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A Collective Research Impact Framework and multi-variate models to foster the true engagement of actors and stakeholders in Health Research and Innovation

Objective

Conventional accountability metrics to measure the impact of health R&I process normally are not able to represent the claims of different actors. The development of a new integrated collective research impact framework will be instrumental in enabling Return Of Investment (ROI) by each involved stakeholder in a view of collective sustainability. Economic and financial dimension (efficiency) has to be integrated with measures of mission success (efficacy), while being accountable to all the stakeholders who are directly or indirectly affected by an organization activity. Starting from the Integrated Accountability Model (IAM) in its different dimensions (mission, economic and social), new and appropriate metrics to evaluate impact of health research will be developed in a multistakeholder participatory approach. The IAM model will be expanded and fine-tuned in a new Collective Research Impact Framework (CRIF) to be applied to Multi-Stakeholder Research Initiatives in the domain of BRAIN diseases. The CRIF will be based on key requirements that will be jointly developed by different actors (i.e. research organizations, industry, civil society organizations, patients organizations, policy makers, governmental institutions): 1)the science of patient input; 2)common classification system to uniformly identify types of health R&I; 3)new metrics to measure the impact of R&I on patients and society; 4)strategic research global agenda and funding models; 5)committed partnership among health R&I stakeholders to create and oversee cooperative ventures; 6)mechanism to determine the nature of health R&I funding on a national level. MULTI-ACT proposal is led by patient organizations that act as mediators between science and patients/society. Addressed Responsible Research and Innovation issues are: Public engagement, Research governance and Research impact assessment as responsible research is the one that produces an impact on people and society.

Coordinator

FONDAZIONE ITALIANA SCLEROSI MULTIPLA FISM ONLUS

Address

Via Operai 40
16149 Genova

Italy

Activity type

Research Organisations

EU Contribution

€ 457 500

Participants (11)

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UNIVERSITA DEGLI STUDI DI TRENTO

Italy

EU Contribution

€ 282 500

EY ADVISORY SPA

Italy

EU Contribution

€ 426 250

UNIVERSIDAD DE BURGOS

Spain

EU Contribution

€ 284 500

TAMPEREEN YLIOPISTO

Finland

TAMPEREEN KORKEAKOULUSAATIO SR

Finland

EU Contribution

€ 379 125

THE EUROPEAN BRAIN COUNCIL AISBL

Belgium

EU Contribution

€ 571 250

INTRASOFT INTERNATIONAL SA

Luxembourg

EU Contribution

€ 383 750

EUROPEAN HEALTH MANAGEMENT ASSOCIATION

Belgium

EU Contribution

€ 91 875

FONDATION POUR L'AIDE A LA RECHERCHE SUR LA SLEROSE EN PLAQUES

France

EU Contribution

€ 225 000

DANE-I-ANALIZY.PL SP ZOO

Poland

EU Contribution

€ 298 750

UNIVERSIDADE CATOLICA PORTUGUESA

Portugal

EU Contribution

€ 30 000

Project information

Grant agreement ID: 787570

Status

Ongoing project

  • Start date

    1 May 2018

  • End date

    30 April 2021

Funded under:

H2020-EU.5.f.

  • Overall budget:

    € 3 430 500

  • EU contribution

    € 3 430 500

Coordinated by:

FONDAZIONE ITALIANA SCLEROSI MULTIPLA FISM ONLUS

Italy