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A Collective Research Impact Framework and multi-variate models to foster the true engagement of actors and stakeholders in Health Research and Innovation

Objective

Conventional accountability metrics to measure the impact of health R&I process normally are not able to represent the claims of different actors. The development of a new integrated collective research impact framework will be instrumental in enabling Return Of Investment (ROI) by each involved stakeholder in a view of collective sustainability. Economic and financial dimension (efficiency) has to be integrated with measures of mission success (efficacy), while being accountable to all the stakeholders who are directly or indirectly affected by an organization activity. Starting from the Integrated Accountability Model (IAM) in its different dimensions (mission, economic and social), new and appropriate metrics to evaluate impact of health research will be developed in a multistakeholder participatory approach. The IAM model will be expanded and fine-tuned in a new Collective Research Impact Framework (CRIF) to be applied to Multi-Stakeholder Research Initiatives in the domain of BRAIN diseases. The CRIF will be based on key requirements that will be jointly developed by different actors (i.e. research organizations, industry, civil society organizations, patients organizations, policy makers, governmental institutions): 1)the science of patient input; 2)common classification system to uniformly identify types of health R&I; 3)new metrics to measure the impact of R&I on patients and society; 4)strategic research global agenda and funding models; 5)committed partnership among health R&I stakeholders to create and oversee cooperative ventures; 6)mechanism to determine the nature of health R&I funding on a national level. MULTI-ACT proposal is led by patient organizations that act as mediators between science and patients/society. Addressed Responsible Research and Innovation issues are: Public engagement, Research governance and Research impact assessment as responsible research is the one that produces an impact on people and society.

Field of science

  • /social sciences/political science/government systems/civil society
  • /social sciences/sociology/governance
  • /social sciences/other social sciences/social sciences interdisciplinary/sustainable development

Call for proposal

H2020-SwafS-2017-1
See other projects for this call

Funding Scheme

CSA - Coordination and support action

Coordinator

FONDAZIONE ITALIANA SCLEROSI MULTIPLA FISM ONLUS
Address
Via Operai 40
16149 Genova
Italy
Activity type
Research Organisations
EU contribution
€ 497 250

Participants (10)

UNIVERSITA DEGLI STUDI DI TRENTO
Italy
EU contribution
€ 282 502,06
Address
Via Calepina 14
38122 Trento
Activity type
Higher or Secondary Education Establishments
EY ADVISORY SPA
Italy
EU contribution
€ 438 750
Address
Via Meravigli 14
20123 Milano
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UNIVERSIDAD DE BURGOS
Spain
EU contribution
€ 284 500
Address
Hospital Del Rey
09001 Burgos
Activity type
Higher or Secondary Education Establishments
TAMPEREEN KORKEAKOULUSAATIO SR
Finland
EU contribution
€ 379 125
Address
Kalevantie 4
33100 Tampere
Activity type
Higher or Secondary Education Establishments
THE EUROPEAN BRAIN COUNCIL AISBL
Belgium
EU contribution
€ 571 250
Address
Rue D Egmont 11
1000 Bruxelles
Activity type
Other
INTRASOFT INTERNATIONAL SA
Luxembourg
EU contribution
€ 383 750
Address
Rue Nicolas Bove 2B
1253 Luxembourg
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
EUROPEAN HEALTH MANAGEMENT ASSOCIATION
Belgium
EU contribution
€ 91 875
Address
Rue Belliard 15-17
1040 Bruxelles
Activity type
Other
FONDATION POUR L'AIDE A LA RECHERCHE SUR LA SLEROSE EN PLAQUES
France
EU contribution
€ 172 747,94
Address
14 Rue Jules Vanzuppe
94200 Ivry Sur Seine
Activity type
Other
DANE-I-ANALIZY.PL SP ZOO
Poland
EU contribution
€ 298 750
Address
Ul Kremerowska 10/22
31 130 Krakow
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UNIVERSIDADE CATOLICA PORTUGUESA
Portugal
EU contribution
€ 30 000
Address
Palma De Cima
1649 023 Lisboa
Activity type
Higher or Secondary Education Establishments