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Cancer control using populationbased registries and biobanks

Objective

Longitudinal studies nested in biobanks enable more reliable and efficient study designs for molecular epidemiology studies, both for design and evaluation of cancer treatment and cancer prevention as well as for exploring and evaluating etiologic hypotheses. However, several prerequisites apply:
-There must exist very large scale biobanks who should already have several decades of follow-up.
-It must be possible to link biobanks with quality-assured population-based cancer registries to enable population-representative studies with minimal case ascertainment bias.
-Important problems regarding overview, accessibility, quality control, phenotypic characterisation, efficiency and avoiding risks for violation of personal integrity must be addressed.
The present network has joined large biobänks with up to 30 years of follow-up and >60.000 prospectively occurring cancer cases and cancer registries with >40 years of population-based registration, to achieve the following goals:
1. Provide the study base for uniquely large population-based prospective studies on cancer.
2. Define and implement a European Quality Standard for Biobanking.
3. Define and promote the implementation of integrity-proof methods for biobank-based research involving well defined and secure third party code-keeping systems.
4. Enable large-scale, population-based research on:
a) evaluation of cancer treatment and role of molecular markers in treatment selection;
b) identification and evaluation of genetic markers associated with increased cancer risk using over-generation linkages;
c) exploration and evaluation of intrauterine exposures associated with increased cancer risk using over- generation linkages;
d) design of optimal strategies for cancer prevention and its evaluation.
5. Establish a Europe-wide network for spreading the awareness of possibilities and best practise quality standards for biobank-based research.

Call for proposal

FP6-2002-LIFESCIHEALTH
See other projects for this call

Funding Scheme

NoE - Network of Excellence
Leaflet | Map data © OpenStreetMap contributors, Credit: EC-GISCO, © EuroGeographics for the administrative boundaries

Coordinator

LUND UNIVERSITY
Address
Paradisgatan 5C
117 Lund
Sweden

Participants (17)

FINNISH CANCER REGISTRY
Finland
Address
Liisankatu 21B
Helsinki
THE CANCER REGISTRY OF NORWAY
Norway
Address
Montebello
Oslo
DEUTSCHES KREBSFORSCHUNGSZENTRUM HEIDELBERG
Germany
Address
Im Neuenheimer Feld 280
101949 Heidelberg
UMEA UNIVERSITET
Sweden
Address
Universitetsomraadet
Umea
KAROLINSKA INSTITUTET
Sweden
Address
Nobels Vaeg 1
Stockholm
ICELANDIC CANCER SOCIETY
Iceland
Address
Skogarhlid 8
Reykjavik
KANSANTERVEYSLAITOS
Finland
Address
Mannerheimintie 166
Helsinki
UNIVERSITAETSKLINIKUM HEIDELBERG
Germany
Address
Vossstrasse 2
Heidelberg
IMPERIAL COLLEGE OF SCIENCE, TECHNOLOGY AND MEDICINE.
United Kingdom
Address
South Kensington Campus
London
UNIVERSITY OF TAMPERE.
Finland
Address
Kalevantie 4
Tampere
CENTRO DI RIFERIMENTO ONCOLOGICO
Italy
Address
Via Pedemontana Occidentale 12
Aviano
INSTITUTE OF CANCER RESEARCH - ROYAL CANCER HOSPITAL
United Kingdom
Address
Old Brompton Road 123
London
MARIA SKLODOWSKA-CURIE MEMORIAL CANCER CENTER
Poland
Address
Ul.w.k. Roentgena, 5
Warzawa
SCIENTIFIC INSTITUTE OF PUBLIC HEALTH
Belgium
Address
Rue Juliette Wytsman 14
Bruxelles
LIMBURGSE KANKERSTICHTING
Belgium
Address
Stadsomvaart, 9
Hasselt
LANDSPITALI UNIVERSITY HOSPITAL
Iceland
Address
Eiriksgata 5
Reykjavik
UPPSALA UNIVERSITET
Sweden
Address
St Olofsgatan 10B
256 Uppsala