CORDIS
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CORDIS

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Psychosocial fActors Relevant to BrAin DISorders in Europe

Objective

The overall prevalence of brain disorders – both neurological and psychiatric – is very high in Europe. Although it is well known that the burden and costs of these disorders are high, there is evidence that the overall, personal, social and economic costs of brain disorders have been underestimated because of the lack of valid and reliable information regarding the full range of psychosocial difficulties that actually shape the lived experience of persons with these disorders and affect their quality of life. Current European data on psychosocial difficulties are derived from the diagnostic criteria of each disorder and so take the form of narrow ‘information silos’ that are neither comprehensive nor comparable across disorders. Distinct information silos means that treatment planning, treatment evaluation and outcome assessment ignores commonalities of psychosocial consequences across disorders, undermining treatment efficiency and effectiveness, and ultimately increasing the costs of health and social care provision. The coordination action called PARADISE has the general objective of coordinating the development of a comprehensive and cross-cutting or ‘horizontal epidemiology’ of psychosocial difficulties associated with brain disorders. Since a horizontal epidemiology accounts for the psychosocial difficulties that are actually experienced by people with brain disorders, independently of the brain disorder associated with them, it concentrates on what is more relevant to the lives of people with brain disorders. This leads to more effective intervention planning and management, and therefore to improved quality of life along the continuum of care, in the community, and across the life span. PARADISE coordinates the existing expertise in partners from eight European countries in relation to research literature, data documentation and analysis strategies for a representative range of brain disorders. These disorders are dementia, depression, epilepsy, migraine, multiple sclerosis, Parkinson’s Disease, schizophrenia, stroke and substance use disorders. PARADISE will pave the way to future investigations that more meaningfully track the trajectories of psychosocial difficulties of brain disorders.
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Coordinator

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN

Address

Geschwister Scholl Platz 1
80539 Muenchen

Germany

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 243 437,86

Administrative Contact

Alarcos Cieza (Dr.)

Participants (9)

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UNIVERSIDAD AUTONOMA DE MADRID

Spain

EU Contribution

€ 157 290

FONDAZIONE IRCCS ISTITUTO NEUROLOGICO CARLO BESTA

Italy

EU Contribution

€ 215 009,01

WORLD HEALTH ORGANIZATION

Switzerland

EU Contribution

€ 255 088

Schweizer Paraplegiker-Forschung AG

Switzerland

EU Contribution

€ 125 618

THE EUROPEAN BRAIN COUNCIL AISBL

Belgium

EU Contribution

€ 87 916

UNIVERSITY OF EAST ANGLIA

United Kingdom

EU Contribution

€ 81 875,56

INSTYTUT PSYCHIATRII I NEUROLOGII

Poland

EU Contribution

€ 110 765,75

CFc srl

Italy

EU Contribution

€ 120 347,82

A-klinikkasäätiö

Finland

EU Contribution

€ 84 744

Project information

Grant agreement ID: 241572

Status

Closed project

  • Start date

    1 January 2010

  • End date

    30 June 2013

Funded under:

FP7-HEALTH

  • Overall budget:

    € 1 675 934,42

  • EU contribution

    € 1 482 092

Coordinated by:

LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN

Germany