TECNOLOGIA E CIENCIA

Portugal

EU Contribution

€ 700 000

UNIVERSITY OF LEICESTER

United Kingdom

EU Contribution

€ 810 361,25

TERVEYDEN JA HYVINVOINNIN LAITOS

Finland

EU Contribution

€ 888 882,50

EUROPEAN FOUNDATION FOR THE CARE OF NEWBORN INFANTS

Germany

EU Contribution

€ 200 000

NORGES TEKNISK-NATURVITENSKAPELIGE UNIVERSITET NTNU

Norway

EU Contribution

€ 460 280

KAROLINSKA INSTITUTET

Sweden

EU Contribution

€ 579 375

UNIVERSITAETSKLINIKUM BONN

Germany

EU Contribution

€ 240 828,75

HELSINGIN YLIOPISTO

Finland

EU Contribution

€ 203 000

OSPEDALE PEDIATRICO BAMBINO GESU

Italy

EU Contribution

€ 480 625

REGION HOVEDSTADEN

Denmark

EU Contribution

€ 284 000

PHILIPPS UNIVERSITAET MARBURG

Germany

EU Contribution

€ 275 750

TARTU ULIKOOL

Estonia

EU Contribution

€ 290 000

UNIVERSITEIT ANTWERPEN

Belgium

EU Contribution

€ 290 250

Concentris Research Management GmbH

Germany

EU Contribution

€ 300 000

EXTENSIVE LIFE OY

Finland

EU Contribution

€ 187 500

STICHTING MLC FOUNDATION

Netherlands

EU Contribution

€ 138 330

Project information

Grant agreement ID: 733280

Status

Ongoing project

  • Start date

    1 January 2017

  • End date

    31 March 2021

Funded under:

H2020-EU.3.1.1.

  • Overall budget:

    € 9 713 230

  • EU contribution

    € 9 713 230

Coordinated by:

NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO

Netherlands