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Surveillance of cerebral palsy in europe 2: support for research and training activities (SCPE2)

Objective

During the last decade, changes in prenatal care across Europe have resulted in a fall in neonatal mortality- but the effect on the rate of Cerebral Palsy (CP) remains uncertain. Although CP is the commonest physical disabling disorder in childhood, it occurs in only 2 per 1000 live births. And there is still a debate concerning the aetiology of this condition, is it more related to adverse prenatal or prenatal events? Large populations are needed, therefore, to assemble sufficient cases. 14 centres in 9 countries have done initial work in developing a European database of children with CP. It has been recognised that using text guidelines alone is insufficient to achieve data harmonisation. A reference manual using videotape material and supporting next with translation will be developed, evaluated and used for training at local level. New cases will be added and the database will be used to support research projects, and to monitor CP trends in Europe. Individual centres already fund routine data collection. Individual centres already fund routine data collection.

Funding Scheme

ACM - Preparatory, accompanying and support measures

Coordinator

UNIVERSITE JOSEPH FOURIER - GRENOBLE 1
Address
Domaine De La Merci
38706 La Tronche
France

Participants (13)

CATHOLIC UNIVERSITY OF SACRED HEART
Italy
Address
Largo Gemelli 8
00168 Roma
CENTRAL REMEDIAL CLINIC
Ireland
Address
Vernon, Avr.
3 Dublin
CENTRO PER LE DISABILITA NEUROMOTORIE INFANTILI
Italy
Address
Via Giorgione 10
40141 Bologna
ENABLE IRELAND, CORK - THE PHYSICAL DEVELOPMENT REGISTRY
Ireland
Address
The Lavanagh Centre, Ballintemple
Cork Cork
GOETEBORG UNIVERSITY
Sweden
Address

41685 Goeteborg
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
France
Address
Alltes Jules Guesde 37 Facultt De Mtdtcine Purpan
37073 Toulouse
NATIONAL INSTITUTE OF PUBLIC HEALTH
Denmark
Address
Svanemoellevej 25
2100 Koepenhagen
THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD
United Kingdom
Address
Institute Of Health Sciences, Old Road, Headdingto
OX2 6HE Oxford
THE UNIVERSITY OF LIVERPOOL
United Kingdom
Address
Wheland Building, Quadrangle
L69 3GB Liverpool
THE UNIVERSITY OF TUEBINGEN
Germany
Address
Frondnergstrasse 23
72070 Tuebingen
UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom
Address
6,Walker Terrace 13
NE8 1EB Gateshead
UNIVERSITY OF ULSTER
United Kingdom
Address
Shore Road
BT37 0QB Newtown Abbey
VESTFORD COUNTY CENTRAL HOSPITAL
Norway
Address

3116 Tonsberg