Patient Centered Connected Health Model of Care for Huntingtons Disease

Livrables

Establishment of Integration Working Group
Ethics and data protection protocol
Administration protocol and tracker
Management protocol and project tracker
Impact Strategy

Develop Impact Strategy

Integration framework strategy
Networking and relationship strategy
Exemplar patient Vignettes

Deevelopemnt of exemplar patient Vignettes

Dissemination Advisory Group (DAG)

Establishment of Dissemination Advisory Group (DAG)

Care pathway methodology protocol

Development of the care pathway methodology protocol

Publications

Data is the new oil”: citizen science and informed consent in an era of researchers handling of an economically valuable resource

Auteurs: Etain Quigley, Ingrid Holme, David M. Doyle, Aileen K. Ho, Eamonn Ambrose, Katie Kirkwood & Gerardine Doyle
Publié dans: Life Sciences, Society and Policy, Numéro 17, 2021, Page(s) Article number: 9, ISSN 2195-7819
Éditeur: BioMed Central Ltd, Part of Springer Nature
DOI: 10.1186/s40504-021-00118-6

Model for Quantitative Estimation of Functionality Influence on the Final Value of a Software Product

Auteurs: Gregor Molan, Gregor Dolinar, Jovan Bojkovski, Radu Prodan, Andrea Borghesi, Martin Molan
Publié dans: IEEE Access, Numéro vol. 11, 2023, Page(s) 115599-115616, ISSN 2169-3536
Éditeur: Institute of Electrical and Electronics Engineers Inc.
DOI: 10.1109/access.2023.3325338

Livrables

Publications

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