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ERA-Net on Rare Diseases

ERA-Net on Rare Diseases

Objective

Rare diseases represent an important public-health issue, affecting 26-30 million persons across Europe, and a major challenge for research. The fragmentation of resources and knowledge for the 6000-8000 rare diseases and the lack of treatment for the majority of them necessitate a coordinated European approach to unravel the underlying molecular defects and pathophysiological mechanisms. The low number of affected patients requires transnational collaboration with multidisciplinary approaches to map prevalences, build patient registries, identify biomarkers, develop new diagnostics and finally perform clinical studies for the development of treatments. The successful linking of research funding organisations in E-Rare-1 and the subsequent exemplary joint funding activities have attested the need of, and the acknowledgment from, the research community for transnational funding of collaborative, multidisciplinary and ambitious projects on rare diseases. It has leveraged funding for rare disease research in countries without specific programmes for rare diseases and thus enabled the participation of researchers in these countries to transnational projects. The E-Rare-2 project aims at deepening and extending the cooperation among the E-Rare-1 and the five new partners by systematic exchange of information, yearly launching of joint calls, thorough assessment of the funding mechanisms and results of the funded research projects and, finally, strategic activities aiming at a sustainable development and extension of the network. Special attention will be given to the outreach and knowledge exchange with new member states, countries outside of Europe and key stakeholders/initiatives important for rare diseases. E-Rare-2 activities will thus further contribute to reducing fragmentation of research and resources through the enhanced coordination and transnational funding of excellent research on rare diseases, thereby shaping the European Research Area for rare diseases.
Leaflet | Map data © OpenStreetMap contributors, Credit: EC-GISCO, © EuroGeographics for the administrative boundaries

Coordinator

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE

Address

Rue De Tolbiac 101
75654 Paris

France

Activity type

Higher or Secondary Education Establishments

EU Contribution

€ 548 938,52

Administrative Contact

Daria Julkowska (Dr.)

Participants (17)

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DEUTSCHES ZENTRUM FUER LUFT - UND RAUMFAHRT EV

Germany

EU Contribution

€ 316 767,90

BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG

Germany

INSTITUTO DE SALUD CARLOS III

Spain

EU Contribution

€ 192 658

FEDERAAL FONDS VOOR WETENSCHAPPELIJK ONDERZOEK

Belgium

EU Contribution

€ 114 153,90

MINISTRY OF HEALTH

Israel

EU Contribution

€ 81 962

ISTITUTO SUPERIORE DI SANITA

Italy

EU Contribution

€ 187 851,50

ZORGONDERZOEK NEDERLAND ZON

Netherlands

EU Contribution

€ 78 564,50

TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU

Turkey

EU Contribution

€ 31 598

AGENCE NATIONALE DE LA RECHERCHE

France

EU Contribution

€ 190 222,30

FUNDACAO PARA A CIENCIA E A TECNOLOGIA

Portugal

EU Contribution

€ 50 290

FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG

Austria

EU Contribution

€ 34 055,88

GENIKI GRAMMATIA EREVNAS KAI TECHNOLOGIAS

Greece

EU Contribution

€ 32 100

KENTROU ELEGHOU & PROLIPSIS NOSIMATON

Greece

EU Contribution

€ 75 907,95

MINISTERIO DA SAUDE - REPUBLICA PORTUGUESA

Portugal

EU Contribution

€ 12 840

PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS

Hungary

EU Contribution

€ 30 943,50

Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii

Romania

EU Contribution

€ 20 826,48

INSTITUTO NACIONAL DE SAUDE DR. RICARDO JORGE

Portugal

Project information

Grant agreement ID: 266608

Status

Closed project

  • Start date

    1 October 2010

  • End date

    30 November 2014

Funded under:

FP7-HEALTH

  • Overall budget:

    € 2 920 521,82

  • EU contribution

    € 1 999 680,43

Coordinated by:

INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE

France

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