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MyPal: Fostering Palliative Care of Adults and Children with Cancer through Advanced Patient Reported Outcome Systems

Objective

MyPal aims to foster early palliative care for cancer patients by leveraging patient reported outcome (PRO) systems through their adaptation to the personal needs of the cancer patient and his/her caregiver(s). Through this intervention, MyPal aspires to empower cancer patients (and their family members) in capturing more accurately their conditions, communicate them with a seamless and effective way to their healthcare providers and, ultimately, foster the time for action through the rapid identification of important deviations in the patient’s state and QoL. Providing this information in a timely and comprehensive manner throughout the disease course will reinforce the potential for applying a patient-centred and integrated palliative care approach for cancer with the participation of all relevant healthcare providers (i.e. oncologists, specialized physicians, psychologists, nurses), which is necessary to cope with the specific disease. In order to accomplish its mission, MyPal will exploit technological advances on digital health to support patients, family members and healthcare providers in gaining value through this systematic and comprehensive PRO-based intervention. Overall, the foreseen advancement through MyPal reflects a paradigm shift from passive patient reporting based on conventional PRO approaches to active patient engagement and a closed-loop approach (bridging the gap between patient reporting and effective actions by healthcare providers to meet the varying patient needs) for coping with palliative care challenges in cancer. MyPal will demonstrate and validate the proposed intervention in two clinical studies, an RCT for adults with hematologic cancers and an observational study for children suffering from solid tumors and hematologic malignancies, hence targeting different age groups and cancer types. The clinical studies will be conducted in diverse healthcare settings in 6 clinical sites from 5 European countries.

Field of science

  • /medical and health sciences/clinical medicine/cancer

Call for proposal

H2020-SC1-2018-Single-Stage-RTD
See other projects for this call

Funding Scheme

RIA - Research and Innovation action

Coordinator

ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS
Address
Charilaou Thermi Road 6 Km
57001 Thermi Thessaloniki
Greece
Activity type
Research Organisations
EU contribution
€ 536 875

Participants (15)

FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V.
Germany
EU contribution
€ 452 500
Address
Hansastrasse 27C
80686 Munchen
Activity type
Research Organisations
IDRYMA TECHNOLOGIAS KAI EREVNAS
Greece
EU contribution
€ 331 000
Address
N Plastira Str 100
70013 Irakleio
Activity type
Research Organisations
UNIVERSITY OF LANCASTER
United Kingdom
EU contribution
€ 293 931,25
Address
Bailrigg
LA1 4YW Lancaster
Activity type
Higher or Secondary Education Establishments
Masarykova univerzita
Czechia
EU contribution
€ 86 250
Address
Zerotinovo Namesti 9
60177 Brno Stred
Activity type
Higher or Secondary Education Establishments
KAROLINSKA INSTITUTET
Sweden
EU contribution
€ 206 875
Address
Nobels Vag 5
17177 Stockholm
Activity type
Higher or Secondary Education Establishments
UNIVERSITA VITA-SALUTE SAN RAFFAELE
Italy
EU contribution
€ 211 250
Address
Via Olgettina 58
20132 Milano
Activity type
Higher or Secondary Education Establishments
PANEPISTIMIAKO GENIKO NOSOKOMEIO IRAKLEIOU
Greece
EU contribution
€ 159 000
Address
Voutes
71110 Irakleio
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
MEDIZINISCHE HOCHSCHULE HANNOVER
Germany
EU contribution
€ 282 140
Address
Carl-neuberg-strasse 1
30625 Hannover
Activity type
Higher or Secondary Education Establishments
FAKULTNI NEMOCNICE BRNO
Czechia
EU contribution
€ 160 000
Address
Jihlavska 20
625 00 Brno
Activity type
Research Organisations
UNIVERSITAT DES SAARLANDES
Germany
EU contribution
€ 316 195
Address
Campus
66123 Saarbrucken
Activity type
Higher or Secondary Education Establishments
PROMOTION SOFTWARE GMBH
Germany
EU contribution
€ 389 750
Address
Karlstrasse 3
72072 Tubingen
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
ATLANTIS HEALTHCARE UK LIMITED
United Kingdom
EU contribution
€ 240 017,50
Address
566 Chiswick High Road 1St Floor, Building 3
W4 5YA London
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
EUROPEAN ASSOCIATION OF PALLIATIVE CARE
Belgium
EU contribution
€ 96 250
Address
Toekomststraat 36
1800 Vilvoorde
Activity type
Other
INTERNATIONAL CHILDREN'S PALLIATIVE CARE NETWORK
United Kingdom
EU contribution
€ 86 875
Address
2Nd Floor New Bond House Bond Street
BS2 9AG Bristol
Activity type
Other
PANEPISTIMIO DYTIKIS ATTIKIS
Greece
EU contribution
€ 150 400
Address
Petrou Ralli Kai Thivon
12244 Aigaleo
Activity type
Higher or Secondary Education Establishments