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SYNergies for Cohorts in Health: integrating the ROle of all Stakeholders

SYNergies for Cohorts in Health: integrating the ROle of all Stakeholders

Objective

SYNCHROS (SYNergies for Cohorts in Health: integrating the ROle of all Stakeholders) coordination and support action aims to establish a sustainable European strategy for the development of the next generation of integrated population, patient and clinical trial cohorts, thereby contributing to an international strategic agenda for enhanced coordination of cohorts globally. This will address the practical, ethical and legal, and the methodological challenge to optimising the exploitation of current and future cohort data, towards the development of stratified and personalised medicine as well as facilitating health policy. In order to achieve this objective, SYNCHROS will map the cohort landscape in Europe and large international initiatives, identify the best methods for integrating cohort data, identify solutions for addressing practical, ethical and legal challenges in integrating data across patient, clinical trial and population cohorts, and evaluate the use of emerging and new data collection technologies and types of data. Together with intensive stakeholder involvement (researchers, patients, funding bodies, clinicians, coordinators of previous harmonization and integration exercises), strategy briefs will be written and used to conduct stakeholder dialogues to generate consensus following a deliberative process and implementation science methods. We aim to make sustainable recommendations on standards to improve future sample, data collection and data sharing methods and disseminate this information so as to contribute to defining an international strategic agenda for better coordination of cohorts globally. SYNCHROS partners include a large range of expertise from epidemiology and clinical research to legal/ethical issues and anthropology, international organizations such as WHO and European infrastructures such as ECRIN.
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Coordinator

PARC SANITARI SANT JOAN DE DEU

Address

Calle Doctor Antoni Pujadas 42
08830 Sant Boi De Llobregat

Spain

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 841 437,50

Participants (10)

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ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK

France

EU Contribution

€ 109 375

UNIVERSIDAD AUTONOMA DE MADRID

Spain

EU Contribution

€ 160 625

INSTYTUT MEDYCYNY PRACY IMIENIA PROF. DRA MED. JERZEGO NOFERA W LODZI

Poland

EU Contribution

€ 82 250

EPIGENY

France

EU Contribution

€ 62 500

THE SYNERGIST

Belgium

EU Contribution

€ 101 250

Schweizer Paraplegiker-Forschung AG

Switzerland

EU Contribution

€ 199 687,50

SERVICIO MADRILENO DE SALUD

Spain

EU Contribution

€ 83 437,50

NORGES TEKNISK-NATURVITENSKAPELIGE UNIVERSITET NTNU

Norway

EU Contribution

€ 234 375

GLOBAL ALLIANCE OF MENTAL ILLNESS ADVOCACY NETWORKS EUROPE AISBL

Belgium

EU Contribution

€ 73 125

UNIVERSITAT ROVIRA I VIRGILI

Spain

EU Contribution

€ 43 750

Project information

Grant agreement ID: 825884

Status

Ongoing project

  • Start date

    1 January 2019

  • End date

    31 December 2021

Funded under:

H2020-EU.3.1.6.

  • Overall budget:

    € 1 991 812,50

  • EU contribution

    € 1 991 812,50

Coordinated by:

PARC SANITARI SANT JOAN DE DEU

Spain