Obiettivo Benefit sharing is an area of increasing international debate at the highest levels of policy making (WHO, WTO, WIPO). Despite the central significance of ethics in this context, ethical concerns have hardly been discussed nor researched in depth. Benefit sharing occurs mainly in two areas: - Human genetic banking for the purpose of pharmacogenomics or population genomics research (human genetic resources). - Use of traditional knowledge from indigenous communities mainly by the pharmaceutical industry to develop new products (non-human genetic resources). Researchers, specialists and stakeholders from the human and the non-human realm hardly ever have a chance to co-operate. This is particularly detrimental to those working in the human area, which lacks legally binding, international regulations already in existence for benefit sharing regarding plants, animals and micro-organisms (e.g. Convention on Biodiversity, 1992). It is therefore essential to create an international network of experts and stakeholders on benefit sharing from human and non-human areas to explore synergies and forward the benefit sharing debate for human genetic resources.This project will establish an interdisciplinary team of ethicists, lawyers, economists, medical doctors, specialists in gender studies, representatives of indigenous communities and policy-advisors from five continents. The teams will study four paradigmatic international case studies (from South Africa, India, Iceland, and Kenya) to provide a profound state-of-the-art analysis for benefit sharing in the context of human and non-human resources. Based on this comparative research, the main aim of this project is to promote policy developments by developing an "ethics health check" for benefit sharing agreements involving vulnerable groups and communities in the area of human genetics. Campo scientifico natural sciencesbiological sciencesgeneticssocial sciencessociologygender studiessocial sciencessociologysocial issuessocial inequalitiesnatural sciencesbiological sciencesecologyecosystemsmedical and health sciencesbasic medicinemedical genetics Parole chiave Benefit Sharing Convention on Biodiversity Genetics Genomics Indigenous Communities Vulnerable Populations Programma(i) FP6-SOCIETY - Science and society: specific programme for research, technological development and demonstration : "Structuring the European Research Area" under the Sixth Framework Programme 2002-2006 Argomento(i) SOCIETY - Science and Society SOCIETY-WP2005-4.3.2.3(a) - Ethics research Invito a presentare proposte FP6-2005-SCIENCE-AND-SOCIETY-14 Vedi altri progetti per questo bando Meccanismo di finanziamento STREP - Specific Targeted Research Project Coordinatore UNIVERSITY OF CENTRAL LANCASHIRE Contributo UE Nessun dato Indirizzo Adelphi Building Flyde Road PRESTON Regno Unito Mostra sulla mappa Collegamenti Sito web Opens in new window Costo totale Nessun dato Partecipanti (5) Classifica in ordine alfabetico Classifica per Contributo UE Espandi tutto Riduci tutto ASSISTANCE PUBLIQUE-HOPITAUX DE PARIS - CENTRE D'ETIQUE CLINIQUE COCHIN Francia Contributo UE Nessun dato Indirizzo 3 Avenue Victoria PARIS Mostra sulla mappa Collegamenti Sito web Opens in new window Costo totale Nessun dato RESEARCH AND INFORMATION SYSTEM FOR DEVELOPING COUNTRIES India Contributo UE Nessun dato Indirizzo Core IV B India Habitat Centre, Lodi Road NEW DELHI Mostra sulla mappa Collegamenti Sito web Opens in new window Costo totale Nessun dato UNIVERSITY OF THE PHILIPPINES, DILIMAN Filippine Contributo UE Nessun dato Indirizzo Quezon City DILIMAN Mostra sulla mappa Collegamenti Sito web Opens in new window Costo totale Nessun dato UNIVERSITY OF THE WITWATERSRAND Sud Africa Contributo UE Nessun dato Indirizzo 1 Jan Smuts Avenue WITS JOHANNESBURG Mostra sulla mappa Collegamenti Sito web Opens in new window Costo totale Nessun dato VILNIAUS UNIVERSITETAS Lituania Contributo UE Nessun dato Indirizzo Universiteto str. 3 VILNIUS Mostra sulla mappa Collegamenti Sito web Opens in new window Costo totale Nessun dato
