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Quality of life in children and adolescents with disabilities and their families - assessing patient views and patient needs for comprehensive care

Objectif

The current study aims at developing and testing methods that can be used in European countries to assess the quality of life of children with disabilities and their families, focussing on the development of health condition specific assessments. This is deemed necessary to identify needs and evaluate interventions with regards to those needs on a national and a European level. The project will develop a modular assessment instrument for children/adolescents suffering from asthma, severe spinal cord affections and one of the following conditions: epilepsy, diabetes, arthritis and skin diseases. This instrument will be tested in 1.260 children and will be delaminated for implementation in clinical settings. It is expected that the availability of this tool will help patients to express their views and needs for care and will guide care givers in planning, improving and evaluating their care.

Appel à propositions

Data not available

Régime de financement

CSC - Cost-sharing contracts

Coordinateur

UNIVERSITY OF HAMBURG
Contribution de l’UE
Aucune donnée
Adresse
Martinistraße 52
20246 HAMBURG
Allemagne

Voir sur la carte

Coût total
Aucune donnée

Participants (7)