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Join Us to Optimize Health Through Cohort Research

Objective

Prospective cohort studies allow tackling major research questions regarding health and well-being of individuals and communities. JoinUs4Health aims to combine Responsible Research and Innovation (RRI) and crowdsourcing as converging approaches to promote inclusive innovation and citizen engagement in cohort research. Objectives are: 1) ESTABLISH and REVIEW a conceptual framework; 2) DEVELOP, TEST and APPLY technology to engage various societal actors; 3) EXPLORE, IMPLEMENT and MONITOR institutional changes and incorporate RRI into the governance framework of three cohort institutions; 4) ADVANCE RRI and citizen science into the mainstream of public engagement, science communication and education; and 5) PROMOTE engagement and COMMUNICATE and DISSEMINATE outputs via traditional and innovative means. The concept is based on crowdsourcing, where cohort participants, the general public and other societal actors can propose research questions or contribute to addressing such questions via working groups. Researchers are encouraged to actively engage citizens and other societal actors in dialogues during the design of their analyses and interpretation of results. Specialists will enhance this synergy by online and offline activities based on the communication strategy to boost engagement and ensure sustainability. An interactive, web-based platform facilitates and social media promotes engagement, communication and dissemination. Targeted education activities are designed and implemented at the school, university and citizen level. Six institutional changes provide the required conditions targeting the areas engagement, open access, communication and dissemination, management, implementation of RRI at cohort institutions, and education. Their implementation will be mentored by an RRI experienced partner and an international RRI advisory panel. It is hypothesized that this approach also counteracts the trend of decreasing participation in cohort studies.

Call for proposal

H2020-SwafS-2020-1
See other projects for this call

Funding Scheme

CSA - Coordination and support action

Coordinator

UNIVERSITATSMEDIZIN GREIFSWALD KORPERSCHAFT DES OFFENTLICHEN RECHTS
Address
Fleischmannstrasse 8
17489 Greifswald
Germany
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 475 813,75

Participants (10)

ERASMUS UNIVERSITEIT ROTTERDAM
Netherlands
EU contribution
€ 194 625
Address
Burgemeester Oudlaan 50
3062 PA Rotterdam
Activity type
Higher or Secondary Education Establishments
UNIWERSYTET MEDYCZNY W BIALYMSTOKU
Poland
EU contribution
€ 234 761,25
Address
Jana Kilinskiego 1
15-089 Bialystok
Activity type
Higher or Secondary Education Establishments
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM
Netherlands
EU contribution
€ 299 681,25
Address
Dr Molewaterplein 40
3015 GD Rotterdam
Activity type
Higher or Secondary Education Establishments
UNIWERSYTET W BIALYMSTOKU
Poland
EU contribution
€ 76 598,75
Address
Ul Swierkowa 20B
15-328 Bialystok
Activity type
Higher or Secondary Education Establishments
STEMPNIAK PAWEL
Poland
EU contribution
€ 104 293,75
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
AKADEMIE FUR OFFENTLICHES GESUNDHEITSWESEN IN DUSSELDORF
Germany
EU contribution
€ 15 727,50
Address
Kanzelstrasse 4
40472 Dusseldorf
Activity type
Research Organisations
FUNDACJA LABORATORIUM BADAN I DZIALAN SPOLECZNYCH SOCLAB
Poland
EU contribution
€ 66 467,50
Address
Zwierzyniecka 17/16
15 312 Bialystok
Activity type
Other
SCIENCE4PEOPLE SPOLKA Z OGRANICZONA ODPOWIEDZIALNOSCIA
Poland
EU contribution
€ 93 075
Address
Warszawska Nr 6 Lok 23
15 063 Bialystok
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
PATIENTENFEDERATIE NEDERLAND
Netherlands
EU contribution
€ 13 747,50
Address
Orteliustraat 871
3500 BM Utrecht
Activity type
Other
STICHTING MIJN DATA ONZE GEZONDHEID
Netherlands
EU contribution
€ 13 750
Address
Mje Lippitsstraat 20
1022KC Amsterdam
Activity type
Other