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Information, health & social needs of older, disabled people (parkinson's disease) and their carers.

Objective

The information, health & social care needs of older people with disabling conditions often differ from those perceived by professionals. Consequently they go unmet. A full understanding of the nature & personal implications of disabling illness empowers individual sufferers to optimise management & maximise independence & quality of life. This project will conduct empirical research to ascertain the personal views & experiences of 500 older people & their lay carers, all with differing physical, mental & social disabilities, cultural, social & economic backgrounds & compare them with the perceptions of 700 professionals in 7 European countries. In addition the views & experiences of an 'expert round table' of users, professionals & voluntary bodies from across Europe, together with an extensive literature review, will all be used to create a critical mass of knowledge to enable recommendations for policy & service provision & the development of comprehensive educational materials for sufferers, carers & interprofessional education. To ensure that more appropriate standards of support. Services & care are available for older disabled people.

Coordinator

UNIVERSITY OF WALES COLLEGE OF MEDICINE
Address
Academic Centre, Llandough Hospital, Penlan Road
CF64 2XX Penarth (S.glamorgan)
United Kingdom

Participants (7)

ASOCIACION PARKINSON MADRID
Spain
Address
Andres Torrejon 18, Bajo
28014 Madrid
ASSOCIACIAO PORTUGUESA DE DOENTES DE PARKINSON
Portugal
Address
R Duarte Galvao No 34-7O Dto
1500 Lisboa
EUROPEAN PARKINSON'S DISEASE ASSOCIATION
Finland
Address
Suvilinnantie 2
20101 Turku / Abo
HEALTH CENTRE OF CHALANDRISTSA, ACHAIA, GREECE
Greece
Address

25008 Chalandritsa
TARTU PARKINSON'S DISEASE SOCIETY
Estonia
Address
Puusepa 2
51014 Tartu
UNIVERSITY OF TURKU
Finland
Address
Kiinamyllynkatu 13
20014 Turku / Abo
UNIVERSITY OF WUERZBURG
Germany
Address
Marcusstrasse, 9-11
97070 Wuerzburg