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Living well, dying well. A research programme to support living until the end

Living well, dying well. A research programme to support living until the end

Objective

Every year around 4 million people die in the EU as a result of chronic disease and illness. Many will die in pain or distress, die alone, and die without appropriate health or social care. How we care for the dying is perhaps the most pressing personal, social and public health issue of the 21st century.

To address this problem, the iLIVE project will demonstrate the effectiveness and cost-effectiveness of two innovative interventions in end-of-life care. Its objective is to develop and evaluate:

• a digital clinical tool to optimize medication management to relieve symptoms that occur at the end of life
• an international volunteer programme to support patients and their families, dying in the hospital

iLIVE will also provide in-depth understanding of the concerns, expectations and preferences of dying patients and their caregivers and deliver the first Core Outcome Set for care of the dying.

To realise this, we will perform a 10-country prospective cohort study of 2000 patients with a life expectancy of six months or less, across different settings, diagnoses, ages, genders, socio-economic and religious groups. The cohort study embeds two controlled clinical trials.

iLIVE is initiated by the ‘International Collaborative for Best Care of the Dying Person’, with worldwide membership. All iLIVE partners have direct access to care of dying patients and hold strategic posts in highly influential national and international bodies linking to policy and strategic decision making. iLIVE will deliver a set of tools and training programmes that are adaptive to different working contexts and informed by dying patients and their caregivers. With an extensive dissemination strategy, iLIVE will significantly contribute to reducing the suffering and isolation of dying patients and their families, improve clinical guidelines, and decrease societal and economic burdens around care for the dying in Europe and beyond.

Coordinator

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Address

Dr Molewaterplein 40
3015 Gd Rotterdam

Netherlands

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 655 750

Participants (13)

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THE UNIVERSITY OF LIVERPOOL

United Kingdom

EU Contribution

€ 428 500

KLINIKUM DER UNIVERSITAET ZU KOELN

Germany

EU Contribution

€ 229 750

LUNDS UNIVERSITET

Sweden

EU Contribution

€ 402 250

UNIVERZITETNA KLINIKA ZA PLJUCNE BOLEZNI IN ALERGIJO GOLNIK

Slovenia

EU Contribution

€ 418 950

UNIVERSITAET BERN

Switzerland

EU Contribution

€ 394 750

FUNDACION CUDECA

Spain

EU Contribution

€ 413 500

HELSE BERGEN HF*HAUKELAND UNIVERSITY HOSPITAL

Norway

EU Contribution

€ 344 750

LANDSPITALI UNIVERSITY HOSPITAL

Iceland

EU Contribution

€ 219 750

PALLIUM LATINOAMERICA ASOCIACION CIVIL

Argentina

EU Contribution

€ 227 250

STICHTING UNIVERSITEIT VOOR HUMANISTIEK

Netherlands

EU Contribution

€ 105 875

MEDIZINISCHE UNIVERSITAET WIEN

Austria

EU Contribution

€ 176 742,50

AROHANUI HOSPICE SERVICE TRUST

New Zealand

St.Vincent's Hospital (Melbourne) Ltd

Australia

Project information

Grant agreement ID: 825731

Status

Ongoing project

  • Start date

    1 January 2019

  • End date

    31 December 2022

Funded under:

H2020-EU.3.1.3.

  • Overall budget:

    € 4 108 817,50

  • EU contribution

    € 4 017 817,50

Coordinated by:

ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

Netherlands