Policy, practice and patient experience in the age of intensified data sourcing

Weak Data: The Social Biography of a Measurement Instrument and How It Failed to Ensure Accountability in Home Care

Autorzy: Klaus Hoeyer, Malene Bødker
Opublikowane w: Medical Anthropology Quarterly, 2020, ISSN 0745-5194
Wydawca: Wiley-Blackwell
DOI: 10.1111/maq.12602

‘You should see a doctor’, said the robot: Reflections on a digital diagnostic device in a pandemic age

Autorzy: Haase, C. B., Bearman, M., Brodersen, J., Hoeyer, K. & Risor, T
Opublikowane w: Scandinavian Journal of Public Health, Numer Volume 49 Numer 1, 2020, Strona(/y) 33-36, ISSN 1403-4948
Wydawca: SAGE Publications
DOI: 10.1177/1403494820980268

Channeling hope: An ethnographic study of how research encounters become meaningful for families suffering from genetic disease in Pakistan

Autorzy: Zainab Afshan Sheikh, Anja M.B. Jensen
Opublikowane w: Social Science & Medicine, Numer 228, 2019, Strona(/y) 103-110, ISSN 0277-9536
Wydawca: Pergamon Press Ltd.
DOI: 10.1016/j.socscimed.2019.03.024

Data promiscuity: how the public–private distinction shaped digital data infrastructures and notions of privacy

Autorzy: Klaus Hoeyer
Opublikowane w: Humanities and Social Sciences Communications, Numer 7/1, 2020, Strona(/y) 1-8, ISSN 2662-9992
Wydawca: Palgrave Communications
DOI: 10.1057/s41599-020-00535-6

Datafication and accountability in public health: Introduction to a special issue

Autorzy: Klaus Hoeyer, Susanne Bauer, Martyn Pickersgill
Opublikowane w: Social Studies of Science, Numer 49/4, 2019, Strona(/y) 459-475, ISSN 0306-3127
Wydawca: SAGE Publications
DOI: 10.1177/0306312719860202

Challenges for the Sustainability of University-Run Biobanks

Autorzy: Kongsholm NCH, Christensen ST, Hermann JR, Larsen LA, Minssen T, Pedersen LB, Rajam N, Tommerup N, Tupasela A, Schovsbo J
Opublikowane w: Biopreservation and Biobanking., Numer Volume: 16 Numer 4, 2018, ISSN 1947-5535
Wydawca: Mary Ann Liebert Inc.
DOI: 10.1089/bio.2018.0054

Reply to DM Hougaard et al.

Autorzy: Francisca Nordfalk, Claus Thorn Ekstrøm
Opublikowane w: European Journal of Human Genetics, Numer 27/11, 2019, Strona(/y) 1628-1629, ISSN 1018-4813
Wydawca: Natue Publishing Group
DOI: 10.1038/s41431-019-0436-z

Data as promise: Reconfiguring Danish public health through personalized medicine

Autorzy: Klaus Hoeyer
Opublikowane w: Social Studies of Science, Numer 49/4, 2019, Strona(/y) 531-555, ISSN 0306-3127
Wydawca: SAGE Publications
DOI: 10.1177/0306312719858697

Making it Happen. Data Practices and the Power of Diplomacy among Danish Organ Transplant Coordinators

Autorzy: Anja Marie Bornø Jensen
Opublikowane w: Biocities, 2022, ISSN 1745-8552
Wydawca: Palgrave Macmillan Ltd.
DOI: 10.1057/s41292-021-00267-z

Plastic diagnostics: The remaking of disease and evidence in personalized medicine

Autorzy: Sara Green, Annamaria Carusi, Klaus Hoeyer
Opublikowane w: Social Science & Medicine, 2019, Strona(/y) 112318, ISSN 0277-9536
Wydawca: Pergamon Press Ltd.
DOI: 10.1016/j.socscimed.2019.05.023

Traveling questions: uncertainty and nonknowledge as vehicles of translation in genetic research participation

Autorzy: Klaus Hoeyer
Opublikowane w: New Genetics and Society, Numer 35/4, 2016, Strona(/y) 351-371, ISSN 1463-6778
Wydawca: Carfax Publishing Ltd.
DOI: 10.1080/14636778.2016.1245134

Ethical sharing of health data in online platforms – which values should be considered?

Autorzy: Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo, Vojin Rakic
Opublikowane w: Life Sciences, Society and Policy, Numer 13/1, 2017, ISSN 2195-7819
Wydawca: Springer Open
DOI: 10.1186/s40504-017-0060-z

“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark

Autorzy: Zainab Sheikh, Klaus Hoeyer
Opublikowane w: Medicine, Health Care and Philosophy, 2017, ISSN 1386-7423
Wydawca: Kluwer Academic Publishers
DOI: 10.1007/s11019-017-9795-9

Dangers of the digital fit: Rethinking seamlessness and social sustainability in data-intensive healthcare

Autorzy: Sarah Wadmann, Klaus Hoeyer
Opublikowane w: Big Data & Society, Numer 5/1, 2018, Strona(/y) 205395171775296, ISSN 2053-9517
Wydawca: SAGE
DOI: 10.1177/2053951717752964

“Stop Talking to People; Talk with Them”: A Qualitative Study of Information Needs and Experiences Among Genetic Research Participants in Pakistan and Denmark

Autorzy: Zainab Afshan Sheikh, Klaus Hoeyer
Opublikowane w: Journal of Empirical Research on Human Research Ethics, Numer 14/1, 2018, Strona(/y) 3-14, ISSN 1556-2646
Wydawca: University of California Press
DOI: 10.1177/1556264618780810

‘We don’t like the rules and still we keep seeking new ones’: The vicious circle of quality control in professional organizations

Autorzy: Sarah Wadmann, Christina Holm-Petersen, Charlotta Levay
Opublikowane w: Journal of Professions and Organization, 2018, ISSN 2051-8803
Wydawca: Oxford University Press
DOI: 10.1093/jpo/joy017

Newborn dried blood spot samples in Denmark: the hidden figures of secondary use and research participation

Autorzy: Francisca Nordfalk, Claus Thorn Ekstrøm
Opublikowane w: European Journal of Human Genetics, Numer 27/2, 2019, Strona(/y) 203-210, ISSN 1018-4813
Wydawca: Natue Publishing Group
DOI: 10.1038/s41431-018-0276-2

The rise and fall of an opt-out system

Autorzy: Francisca Nordfalk, Klaus Hoeyer
Opublikowane w: Scandinavian Journal of Public Health, Numer 1-5, 2017, Strona(/y) 140349481774518, ISSN 1403-4948
Wydawca: SAGE Publications
DOI: 10.1177/1403494817745189

Sundhedsdata og kvalitetsudvikling – et retligt kludetæppe

Autorzy: Mette Hartlev & Sarah Wadmann
Opublikowane w: Juristen, Numer 4, 2018, Strona(/y) 116-128, ISSN 0107-699X
Wydawca: Djoef Forlag

More than sample providers: how genetic researchers in Pakistan mobilized a prenatal diagnostic service for thalassemia

Autorzy: Sheikh, Z.A., Wahlberg, A
Opublikowane w: BioSocieties, 2021, ISSN 1745-8552
Wydawca: Palgrave Macmillan Ltd.
DOI: 10.1057/s41292-021-00264-2

The Nordic data imaginary

Autorzy: Aaro Tupasela, Karoliina Snell, Heta Tarkkala
Opublikowane w: Big Data & Society, Numer 7/1, 2020, Strona(/y) 205395172090710, ISSN 2053-9517
Wydawca: Big Data & Society
DOI: 10.1177/2053951720907107

‘Meaningless work’: How the datafication of health reconfigures knowledge about work and erodes professional judgement

Autorzy: Klaus Hoeyer, Sarah Wadmann
Opublikowane w: Economy and Society, Numer 49/3, 2020, Strona(/y) 433-454, ISSN 0308-5147
Wydawca: Routledge
DOI: 10.1080/03085147.2020.1733842

Desire, duty and medical gifting: how it became possible to long for a useful death

Autorzy: Klaus Hoeyer, Maria Olejaz
Opublikowane w: Mortality, Numer 25/4, 2020, Strona(/y) 418-432, ISSN 1357-6275
Wydawca: Brunner - Routledge (US)
DOI: 10.1080/13576275.2019.1684252

The Mutual Enablement of Research Data and Care: How Newborn Babies Become a National Research Population

Autorzy: Franciska Nordfalk
Opublikowane w: Science & Technology Studies, 2022, ISSN 2243-4690
Wydawca: The Finnish Society for Science and Technology Studies
DOI: 10.23987/sts.98655

A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good

Autorzy: Lea L. Skovgaard, Sarah Wadmann, Klaus Hoeyer
Opublikowane w: Health Policy, Numer 123/6, 2019, Strona(/y) 564-571, ISSN 0168-8510
Wydawca: Elsevier BV
DOI: 10.1016/j.healthpol.2019.03.012

Sundhedsdata sætter patienters privatliv under pres

Autorzy: Mette Hartlev
Opublikowane w: Eksponeret: Grænser for privatliv i en digital tid, 2018, Strona(/y) 13-28, ISBN 9788712056737
Wydawca: Gad

Denmark at a Crossroad? Intensified Data Sourcing in a Research Radical Country

Autorzy: Hoeyer, K L Floridi & B Mittelstadt (eds.)
Opublikowane w: The Ethics of Biomedical Big Data, 2016, Strona(/y) Pp. 73-94, ISBN 9783-319335254
Wydawca: Springer

Data-Sharing Politics and the Logics of Competition in Biobanking

Autorzy: Aaro Tupasela
Opublikowane w: Bioeconomies, 2017, Strona(/y) 187-206, ISBN 978-3-319-55650-5
Wydawca: Springer International Publishing
DOI: 10.1007/978-3-319-55651-2_8

Lost and Found: Relocating the Individual in the Age of Intensified Data Sourcing in European Healthcare in Personalized medicine, individual choice and the common good

Autorzy: Hoeyer, K Editors: B Beers, S Sterckx and D Dickenson
Opublikowane w: Personalized medicine, individual choice and the common good, 2018, Strona(/y) 144-166, ISBN 9781-108590600
Wydawca: Cambridge University Press

Datafying the patient voice: the making of pervasive infrastructures as processes of promise, ruination and repair

Autorzy: Hoeyer K & H Langstrup
Opublikowane w: Healthcare activism. Markets, morals and the collective good, 2021, Strona(/y) 116-139, ISBN 978019886522
Wydawca: Oxford University Press
DOI: 10.1093/oso/9780198865223.003.0005

Ethics as a form of regulation in relation to data and bodily materials

Autorzy: Author Klaus Hoeyer Editors Marie-Andrée Jacob and Anna Kirkland
Opublikowane w: Research Handbook on Socio-Legal Studies of Medicine and Health, 2020, Strona(/y) 333-347
Wydawca: Edward Elgar Publishing

Liability (and) Rules for Health Information in Health Matrix: The Journal of Law-medicine

Autorzy: Jorge L. Contreras & Francisca Nordfalk
Opublikowane w: Health Matrix: The Journal of Law-medicine, Numer Volume 29/issue 1, 2019
Wydawca: Studnt Journals at Case Western Reserve University School of Law Scholarly Commons

Hvem skal bruge sundhedsdata – og til hvad?

Autorzy: Klaus Hoeyer
Opublikowane w: 2019
Wydawca: Informations Forlag

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