Skip to main content

ERA-Net on Rare Diseases

Objective

Rare diseases represent an important public-health issue, affecting 26-30 million persons across Europe, and a major challenge for research. The fragmentation of resources and knowledge for the 6000-8000 rare diseases and the lack of treatment for the majority of them necessitate a coordinated European approach to unravel the underlying molecular defects and pathophysiological mechanisms. The low number of affected patients requires transnational collaboration with multidisciplinary approaches to map prevalences, build patient registries, identify biomarkers, develop new diagnostics and finally perform clinical studies for the development of treatments. The successful linking of research funding organisations in E-Rare-1 and the subsequent exemplary joint funding activities have attested the need of, and the acknowledgment from, the research community for transnational funding of collaborative, multidisciplinary and ambitious projects on rare diseases. It has leveraged funding for rare disease research in countries without specific programmes for rare diseases and thus enabled the participation of researchers in these countries to transnational projects. The E-Rare-2 project aims at deepening and extending the cooperation among the E-Rare-1 and the five new partners by systematic exchange of information, yearly launching of joint calls, thorough assessment of the funding mechanisms and results of the funded research projects and, finally, strategic activities aiming at a sustainable development and extension of the network. Special attention will be given to the outreach and knowledge exchange with new member states, countries outside of Europe and key stakeholders/initiatives important for rare diseases. E-Rare-2 activities will thus further contribute to reducing fragmentation of research and resources through the enhanced coordination and transnational funding of excellent research on rare diseases, thereby shaping the European Research Area for rare diseases.

Field of science

  • /social sciences/other social sciences/social sciences interdisciplinary/sustainable development

Call for proposal

FP7-ERANET-2010-RTD
See other projects for this call

Funding Scheme

CSA-CA - Coordination (or networking) actions

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Address
Rue De Tolbiac 101
75654 Paris
France
Activity type
Research Organisations
EU contribution
€ 548 938,52
Administrative Contact
Daria Julkowska (Dr.)

Participants (17)

DEUTSCHES ZENTRUM FUR LUFT - UND RAUMFAHRT EV
Germany
EU contribution
€ 316 767,90
Address
Linder Hohe
51147 Koln
Activity type
Research Organisations
Administrative Contact
Silke Kraus (Ms.)
BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG
Germany
Address
Heinemannstrasse 2
53175 Bonn
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Birgit Wetterauer (Dr.)
INSTITUTO DE SALUD CARLOS III
Spain
EU contribution
€ 192 658
Address
Monforte De Lemos 5
28029 Madrid
Activity type
Research Organisations
Administrative Contact
Pedro Cortegoso (Mr.)
FONDS DE LA RECHERCHE SCIENTIFIQUE- FNRS
Belgium
EU contribution
€ 114 153,90
Address
Rue D'egmont 5
1000 Bruxelles
Activity type
Research Organisations
Administrative Contact
Freia Van Hee (Ms.)
MINISTRY OF HEALTH
Israel
EU contribution
€ 81 962
Address
Yirmiyahu 39
9101002 Jerusalem
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Zelina Ben-Gershon (Dr.)
ISTITUTO SUPERIORE DI SANITA
Italy
EU contribution
€ 187 851,50
Address
Viale Regina Elena 299
00161 Roma
Activity type
Research Organisations
Administrative Contact
Rosa Maria Martoccia (Dr.)
ZORGONDERZOEK NEDERLAND ZON
Netherlands
EU contribution
€ 78 564,50
Address
Laan Van Nieuw Oost Indie 334
2593CE Den Haag
Activity type
Research Organisations
Administrative Contact
Richard Van Beekum (Mr.)
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU
Turkey
EU contribution
€ 31 598
Address
Ataturk Bulvari 221
06100 Ankara
Activity type
Research Organisations
Administrative Contact
Melike Sevimli (Ms.)
AGENCE NATIONALE DE LA RECHERCHE
France
EU contribution
€ 190 222,30
Address
50 Avenue Daumesnil
75012 Paris
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Sophie Despinoy (Mrs.)
FUNDACAO PARA A CIENCIA E A TECNOLOGIA
Portugal
EU contribution
€ 50 290
Address
Avenida D Carlos I 126
1249 074 Lisboa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Anabela Isidro (Dr.)
FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG
Austria
EU contribution
€ 34 055,88
Address
Sensengasse 1
1090 Wien
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Stephanie Resch (Dr.)
GENIKI GRAMMATIA EREVNAS KAI TECHNOLOGIAS
Greece
EU contribution
€ 32 100
Address
Mesogeion Avenue 14-18
11510 Athens
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
Suzanne Kolyva (Dr.)
KENTROU ELEGHOU & PROLIPSIS NOSIMATON
Greece
EU contribution
€ 75 907,95
Address
Agrafon 3-5
15123 Marousi
Activity type
Other
Administrative Contact
Lia Tzala (Dr.)
MINISTERIO DA SAUDE - REPUBLICA PORTUGUESA

Participation ended

Portugal
EU contribution
€ 12 840
Address
Av. João Crisóstomo, 9
1049-062 Lisboa
Activity type
Public bodies (excluding Research Organisations and Secondary or Higher Education Establishments)
Administrative Contact
José Robalo (Dr.)
PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS
Hungary
EU contribution
€ 30 943,50
Address
Vasvari Pal Utca 4
7622 Pecs
Activity type
Higher or Secondary Education Establishments
Administrative Contact
Edina Kicsindi (Ms.)
Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii
Romania
EU contribution
€ 20 826,48
Address
Mendeleev Street 21-25
010362 Bucharest
Activity type
Research Organisations
Administrative Contact
Simona Cristina Stoian (Ms.)
INSTITUTO NACIONAL DE SAUDE DR. RICARDO JORGE
Portugal
Address
Avenida Padre Cruz
1600 560 Lisboa
Activity type
Research Organisations
Administrative Contact
Isabel Carvalho Oliveira (Mrs.)