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Evidence to support European guidelines for developing valid and comparable data collection systems on very preterm newborns with respect to inclusion criteria and the definition of data items

One of the problems facing European countries wishing to compare care and outcomes for very preterm babies is the differences in the way that data are collected for these babies, such as inclusion criteria and the definition of data items. The MOSAIC project brought together health professionals managing routine databases on these babies who collaborated in defining a common protocol for data collection and identifying data items from routine databases which were comparable in Europe.

These choices were then tested in the data analyses. For instance, one of the important findings from the MOSAIC project is the importance of using as the population of comparison for mortality statistics all babies alive at onset of labour. Because of large differences between countries in the proportion of babies dying intrapartum and immediately after delivery in the maternity ward, this population is considered to be the most comparable. Our results identify several robust well defined data items which can be used to compare health outcome and practices across regions with very different practices and health systems.

END USERS OF THE RESULT: People constructing or managing databases on very preterm babies. Health professionals using data from these databases.

DISSEMINATION STRATEGY: This information will be presented in scientific congresses and published in the scientific press. The MOSAIC consortium will make its protocols and instruments available to interested researchers in Europe. Furthermore, collaborations with other regions that have similar data on very preterm babies is envisaged as part of the follow-up work on the MOSAIC project.

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INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE - Unité 149,
123 boulevard de Port-Royal
75014 PARIS
France
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