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PanCare Childhood and Adolescent Cancer Survivor Care and Follow-up Studies

Objectif

Over the last 40 years, treatment for childhood and adolescent cancer has improved greatly; 5- year survival after childhood cancer is now 80% in developed countries. Approximately 1 individual in 750 of young adults is now a childhood cancer survivor. Epidemiologic data on the number of European childhood cancer long-term survivors are not available, but estimates suggest a number between 300,000 and 500,000. However, significant differences in both survival and services for long-term follow-up exist across Europe. Recent research from North America has shown that the frequency of late complications continues to rise as the length of follow-up increases with, so far, no evidence of a plateau of incidence. Some late complications of treatment lead to chronic ill health or disability, and thereby constitute a significant burden both on individuals and families, and on health services and society. However, there is considerable opportunity for early identification and appropriate management of complications to improve the survivors’ health and quality of life, and to maximise efficient use of health services. PanCareSurFup proposes an integrated group of research and service projects to meet these needs. PanCareSurFup will, through cooperation with existing registries and databases, collect data on the risks of complications of cancer treatments to create a retrospective European cohort. Using this cohort research will centre on cardiac toxicity, second cancers and late mortality, with service projects based on a study of models of follow-up and transition to adult care. PanCareSurFup will describe risks of complications of treatment received. Risk prediction and guidelines for care and education will be based on our research and existing evidence, and tailored for each country. The expected benefit is to provide every European childhood cancer survivor with better access to care and better long-term health.

Appel à propositions

FP7-HEALTH-2010-two-stage
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Coordinateur

MAX IV Laboratory, Lund University
Adresse
Paradisgatan 5C
22100 Lund
Suède
Type d’activité
Higher or Secondary Education Establishments
Contribution de l’UE
€ 926 438,40
Contact administratif
Lars Hjorth (Dr.)

Participants (16)

UNIVERSITY OF NEWCASTLE UPON TYNE
United Kingdom
Contribution de l’UE
€ 212 000
Adresse
Kings Gate
NE1 7RU Newcastle Upon Tyne
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Aleona Blinova (Ms.)
ISTITUTO GIANNINA GASLINI
Italie
Contribution de l’UE
€ 250 780
Adresse
Via Gerolamo Gaslini 5
16147 Genova
Type d’activité
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Contact administratif
Maria Gabriella Marinari (Dr.)
UNIVERSITAETSMEDIZIN DER JOHANNES GUTENBERG-UNIVERSITAET MAINZ
Allemagne
Contribution de l’UE
€ 331 041
Adresse
Langenbeckstrasse 1
55131 Mainz
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Uta Veith (Dr.)
BOYNE RESEARCH INSTITUTE LIMITED
Irlande
Contribution de l’UE
€ 243 181,20
Adresse
5 Bolton Square East
A92 RY6K Drogheda Louth
Type d’activité
Research Organisations
Contact administratif
Julianne Byrne (Dr.)
ST.ANNA KINDERSPITAL GMBH
Autriche
Contribution de l’UE
€ 128 000,40
Adresse
Kinderspitalgasse 6
1090 Wien
Type d’activité
Research Organisations
Contact administratif
Werner Eibler (Mr.)
ACADEMISCH MEDISCH CENTRUM BIJ DE UNIVERSITEIT VAN AMSTERDAM
Pays-Bas
Contribution de l’UE
€ 888 251
Adresse
Meibergdreef 15
1105AZ Amsterdam
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Leontien Kremer (Dr.)
VAS MEGYEI MARKUSOVSZKY LAJOS ALTALANOS, REHABILITACIOS ES GYOGYFURDOKORHAZ, EGYETEMI OKTATO KORHAZ ZARTKORUEN MUKODO NONPROFIT RESZVENYTA

Participation terminée

Hongrie
Adresse
Hunyadi Janos Utca 31
9970 Szentgotthard
Type d’activité
Research Organisations
Contact administratif
Edit Bárdi (Dr.)
UNIVERSITA DEGLI STUDI DI TORINO
Italie
Contribution de l’UE
€ 222 727
Adresse
Via Giuseppe Verdi 8
10124 Torino
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Antonietta Davello (Ms.)
GREAT ORMOND STREET HOSPITAL FOR CHILDREN NHS FOUNDATION TRUST
United Kingdom
Contribution de l’UE
€ 85 000
Adresse
Great Ormond Street
WC1N 3JH London
Type d’activité
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Contact administratif
Claire Newton (Ms.)
UNIVERSITAET BERN
Suisse
Contribution de l’UE
€ 427 896
Adresse
Hochschulstrasse 6
3012 Bern
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Claudia Kühni (Dr.)
INSTITUT GUSTAVE ROUSSY
France
Contribution de l’UE
€ 909 112
Adresse
Rue Camille Desmoulins 39
94805 Villejuif
Type d’activité
Research Organisations
Contact administratif
Arnauld Forest (Mr.)
THE UNIVERSITY OF BIRMINGHAM
United Kingdom
Contribution de l’UE
€ 898 908
Adresse
Edgbaston
B15 2TT Birmingham
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Robert Fekete (Mr.)
FONDAZIONE MONZA E BRIANZA PER IL BAMBINO E LA SUA MAMMA ONLUS
Italie
Contribution de l’UE
€ 125 200
Adresse
Via Pergolesi 33
20052 Monza
Type d’activité
Other
Contact administratif
Momcilo Jankovic (Dr.)
SIOP EUROPE ASBL
Belgique
Contribution de l’UE
€ 76 522
Adresse
Avenue E Mounier 83
1200 Bruxelles
Type d’activité
Other
Contact administratif
Samira Essiaf (Ms.)
CENTRE INTERNATIONAL DE RECHERCHE SUR LE CANCER
France
Contribution de l’UE
€ 132 901
Adresse
150 Cours Albert Thomas
69372 Lyon Cedex 08
Type d’activité
Other
Contact administratif
Olaf Kelm (Dr.)
SEMMELWEIS EGYETEM
Hongrie
Contribution de l’UE
€ 135 737
Adresse
Ulloi Utca 26
1085 Budapest
Type d’activité
Higher or Secondary Education Establishments
Contact administratif
Edit Bárdi (Dr.)