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PanCareFollowUp: Novel, patient-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers

PanCareFollowUp: Novel, patient-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers

Objective

The 5-year survival for children with cancer increased from 30% in the 1970s to more than 80% at present. There are up to 300,000 childhood cancer survivors in Europe and this number is increasing. Years after treatment, childhood cancer survivors are at high risk for developing health and psychosocial late effects, resulting in excess morbidity and mortality compared the general population. The impact on the quality of life (QoL) of survivors and their families, as well as the societal and economic burdens, are significant. However, these impacts can be reduced by long-term survivorship care to detect treatable disease at an early phase and start timely interventions to preserve health, improve QoL, as well as coordinate specialised care and empower survivors.

Implementing follow-up care, especially for young adult and adult survivors of childhood cancer, has proven challenging across Europe. These survivors have left paediatric care and most of them have no opportunity to visit experts in survivorship care. To improve survivorship care for these survivors across Europe, PanCareFollowUp will conduct a prospective cohort study to assess effectiveness, value, cost effectiveness and feasibility of the PanCareFollowUp Care intervention, a person-centred approach to survivor follow-up care based on international clinical guidelines for surveillance of late effects. PanCareFollowUp also includes the development and assessment of a personalised, guideline-based eHealth lifestyle intervention.

Ensuring that the PanCareFollowUp interventions are used in the real world is paramount to achieving enduring improvements to survivorship care. Hence, the project includes the development of materials to support sustainable maintenance and replication of the PanCareFollowUp interventions. The PanCare network will become the guardian of the interventions after the project, ensuring that the intervention materials are openly available, sustainably maintained and widely shared.
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Coordinator

PRINSES MAXIMA CENTRUM VOOR KINDERONCOLOGIE BV

Address

Heidelberglaan 25
3584cs Utrecht

Netherlands

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 711 875

Participants (13)

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LUNDS UNIVERSITET

Sweden

EU Contribution

€ 508 998,75

ISTITUTO GIANNINA GASLINI

Italy

EU Contribution

€ 451 000

FAKULTNI NEMOCNICE U SV. ANNY V BRNE

Czechia

EU Contribution

€ 363 000

KATHOLIEKE UNIVERSITEIT LEUVEN

Belgium

EU Contribution

€ 400 000

KRAEFTENS BEKAEMPELSE

Denmark

EU Contribution

€ 335 000

UNIVERSITAT LUZERN

Switzerland

EU Contribution

€ 220 000

STICHTING KATHOLIEKE UNIVERSITEIT

Netherlands

EU Contribution

€ 310 000

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

EU Contribution

€ 84 998,75

SIOP EUROPE ASBL

Belgium

EU Contribution

€ 117 500

STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG

Netherlands

EU Contribution

€ 120 000

OSTERREICHISCHE KINDER-KREBS-HILFE-VERBAND DER OSTERREICHISCHEN KINDER-KREBS-HILFE-ORGANISATIONEN VEREIN

Austria

EU Contribution

€ 110 000

PANCARE

Netherlands

EU Contribution

€ 62 500

PINTAIL LTD

Ireland

EU Contribution

€ 205 000

Project information

Grant agreement ID: 824982

Status

Ongoing project

  • Start date

    1 January 2019

  • End date

    31 December 2023

Funded under:

H2020-EU.3.1.3.

  • Overall budget:

    € 3 999 872,50

  • EU contribution

    € 3 999 872,50

Coordinated by:

PRINSES MAXIMA CENTRUM VOOR KINDERONCOLOGIE BV

Netherlands