Livrables Documents, reports (21) Pilot Operation Manual This manual will contain: • General description of the study design and the pilot composition • Define the inclusion and exclusion criteria • User recruitment methodology best practices • Ethical documentation preparation (Informed Consent Forms, Information Sheet, authorisations for collection and processing of personal data, authorisations for sensor tracking, etc.) • Definition of the standard user assessment • Schedule of the user assessment along the pilot • Summary of the minimum data to be collected by CAREGIVERSPRO-MMD • Schedule for data collection • Schedule of for data analysis cycles Usability study report This report will summarize the feedback of the feasibility study, where 20 users (4 per pilot) will be provided with the CAREGIVERSPRO-MMD platform. They will be instructed on how to use the platform (as in normal pilot operation) but no previous assessment will be done and no data will be recorded from them except from the usability related data. The information collected during the weekly interaction with them will be reported in the deliverable and the extracted conclusions. Dissemination Plan – second version The second version of the Dissemination Plan will include all updated data regarding the respective activities and a detailed scheduling for the second period of the project. Dissemination Plan - first version. The Dissemination Plan will include among others a list of all communication tools utilized the main dissemination activities and a respective time plan as well as the main target audience groups – User feedback and usability report This report will presents the outcomes of the assessments on how users interacted with CAREGIVERSPRO-MMD platform in order to see how user behaviour and interaction affect CAREGIVERSPRO-MMD efficacy. Improvements performed in the platform on the basis of these results will be presented if any. A summary of the user satisfaction survey and the user feedback and usability surveys will also be outlined. Report on Advisory Board activities This deliverable will report on the communication and coordination of the Advisory Board operations, meetings performed with AB and the overseeing task provided by the AB. It will include the evaluation reports produced by the AB. Three versions of this document will be produced yearly (M12,M24,M36). Customisation guidance document - CAREGIVERSPRO-MMD 2nd version This report will summarize the outcomes of tasks T2.1 and new developments in posterior tasks in terms of user interface adaptations and functionality representation for the different users, based on the usability studies performed. This second version will include the experiences collected during the first phase of the pilot. Customisation guidance document for CAREGIVERSPRO-MMD platform Screening and Interventions services This report presents a technical manual for the configuration and manipulation of screening and intervention contents, taking into consideration the importance of representing the clinical, social and behavioural data in a meaningful way so that can be used by the health and social care professionals to better manage their patients’ care and evaluate CAREGIVERSPRO-MMD impact Data Management Plan - first version The Data Management Plan will be a comprehensive document that will cover the entire data management life cycle even beyond the end of the project This deliverable will describe all the procedures and strategies to be issued in order to manage all the research data involved in the project confidentiality and privacy management anonymisation access rights legal compliance etc The present deliverable will be a preliminar version Target Group Definition Report detailing the different target group composition, especially in the perspective of piloting, providing insight also to the business plan. This report will elaborate for instance the strategy of identification/definition of the target groups, the channel to map and engage them, the scenario definition up to the customer profiling. PACT Analysis and Focus group reports In this deliverable will be reported the outcomes on usercentred design analysis using concepts of designforall and PACT analysis The results of the focus groups and interviews with users to adapt and improve the platform will also be reported Dementia and psychiatric comorbidity symptoms assessment handbook Report including a thorough review of the state of the art on dementia and psychiatric comorbidity symptoms with a relation of the most used validated scales to assess them This review will be performed from a multidisciplinary and interdisciplinary point of view clinical psychological behavioural and social Identification of symptoms will be intended for both individuals as well as the related caregiver professional or not Final Pilot analysis report This report presents the results of the full analysis of the data collected during the whole pilot in terms of progress/ performance indicators (Table 3.2c: Measurable Project Outcome Indicators) that capture changes in costs, treatment adherence, QoL, well-being for both patients and carers, cognitive impairment evolution for patients, etc Mid-Pilot preliminary analysis report This report presents the results of the preliminar analysis of the data collected at mid-pilot stage in terms of progress/ performance indicators (Table 3.2c: Measurable Project Outcome Indicators) that capture changes in costs, treatment adherence, QoL, well-being for both patients and carers, cognitive impairment evolution for patients, etc Customisation guidance document – CAREGIVERSPRO-MMD 1st version This report will summarize the outcomes of tasks T2.1 and new developments in posterior tasks in terms of user interface adaptations and functionality representation for the different users, based on the usability studies performed. Data Management Plan - interim version The Data Management Plan will be a comprehensive document that will cover the entire data management life cycle even beyond the end of the project. This deliverable will describe all the procedures and strategies to be issued in order to manage all the research data involved in the project: confidentiality and privacy management, anonymisation, access rights, legal compliance, etc. The present deliverable will be a mid project updated and more mature version. Report on Legal and Regulatory framework This deliverable will analyse the state of the art from the regulatory point of view: the current legal and regulatory framework with respect to all aspects concerning CAREGIVERSPRO-MMD, including health, social data, experimentation in computer science with human participants, and specifically, privacy and data protection. Ethics and social aspects will be strongly considered, as forming the framework for this analysis. Three versions of this document including legal and regulatory updates will be released yearly (M12,M24,M36). Data Management Plan - final version The Data Management Plan will be a comprehensive document that will cover the entire data management life cycle even beyond the end of the project. This deliverable will describe all the procedures and strategies to be issued in order to manage all the research data involved in the project: confidentiality and privacy management, anonymisation, access rights, legal compliance, etc. The present deliverable will be the final version including all the steps and considerations taken along the project. Social Media Plan The Social Media Plan (SMP) supports the Consortium in building, sharing with the team, and documenting a top down Social Media Strategy. The SMP will include: goals, target audience, core topics, editorial calendar, influencer engagement, forecast, and measurement in each community for each experiments’ country. The SMP will include a communications plan/policy that proactively addresses the use of social media and potential issues. Content of the SMP will be: • Target audience. • Educational objectives and explicit consideration of the function of the CAREGIVERSPRO-MMD platform such as degrees of access and interactivity planned. • Level of privacy and security required. • Issues of medical and social advice and redirection of patients/caregivers to appropriate venues. • Plans to deal with adverse events, including spam, negative comments, complaints, and unprofessional behaviour. Accessibility Report This deliverable will report on the conditions that affect the ability and confidences of CAREGIVERSPROMMD endusers and person with mild cognitive impairment or mild to moderate dementia to use the CAREGIVERSPROMMD platform These conditions will include diseasespecific ones like confusion memory loss etc and generic ones mainly related to the older age like decreased eyesight or hearing impairment and the MMSE severity scale cognitive impairment Mild dementia moderate dementia We will add user characteristics such as culture socioeconomic and educational level We will also list the expected impact of each condition on use of CAREGIVERSPROMMD and adaption measure to improve accessibility Ethical Approval Report This report will include the ethical approval documents of all the pilot sites and all the information provided to the ethical committees in the procedure. Websites, patent fillings, videos etc. (2) CAREGIVERSPRO-MMD social media accounts Pages Accounts will be launched to the most widespread social media networks ie Facebook Twitter LinkedIn CAREGIVERSPRO-MMD Web Portal The CAREGIVERSPROMDD Web Portal will serve as a single point of access for all stakeholders interested in the project The portal will integrate promote and communicate latest evolutions on CAREGIVERSPROMDD findings activities and events including all project related publishable reports The web portal will be updated regularly Demonstrators, pilots, prototypes (1) 450 CAREGIVERSPRO-MMD enabled tablets PCs In this task all the tablet PCs to be provided to the end users will be prepared and properly formated including the CAREGIVERSPRO-MMD platform ready to use in a simple and intuitive way. Publications Conference proceedings (33) Difficultés de recrutement de dyades « aidant-aidé » dans le protocole CAREGIVERSPRO-MMD portant sur les nouvelles technologies adaptées aux patients présentant des troubles neurocognitifs et à leurs aidants Auteurs: H. LINGIAH; L.MALHERBE; M.BERARD; T. SIMON; N.KADRI; A.BOUNACER; I.LANDRIN Publié dans: Journées Annuelles de la Société Française de Gérontologie et de Gériatrie, Issue 11, 2018 Éditeur: Société Française de Gérontologie et de Gériatrie DOI: 10.5281/zenodo.2613642 Développement d'une plateforme digitale intelligente pour soutenir les patients atteints de maladie d'Alzheimer et leurs aidants Auteurs: BERARD Marie; BOUNACER Ali; LANDRIN Isabelle; MALHERBE Laetitia; KADRI Nadir; TOUFLET Myriam; SIMON Thibault Publié dans: Congrès des Unités de Soins, d'évaluation et de prise en charge Alzheimer, Issue 12, 2016 Éditeur: https://zenodo.org/record/2936815 DOI: 10.5281/zenodo.2936815 CAREGIVERSPRO-MMD: A European platform to support people living with dementia and their caregivers Auteurs: Zafeiridi, P.; Dunn, R.; Wolverson, E.; Paulson, K. Publié dans: 26th Alzheimer Europe conference, 2016 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.826713 Training people with dementia and their caregivers in the use of a web-based support tool: Lessons learned Auteurs: Kate Cunnah; Emma Wolverson; Rosie Dunn; David Howe; Kevin Paulson; Rebecca Platt; Jonathan Thorpe; Caroline White Publié dans: 28th Alzheimer Europe conference, 2018 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.2994359 CAREGIVERSPRO-MMD: An online platform to support people living with dementia and their carers – UK pilot update. Auteurs: Emma Wolverson; Rosie Dunn; David Howe; Kate Cunnah; Rebecca Platt; Jonathan Thorpe; Caroline White; Kevin Paulson Publié dans: 28th Alzheimer Europe conference, 2018 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.2994639 Engagement of people with cognitive impairment and their carers in online games –observations from the CAREGIVERSPRO-MMD study Auteurs: David Howe; Jonathan Thorpe; Rosie Dunn; Kate Cunnah; Rebecca Platt; Caroline White; Paraskevi Zafeiridi; Konstantinos Votis; Ioannis Pakiokas; Dimitrios Tzovaras; Kevin Paulson; Emma Wolverson Publié dans: 28th Alzheimer Europe conference, Issue 21, 2018 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.2994013 A Gamification Engine Architecture for Enhancing Behavioral Change Support Systems Auteurs: Evdoxia Eirini Lithoxoidou, Ioannis Paliokas, Ioannis Gotsos, Stelios Krinidis, Athanasios Tsakiris, Konstantinos Votis, Dimitrios Tzovaras Publié dans: Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference on - PETRA '18, 2018, Page(s) 482-489, ISBN 9781-450363907 Éditeur: ACM Press DOI: 10.1145/3197768.3201561 Effectiveness of technology-based interventions for People with Dementia (PwD) Auteurs: Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K. Publié dans: 26th Alzheimer Europe conference, 2016 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.826063 Gamification in Social Networking: A Platform for People Living with Dementia and their Caregivers Auteurs: Paliokas Ioannis; Tzallas Alexandros; Katertsidis Nikolaos; Votis Konstantinos; Tzovaras Dimitrios Publié dans: 17th IEEE International Conference on BioInformatics and BioEngineering, 2017 Éditeur: IEEE DOI: 10.5281/zenodo.2994967 Two examples of online eHealth platforms for supporting people living with cognitive impairments and their caregivers Auteurs: Vassilis Solachidis, Ioannis Paliokas, Nicholas Vretos, Konstantinos Votis, Ulises Cortés, Dimitrios Tzovaras Publié dans: Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference on - PETRA '18, 2018, Page(s) 449-454, ISBN 9781-450363907 Éditeur: ACM Press DOI: 10.1145/3197768.3201556 Evaluation of benefits of the CAREGIVERSPRO-MMD platform giving support and assistance to people living with dementia and their primary caregiver Auteurs: Catena, J.; Rovira, E.; Pardo, C.; Martinez, M.; Riera, C.; Quintana, M.; Ruiz, J.; Girones, X. Publié dans: 23rd National Congress of the Spanish Psychogeriatrics Society, Issue 15, 2017 Éditeur: Spanish Psychogeriatrics Society DOI: 10.5281/zenodo.826728 Consulting end-users in the design and usability of CAREGIVERSPRO-MMD: An internet based support tool designed for people with dementia and their caregivers Auteurs: Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K. Publié dans: 26th Alzheimer Europe conference, Issue 13, 2016 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.826054 Developing a web-based platform for people living with dementia and their caregivers: a user-participatory study Auteurs: Dunn, R.; Zafeiridi, P.; Wolverson, E.; Paulson, K.; White, C. Publié dans: 32nd International Conference of Alzheimer’s Disease International, Issue 13, 2017, Page(s) 634 Éditeur: Alzheimer’s Disease International (ADI) DOI: 10.5281/zenodo.826743 Une plateforme digitale intelligente pour aider les patients atteints de maladie d'Alzheimer et soutenir leurs aidants Auteurs: BERARD Marie; MALHERBE Laetitia; SIMON Thibaut; TOUFLET Myriam; BOUNACER Ali; KADRI Nadir; LANDRIN Isabelle Publié dans: 36è Journées Annuelles de la Société Française de Gérontologie et de Gériatrie, Issue 16, 2016 Éditeur: Société Française de Gérontologie et de Gériatrie DOI: 10.5281/zenodo.2935689 The effectiveness of web-based interventions on dementia caregivers Auteurs: Zafeiridi, P.; Dunn, R.; Wolverson, E.; Paulson, K. Publié dans: 26th Alzheimer Europe Conference, Issue 15, 2016 Éditeur: Alzheimer Europe DOI: 10.5281/zenodo.826045 Investigating the understanding of technology use for people with dementia and caregivers: an exploratory study Auteurs: ZAFEIRIDI Paraskevi, DUNN Rosie, PAULSON Kevin, WOLVERSON Emma, THORPE Jonathan Publié dans: 27th Alzheimer Europe Conference, 2017 Éditeur: Alzheimer Europe Exploring the effect of early-stage dementia on spousal relationship for people with dementia and caregivers Auteurs: ZAFEIRIDI Paraskevi, DUNN Rosie, WOLVERSON Emma, PAULSON Kevin, WHITE Caroline Publié dans: 27th Alzheimer Europe Conference, 2017 Éditeur: Alzheimer Europe ETUDE EUROPEENNE CAREGIVERSPRO-MMD : PROFIL DES PATIENTS EN FRANCE Auteurs: L. MALHERBE1, H. LINGIAH1,2, T. SIMON2, M. BERARD1, L. MALHERBE1, A. BOUNACER3, N. KADRI1, I. LANDRIN1 Publié dans: Journées Annuelles de la Société Française de Gérontologie et de Gériatrie, 2018 Éditeur: Société Française de Gérontologie et de Gériatrie Designing a gamified social platform for people living with dementia and their live-in family caregivers Auteurs: A. T. Tzallas, N. Katertsidis, K. Glykos, S. Segkouli, K. Votis, I. Paliokas, D. Tzovaras, C. Barrué, U. Cortés Publié dans: PETRA '18 Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference, Issue 476-481, 2018 Éditeur: ACM Press Online games for people with memory problems and their carers– observations from CAREGIVERSPRO-MMD Auteurs: PAULSON Kevin, WOLVERSON Emma, DUNN Rosie, THORPE Jonathan, ZAFEIRIDI Paraskevi, HOWE David, OXTOBY Katie, WHITE Caroline, PLATT Rebecca, VOTIS Konstantinos, PAKIOKAS Ioannis, TZOVARAS Dimitrios Publié dans: 28th Alzheimer Europe Conference, Issue PO.5.15, 2018 Éditeur: Alzheimer Europe Etude européenne CAREGIVERSPRO-MMD portant sur les nouvelles technologies dédiées au soutien des personnes ayant une maladie d'Alzheimer et apparentée et leurs aidants. Profil des aidants en France Auteurs: L. MALHERBE, H. LINGIAH, T. SIMON, M. BERARD, A. BOUNACER, N. KADRI, I. LANDRIN Publié dans: 38th national congress of the Société Française de de Gériatrie et Gérontologie, 2018 Éditeur: Société Française de de Gériatrie et Gérontologie Health Recommender System design in the context of CAREGIVERSPRO-MMD Project Auteurs: L. Oliva-Felipe, C. Barrue, A. Cortes, E. Wolverson, M. Antomarini, K. Votis, I. Paliokas, U. Cortes Publié dans: PETRA '18 Proceedings of the 11th PErvasive Technologies Related to Assistive Environments Conference, 2018, Page(s) 462-469, ISBN 978-1-4503-6390-7 Éditeur: ACM User-participatory development and evaluation of a tablet computer based social networking platform CAREGIVERSPRO-MMD Auteurs: PAULSON Kevin, WOLVERSON Emma Publié dans: 27th Alzheimer’s Europe Conference, 2017 Éditeur: Alzheimer’s Europe Online Activity Patterns of Social Network Users who are at Risk of Cognitive Decline Auteurs: Paliokas I., Katertsidis N., Glykos K., Tzallas A., Votis K., Tzovaras D. Publié dans: 3rd Mediterranean Conference on Neurodegenerative Diseases (MeCoND), 2019 Éditeur: Alzheimer Hellas Communication between people with memory loss and carers on a closed online social network: A theoretical thematic analysis using Seligman’s PERMA model of wellbeing Auteurs: PLATT Rebecca, WOLVERSON Emma, DUNN Rosie, HOWE David, OXTOBY Katie, THORPE Jonathan, PAULSON Kevin, WHITE Caroline Publié dans: 28th Alzheimer Europe Conference, Issue PO.2.20, 2018 Éditeur: Alzheimer Europe Development of an online platform (CAREGIVERSPRO-MMD) based on social networking and gamification for people living with dementia and their caregivers Auteurs: Tzallas A., Katertsidis N., Paliokas I., Glykos K., Votis K., Tzovaras D. Publié dans: 3rd Mediterranean Conference on Neurodegenerative Diseases (MeCoND), 2019 Éditeur: Alzheimer Hellas Consulting end-users in the design and usability of CAREGIVERSPRO-MMD: An internet based support tool designed for people with dementia and their caregivers Auteurs: Dunn, R., Zafeiridi, P., Wolverson, E., & Paulson Publié dans: Poster in 26th Alzheimer Europe conference, Issue PO3.29 November 2016, 2016 Éditeur: Alzheimer Europe CAREGIVERSPRO-MMD: A European platform to support people living with dementia and their caregivers Auteurs: Zafeiridi P., Dunn R., Wolverson E., Paulson K. Publié dans: Oral presentation in 26th Alzheimer Europe Conference, Issue November 2016, 2016 Éditeur: Alzheimer Europe Effectiveness of technology-based interventions for People with Dementia (PwD) Auteurs: Dunn, R., Zafeiridi, P., Wolverson, E., & Paulson Publié dans: Poster in 26th Alzheimer Europe conference, Issue PO3.28 November 2016, 2016 Éditeur: Alzheimer Europe The effectiveness of web-based interventions on dementia caregivers. Auteurs: Zafeiridi P., Dunn R., Wolverson E., Paulson K. Publié dans: Poster in 26th Alzheimer Europe Conference, Issue PO3.82 November 2016, 2016 Éditeur: Alzheimer Europe Usability study of a web-based intervention to support people living with dementia (PLWD) and their caregivers Auteurs: Zafeiridi P., Dunn R., Paulson K., Wolverson E., White C. and CAREGIVERSPRO-MMD Publié dans: Oral presentation in 32nd International Conference of Alzheimer’s Disease International, Issue April 2017, 2017, Page(s) 104 Éditeur: Alzheimer’s Disease International (ADI) Developing a web-based platform for people living with dementia and their caregivers: A user-participatory study. Auteurs: Zafeiridi P., Dunn R., Paulson K., Wolverson E., White C. and CAREGIVERSPRO-MMD Publié dans: 32nd International Conference of Alzheimer’s Disease International, Issue Poster presentation in 32nd International Conference of Alzheimer’s Disease International, 2017 Éditeur: Alzheimer’s Disease International Evaluation of benefits of the CAREGIVERSPRO-MMD platform giving support and assistance to people living with dementia and their primary caregiver. Auteurs: Catena, J., Rovira, E., Pardo, C., Martinez, M., Riera, C., Quintana, M., Ruiz, J., Girones, X. Publié dans: 23rd National Congress of the Spanish Psychogeriatrics Society, 2017 Éditeur: Spanish Psychogeriatrics Society Peer reviewed articles (3) Evaluating the CAREGIVERSPRO-MMD platform for supporting people with memory problems and caregivers: A usability study Auteurs: Zafeiridi, P.; Paulson, K.; Wolverson, E.; White, C.; Dunn, R.; Antomarini, M.; Cortés, U.; Barruè, C.; Paliokas, I.; García, X.G.; Landrin-Dutot, I.; Malherbe, L. Publié dans: JMIR Research Protocols, Issue 8, 2019, ISSN 1929-0748 Éditeur: JMIR DOI: 10.5281/zenodo.825776 A Web-Based Platform for People with Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability Auteurs: P. Zafeiridi, K. Paulson, R. Dunn, E. Wolverson, C. White, J. A. Thorpe, M. Antomarini, F. Cesaroni, F. Scocchera, I. Landrin-Dutot, L. Malherbe, H. Lingiah, M. Bérard, X. Gironès, M. Quintana, U. Cortés, C. Barrué, A. Cortés, I. Paliokas, K. Votis, D. Tzovaras, Publié dans: JMIR Formative Research, Issue Vol.2, Issue 1, e4, 2018, Page(s) 16, ISSN 2561-326X Éditeur: JMIR CAREGIVERSPRO-MMD: community services, helping patients with dementia and caregivers connect with others for evaluation, support and to improve the care experience Auteurs: Barrué C., Cortés A., Cortés U., Tétard F., Gironès X. Publié dans: Computación y Sistemas, Issue Vol 21, No 1 2017, 2017, Page(s) 23-33, ISSN 2007-9737 Éditeur: Computación y Sistemas DOI: 10.13053/CyS-21-1-2580 Monographic books (1) "Technology for Dementia: A Guide for Everyday Living Edited by Arlene Astell, Sarah Smith and Philip Joddrell "" " Auteurs: Emma Wolverson, Caroline White and Rosie Dunn Publié dans: 2019, ISBN 1785-924176 Éditeur: Jessica Kingsley Publishers Recherche de données OpenAIRE... Une erreur s’est produite lors de la recherche de données OpenAIRE Aucun résultat disponible
