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Palliative care in Parkinson’s disease

Palliative care in Parkinson’s disease

Objective

Parkinson’s Disease (PD) is the second most common neurodegenerative disorder and is characterized in its advanced stages by motor and non-motor complications causing progressive loss of autonomy in activities of daily living, poor quality of life, marked caregiver distress, and high utilization of medical services. Similar to cancer patients, albeit for much longer duration, PD patients have considerable (and mounting) unmet physical, psychosocial and spiritual needs, and experience great problems with continuity of care.
The overall ambition of PD_Pal is to validate a new model of palliative care which would be easily integrated with traditional management when disability limits mobility and independence. PD_Pal will provide an added layer of support to patients, their loved ones, and treating clinicians.
PD_Pal randomised controlled trial will provide evidence on the effectiveness of specialized, multidisciplinary, outpatient palliative care intervention (Advance Care Planning) in improving family satisfaction, symptom management and quality of life. PD_Pal will also further prove the feasibility and economic sustainability of this approach by the active involvement of patients lay associations as well relevant medical societies.
PD_Pal team includes leading experts in both neurology and palliative care with key-roles in both national and international PD working groups. PD_Pal will develop a new set of evidence-based Guidelines and a Massive Online Course (MOOC) for Palliative Care in PD involving in the process experts from the European Association for Palliative Care, the European Academy of Neurology and the Movement Disorders Society. Thus, PD_Pal is best positioned to transfer this knowledge to all European countries and ensure that “PD_Pal Guidelines” will translate into best practice. The PD_Pal MOOC “Best Care for People with Late Stage Parkinson” will be integrated into the WHO supported interdisciplinary post-graduate palliative care curriculum.

Programme(s)

H2020-EU.3.1.3. - Treating and managing disease

Topic(s)

SC1-BHC-23-2018 - Novel patient-centred approaches for survivorship, palliation and/or end-of-life care

Call for proposal

H2020-SC1-2018-Single-Stage-RTD

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Funding Scheme

RIA - Research and Innovation action
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Coordinator

UNIVERSITA DEGLI STUDI DI PADOVA

Address

Via 8 Febbraio 2
35122 Padova

Italy

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 600 000

Website

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Participants (9)

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STICHTING KATHOLIEKE UNIVERSITEIT

Netherlands

EU Contribution

€ 597 500

PD NEUROTECHNOLOGY LTD

United Kingdom

EU Contribution

€ 237 500

PANEPISTIMIO IOANNINON

Greece

EU Contribution

€ 378 250

KING'S COLLEGE LONDON

United Kingdom

EU Contribution

€ 318 750

MEDIOLANUM CARDIO RESEARCH SRL

Italy

EU Contribution

€ 322 500

UNIVERSITY COLLEGE LONDON

United Kingdom

EU Contribution

€ 435 000

EESTI LIIGUTUSHAIRETE SELTS

Estonia

EU Contribution

€ 362 500

PARACELSUS MEDIZINISCHE PRIVATUNIVERSITAT SALZBURG - PRIVATSTIFTUNG

Austria

EU Contribution

€ 450 000

PHILIPPS UNIVERSITAET MARBURG

Germany

EU Contribution

€ 293 437,50

Project information

Grant agreement ID: 825785

Status

Ongoing project

  • Start date

    1 January 2019

  • End date

    30 June 2022

Funded under:

H2020-EU.3.1.3.

  • Overall budget:

    € 3 995 437,50

  • EU contribution

    € 3 995 437,50

Coordinated by:

UNIVERSITA DEGLI STUDI DI PADOVA

Italy

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Last update: 10 January 2019

Record number: 219678