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A European Platform of Integrated Information Services for Researchers in the Field of Rare Diseases and Orphan Drugs Supporting Team and Project Building

Objective

This project aims at creating a set of tools intended to facilitate collaborations between academic teams, SMEs and even major companies, in the field of rare diseases (RD). These tools will contribute to building up a community of stakeholders with the ultimate goal of speeding up RD research and development, providing diagnostic tools and therapies as quickly as possible. The specific objectives are to: - identify expert groups in Europe, on-going funded research projects, technological platforms, databases and biobanks relevant to RD research and to release the information in a user-friendly manner on the existing Orphanet website. - identify, among research projects funded at the MS level and at the EU level, those which are in need of partnership with other academic teams and/or which have a potential for market development and may benefit from a partnership with Industry. - release the information on partnership opportunities on the existing OrphanXchange website and adapt the website to meet the needs of all the types of partnerships identified so far. - develop partner search facilities based on the above mentioned databases and on an ad-hoc basis. - develop an electronic newsletter informing the community about newly posted partnership requests and business opportunities. - organise two workshops with top experts to analyse areas in need of collaborative research projects. The new facilities will be developed from three existing RD websites previously funded through EC grants: - www.orphanplatform.org serving as a management tool and a follow-up tool between partners. - www.orphanXchange.org serving as a tool to facilitate partnership between academic researchers, Industry, and private companies - www.orpha.net providing information on on-going research activities in Europe. This project is based on input from four EU projects: Orphanet, OrphanPlatform, E-Rare (www.erare.eu) and the RD Task Force (www.rdtf.org).

Call for proposal

FP7-HEALTH-2007-A
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Funding Scheme

CSA-SA - Support actions

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Address
Rue De Tolbiac 101
75654 Paris
France
Activity type
Research Organisations
EU contribution
€ 402 901
Administrative Contact
Ségolène Aymé (Dr.)

Participants (12)

KATHOLIEKE UNIVERSITEIT LEUVEN
Belgium
EU contribution
€ 48 150
Address
Oude Markt 13
3000 Leuven
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Maria Vereeken (Ms.)
FONDAZIONE CASA SOLLIEVO DELLA SOFFERENZA
Italy
EU contribution
€ 42 933
Address
Viale Cappuccini Sc
71013 San Giovanni Rotondo Fg
Activity type
Research Organisations
Administrative Contact
Giovanni Piano (Mr.)
AGENCIA ESTATAL CONSEJO SUPERIOR DE INVESTIGACIONES CIENTIFICAS
Spain
EU contribution
€ 48 150
Address
Calle Serrano 117
28006 Madrid
Activity type
Research Organisations
Administrative Contact
Mar Garcia Ferrer (Ms.)
THE UNIVERSITY OF MANCHESTER
United Kingdom
EU contribution
€ 99 000
Address
Oxford Road
M13 9PL Manchester
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Liz Fay (Ms.)
MEDIZINISCHE HOCHSCHULE HANNOVER
Germany
EU contribution
€ 96 300
Address
Carl-neuberg-strasse 1
30625 Hannover
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Joerg Schmidtke (Prof.)
MEDIZINISCHE UNIVERSITAET WIEN
Austria
EU contribution
€ 36 113
Address
Spitalgasse 23
1090 Wien
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Herbert Budka (Prof.)
EESTI BIOKESKUS
Estonia
EU contribution
€ 24 775
Address
Riia 23B
51010 Tartu
Activity type
Research Organisations
Administrative Contact
Andres Metspalu (Prof.)
UNIVERZITA KARLOVA
Czechia
EU contribution
€ 20 063
Address
Ovocny Trh 560/5
116 36 Praha 1
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Milan Macek (Prof.)
VAESTOLIITTO RY
Finland
EU contribution
€ 32 100
Address
Kalevankatu 16
00100 Helsinki
Activity type
Research Organisations
Administrative Contact
Riitta Salonen (Dr.)
INSTYTUT POMNIK CENTRUM ZDROWIA DZIECKA
Poland
EU contribution
€ 26 471
Address
Aleja Dzieci Polskich 20
04730 Warszawa
Activity type
Research Organisations
Administrative Contact
Ewa Pronicka (Prof.)
ACADEMISCH ZIEKENHUIS LEIDEN
Netherlands
EU contribution
€ 48 150
Address
Albinusdreef 2
2333 ZA Leiden
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Linda Ouwerkerk (Ms.)
KAROLINSKA INSTITUTET
Sweden
EU contribution
€ 32 100
Address
Nobels Vag 5
17177 Stockholm
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Thomas Walstam (Mr.)