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Surveillance of cerebral palsy in europe 2: support for research and training activities (SCPE2)

Surveillance of cerebral palsy in europe 2: support for research and training activities (SCPE2)

Objective

During the last decade, changes in prenatal care across Europe have resulted in a fall in neonatal mortality- but the effect on the rate of Cerebral Palsy (CP) remains uncertain. Although CP is the commonest physical disabling disorder in childhood, it occurs in only 2 per 1000 live births. And there is still a debate concerning the aetiology of this condition, is it more related to adverse prenatal or prenatal events? Large populations are needed, therefore, to assemble sufficient cases. 14 centres in 9 countries have done initial work in developing a European database of children with CP. It has been recognised that using text guidelines alone is insufficient to achieve data harmonisation. A reference manual using videotape material and supporting next with translation will be developed, evaluated and used for training at local level. New cases will be added and the database will be used to support research projects, and to monitor CP trends in Europe. Individual centres already fund routine data collection. Individual centres already fund routine data collection.

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Coordinator

UNIVERSITE JOSEPH FOURIER - GRENOBLE 1

Address

Domaine De La Merci
38706 La Tronche

France

Administrative Contact

Claude FEUERSTEIN (Professor)

Participants (13)

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CATHOLIC UNIVERSITY OF SACRED HEART

Italy

CENTRAL REMEDIAL CLINIC

Ireland

CENTRO PER LE DISABILITA NEUROMOTORIE INFANTILI

Italy

ENABLE IRELAND, CORK - THE PHYSICAL DEVELOPMENT REGISTRY

Ireland

GOETEBORG UNIVERSITY

Sweden

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE

France

NATIONAL INSTITUTE OF PUBLIC HEALTH

Denmark

THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD

United Kingdom

THE UNIVERSITY OF LIVERPOOL

United Kingdom

THE UNIVERSITY OF TUEBINGEN

Germany

UNIVERSITY OF NEWCASTLE UPON TYNE

United Kingdom

UNIVERSITY OF ULSTER

United Kingdom

VESTFORD COUNTY CENTRAL HOSPITAL

Norway

Project information

Grant agreement ID: QLG5-CT-2001-30133

  • Start date

    1 January 2002

  • End date

    30 June 2005

Funded under:

FP5-LIFE QUALITY

  • Overall budget:

    € 249 996

  • EU contribution

    € 249 996

Coordinated by:

UNIVERSITE JOSEPH FOURIER - GRENOBLE 1

France