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European network of DNA, cell and tissue banks on rare diseases

Objective

Eurobiobank will set up the first operating network of rare diseases biological resources centres in Europe, gathering and facilitating the access to nearly 150.000 existing human biological samples of DNA, tissues and cell cultures. The network gathers 16 partners from 8 countries and is open to new memberships. It will optimise the exploitation of biological collections of human material. It will help reaching a critical mass of collections indispensable for research on rare diseases. Activities will focus on: development of a dedicated website interconnecting and facilitating access to collections; definition of high quality criteria and Standard Operating Procedures; mapping of relevant practical ethical issues; dissemination of SOP and know-how to the whole European scientific community, particularly through a training programme and information activities.

Funding Scheme

THN - Thematic network contracts

Coordinator

EUROPEAN ORGANIZATION FOR RARE DISEASES
Address
Rue Didot 102
75014 Paris
France

Participants (11)

ASSOCIATION FRANCAISE CONTRE LES MYOPATHIES
France
Address
Hopital Pitie Salpetriere, Institut De Myologie, 4
75013 Paris
FODOR JOZSEF NATIONAL PUBLIC HEALTH CENTRE
Hungary
Address
Nagyvarad Ter.2
1097 Budapest
FUNDACION PARA LA COOPERACION Y SALUD INTERNACIONAL CARLOS III
Spain
Address
Calle Sinesio Delgado 6
28029 Madrid
GENETHON III
France
Address
Rue De L'internationale 1Bis
91002 Evry
ISTITUTO NAZIONALE NEUROLOGICO 'CARLO BESTA'
Italy
Address
Via Temolo 4
20126 Milano
SECONDA UNIVERSITA DEGLI STUDI DI NAPOLI
Italy
Address
I Policlinico - Piazza Miraglia 2
80138 Napoli
TEAMLOG SA
France
Address
Rue Lavoisier 10
38330 Biviers
UNIVERSITA DEGLI STUDI DI PADOVA
Italy
Address
Via Giustiniani 5
35128 Padova
UNIVERSITE CATHOLIQUE DE LOUVAIN
Belgium
Address
Avenue Mounier 52, Tour Vesale 5220
1200 Bruxelles
UNIVERSITY OF LJUBLJANA
Slovenia
Address
Korytkova, 2
1000 Ljubljana
UNIVERSITY OF MALTA
Malta
Address
Tal- Qroqq
MSD 06 Msida