Patients Active in Research and Dialogues for an Improved Generation of Medicines: Advancing meaningful patient engagement in the life cycle of medicines for better health outcomes.

Deliverables

Websites, patent fillings, videos etc. (1)

Digital assets including website

Delivery of the digital assets that are key to efficiently communicate about the Project.

Documents, reports (6)

Review existing methods for monitoring and evaluation patient engagement

This report will describe the outcomes and impacts of patient engagement at different points in the medicine development lifecycle.

Report on the first open Patient Engagement Forum

This report will gather the proceedings of the 1st Open Patient Engagement Forum.

Communication and external engagement plan

The plan is instrumental to operationalize an efficient communication and engagement beyond the consortium partners to trigger engagement will all relevant stakeholders

Ethical Framework

Reference document aimed at establishing the guiding ethical principles of the working practice within the consortium.

Data Management Plan

Reference document aimed at supporting the management and monitoring of the data collected throughout the project. This deliverable will specifically address the identification and monitoring of any personal data protection issues that may arise during the project. This plan -including the monitoring of personal data protection matters- will be updated at M12 (D7.5) for the interim review and at M30 (D7.7) at the end of the project.

Survey analysis report on stakeholder-specific preferences, needs and expectations

Description on highlight priorities for key stakeholders to inform other WPs. This is an internal output, but an interim report will be communicated via the project’s own website at this point.