European network of DNA, cell and tissue banks on rare diseases

Objective

Eurobiobank will set up the first operating network of rare diseases biological resources centres in Europe, gathering and facilitating the access to nearly 150.000 existing human biological samples of DNA, tissues and cell cultures. The network gathers 16 partners from 8 countries and is open to new memberships. It will optimise the exploitation of biological collections of human material. It will help reaching a critical mass of collections indispensable for research on rare diseases. Activities will focus on: development of a dedicated website interconnecting and facilitating access to collections; definition of high quality criteria and Standard Operating Procedures; mapping of relevant practical ethical issues; dissemination of SOP and know-how to the whole European scientific community, particularly through a training programme and information activities.

Programme(s)

• FP5-LIFE QUALITY - Specific Programme for research, technological development and demonstration on "Quality of life and management of living resources", 1998-2002

Topic(s)

• 1.1.1.-14. - Support for research infrastructures

Funding Scheme

THN - Thematic network contracts

Coordinator

EUROPEAN ORGANIZATION FOR RARE DISEASES

Address

Rue Didot 102
75014 Paris
France

Participants (11)

ASSOCIATION FRANCAISE CONTRE LES MYOPATHIES

France

Address

Hopital Pitie Salpetriere, Institut De Myologie, 4
75013 Paris

FODOR JOZSEF NATIONAL PUBLIC HEALTH CENTRE

Hungary

Address

Nagyvarad Ter.2
1097 Budapest

FUNDACION PARA LA COOPERACION Y SALUD INTERNACIONAL CARLOS III

Spain

Address

Calle Sinesio Delgado 6
28029 Madrid

GENETHON III

France

Address

Rue De L'internationale 1Bis
91002 Evry

ISTITUTO NAZIONALE NEUROLOGICO 'CARLO BESTA'

Italy

Address

Via Temolo 4
20126 Milano

SECONDA UNIVERSITA DEGLI STUDI DI NAPOLI

Italy

Address

I Policlinico - Piazza Miraglia 2
80138 Napoli

TEAMLOG SA

France

Address

Rue Lavoisier 10
38330 Biviers

UNIVERSITA DEGLI STUDI DI PADOVA

Italy

Address

Via Giustiniani 5
35128 Padova

UNIVERSITE CATHOLIQUE DE LOUVAIN

Belgium

Address

Avenue Mounier 52, Tour Vesale 5220
1200 Bruxelles

UNIVERSITY OF LJUBLJANA

Slovenia

Address

Korytkova, 2
1000 Ljubljana

UNIVERSITY OF MALTA

Malta

Address

Tal- Qroqq
MSD 06 Msida