Policy, practice and patient experience in the age of intensified data sourcing

Weak Data: The Social Biography of a Measurement Instrument and How It Failed to Ensure Accountability in Home Care

Auteurs: Klaus Hoeyer, Malene Bødker
Publié dans: Medical Anthropology Quarterly, 2020, ISSN 0745-5194
Éditeur: Wiley-Blackwell
DOI: 10.1111/maq.12602

‘You should see a doctor’, said the robot: Reflections on a digital diagnostic device in a pandemic age

Auteurs: Haase, C. B., Bearman, M., Brodersen, J., Hoeyer, K. & Risor, T
Publié dans: Scandinavian Journal of Public Health, Numéro Volume 49 Numéro 1, 2020, Page(s) 33-36, ISSN 1403-4948
Éditeur: SAGE Publications
DOI: 10.1177/1403494820980268

Channeling hope: An ethnographic study of how research encounters become meaningful for families suffering from genetic disease in Pakistan

Auteurs: Zainab Afshan Sheikh, Anja M.B. Jensen
Publié dans: Social Science & Medicine, Numéro 228, 2019, Page(s) 103-110, ISSN 0277-9536
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.socscimed.2019.03.024

Data promiscuity: how the public–private distinction shaped digital data infrastructures and notions of privacy

Auteurs: Klaus Hoeyer
Publié dans: Humanities and Social Sciences Communications, Numéro 7/1, 2020, Page(s) 1-8, ISSN 2662-9992
Éditeur: Palgrave Communications
DOI: 10.1057/s41599-020-00535-6

Datafication and accountability in public health: Introduction to a special issue

Auteurs: Klaus Hoeyer, Susanne Bauer, Martyn Pickersgill
Publié dans: Social Studies of Science, Numéro 49/4, 2019, Page(s) 459-475, ISSN 0306-3127
Éditeur: SAGE Publications
DOI: 10.1177/0306312719860202

Challenges for the Sustainability of University-Run Biobanks

Auteurs: Kongsholm NCH, Christensen ST, Hermann JR, Larsen LA, Minssen T, Pedersen LB, Rajam N, Tommerup N, Tupasela A, Schovsbo J
Publié dans: Biopreservation and Biobanking., Numéro Volume: 16 Numéro 4, 2018, ISSN 1947-5535
Éditeur: Mary Ann Liebert Inc.
DOI: 10.1089/bio.2018.0054

Reply to DM Hougaard et al.

Auteurs: Francisca Nordfalk, Claus Thorn Ekstrøm
Publié dans: European Journal of Human Genetics, Numéro 27/11, 2019, Page(s) 1628-1629, ISSN 1018-4813
Éditeur: Natue Publishing Group
DOI: 10.1038/s41431-019-0436-z

Data as promise: Reconfiguring Danish public health through personalized medicine

Auteurs: Klaus Hoeyer
Publié dans: Social Studies of Science, Numéro 49/4, 2019, Page(s) 531-555, ISSN 0306-3127
Éditeur: SAGE Publications
DOI: 10.1177/0306312719858697

Making it Happen. Data Practices and the Power of Diplomacy among Danish Organ Transplant Coordinators

Auteurs: Anja Marie Bornø Jensen
Publié dans: Biocities, 2022, ISSN 1745-8552
Éditeur: Palgrave Macmillan Ltd.
DOI: 10.1057/s41292-021-00267-z

Plastic diagnostics: The remaking of disease and evidence in personalized medicine

Auteurs: Sara Green, Annamaria Carusi, Klaus Hoeyer
Publié dans: Social Science & Medicine, 2019, Page(s) 112318, ISSN 0277-9536
Éditeur: Pergamon Press Ltd.
DOI: 10.1016/j.socscimed.2019.05.023

Traveling questions: uncertainty and nonknowledge as vehicles of translation in genetic research participation

Auteurs: Klaus Hoeyer
Publié dans: New Genetics and Society, Numéro 35/4, 2016, Page(s) 351-371, ISSN 1463-6778
Éditeur: Carfax Publishing Ltd.
DOI: 10.1080/14636778.2016.1245134

Ethical sharing of health data in online platforms – which values should be considered?

Auteurs: Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo, Vojin Rakic
Publié dans: Life Sciences, Society and Policy, Numéro 13/1, 2017, ISSN 2195-7819
Éditeur: Springer Open
DOI: 10.1186/s40504-017-0060-z

“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark

Auteurs: Zainab Sheikh, Klaus Hoeyer
Publié dans: Medicine, Health Care and Philosophy, 2017, ISSN 1386-7423
Éditeur: Kluwer Academic Publishers
DOI: 10.1007/s11019-017-9795-9

Dangers of the digital fit: Rethinking seamlessness and social sustainability in data-intensive healthcare

Auteurs: Sarah Wadmann, Klaus Hoeyer
Publié dans: Big Data & Society, Numéro 5/1, 2018, Page(s) 205395171775296, ISSN 2053-9517
Éditeur: SAGE
DOI: 10.1177/2053951717752964

“Stop Talking to People; Talk with Them”: A Qualitative Study of Information Needs and Experiences Among Genetic Research Participants in Pakistan and Denmark

Auteurs: Zainab Afshan Sheikh, Klaus Hoeyer
Publié dans: Journal of Empirical Research on Human Research Ethics, Numéro 14/1, 2018, Page(s) 3-14, ISSN 1556-2646
Éditeur: University of California Press
DOI: 10.1177/1556264618780810

‘We don’t like the rules and still we keep seeking new ones’: The vicious circle of quality control in professional organizations

Auteurs: Sarah Wadmann, Christina Holm-Petersen, Charlotta Levay
Publié dans: Journal of Professions and Organization, 2018, ISSN 2051-8803
Éditeur: Oxford University Press
DOI: 10.1093/jpo/joy017

Newborn dried blood spot samples in Denmark: the hidden figures of secondary use and research participation

Auteurs: Francisca Nordfalk, Claus Thorn Ekstrøm
Publié dans: European Journal of Human Genetics, Numéro 27/2, 2019, Page(s) 203-210, ISSN 1018-4813
Éditeur: Natue Publishing Group
DOI: 10.1038/s41431-018-0276-2

The rise and fall of an opt-out system

Auteurs: Francisca Nordfalk, Klaus Hoeyer
Publié dans: Scandinavian Journal of Public Health, Numéro 1-5, 2017, Page(s) 140349481774518, ISSN 1403-4948
Éditeur: SAGE Publications
DOI: 10.1177/1403494817745189

Sundhedsdata og kvalitetsudvikling – et retligt kludetæppe

Auteurs: Mette Hartlev & Sarah Wadmann
Publié dans: Juristen, Numéro 4, 2018, Page(s) 116-128, ISSN 0107-699X
Éditeur: Djoef Forlag

More than sample providers: how genetic researchers in Pakistan mobilized a prenatal diagnostic service for thalassemia

Auteurs: Sheikh, Z.A., Wahlberg, A
Publié dans: BioSocieties, 2021, ISSN 1745-8552
Éditeur: Palgrave Macmillan Ltd.
DOI: 10.1057/s41292-021-00264-2

The Nordic data imaginary

Auteurs: Aaro Tupasela, Karoliina Snell, Heta Tarkkala
Publié dans: Big Data & Society, Numéro 7/1, 2020, Page(s) 205395172090710, ISSN 2053-9517
Éditeur: Big Data & Society
DOI: 10.1177/2053951720907107

‘Meaningless work’: How the datafication of health reconfigures knowledge about work and erodes professional judgement

Auteurs: Klaus Hoeyer, Sarah Wadmann
Publié dans: Economy and Society, Numéro 49/3, 2020, Page(s) 433-454, ISSN 0308-5147
Éditeur: Routledge
DOI: 10.1080/03085147.2020.1733842

Desire, duty and medical gifting: how it became possible to long for a useful death

Auteurs: Klaus Hoeyer, Maria Olejaz
Publié dans: Mortality, Numéro 25/4, 2020, Page(s) 418-432, ISSN 1357-6275
Éditeur: Brunner - Routledge (US)
DOI: 10.1080/13576275.2019.1684252

The Mutual Enablement of Research Data and Care: How Newborn Babies Become a National Research Population

Auteurs: Franciska Nordfalk
Publié dans: Science & Technology Studies, 2022, ISSN 2243-4690
Éditeur: The Finnish Society for Science and Technology Studies
DOI: 10.23987/sts.98655

A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good

Auteurs: Lea L. Skovgaard, Sarah Wadmann, Klaus Hoeyer
Publié dans: Health Policy, Numéro 123/6, 2019, Page(s) 564-571, ISSN 0168-8510
Éditeur: Elsevier BV
DOI: 10.1016/j.healthpol.2019.03.012

Sundhedsdata sætter patienters privatliv under pres

Auteurs: Mette Hartlev
Publié dans: Eksponeret: Grænser for privatliv i en digital tid, 2018, Page(s) 13-28, ISBN 9788712056737
Éditeur: Gad

Denmark at a Crossroad? Intensified Data Sourcing in a Research Radical Country

Auteurs: Hoeyer, K L Floridi & B Mittelstadt (eds.)
Publié dans: The Ethics of Biomedical Big Data, 2016, Page(s) Pp. 73-94, ISBN 9783-319335254
Éditeur: Springer

Data-Sharing Politics and the Logics of Competition in Biobanking

Auteurs: Aaro Tupasela
Publié dans: Bioeconomies, 2017, Page(s) 187-206, ISBN 978-3-319-55650-5
Éditeur: Springer International Publishing
DOI: 10.1007/978-3-319-55651-2_8

Lost and Found: Relocating the Individual in the Age of Intensified Data Sourcing in European Healthcare in Personalized medicine, individual choice and the common good

Auteurs: Hoeyer, K Editors: B Beers, S Sterckx and D Dickenson
Publié dans: Personalized medicine, individual choice and the common good, 2018, Page(s) 144-166, ISBN 9781-108590600
Éditeur: Cambridge University Press

Datafying the patient voice: the making of pervasive infrastructures as processes of promise, ruination and repair

Auteurs: Hoeyer K & H Langstrup
Publié dans: Healthcare activism. Markets, morals and the collective good, 2021, Page(s) 116-139, ISBN 978019886522
Éditeur: Oxford University Press
DOI: 10.1093/oso/9780198865223.003.0005

Ethics as a form of regulation in relation to data and bodily materials

Auteurs: Author Klaus Hoeyer Editors Marie-Andrée Jacob and Anna Kirkland
Publié dans: Research Handbook on Socio-Legal Studies of Medicine and Health, 2020, Page(s) 333-347
Éditeur: Edward Elgar Publishing

Liability (and) Rules for Health Information in Health Matrix: The Journal of Law-medicine

Auteurs: Jorge L. Contreras & Francisca Nordfalk
Publié dans: Health Matrix: The Journal of Law-medicine, Numéro Volume 29/issue 1, 2019
Éditeur: Studnt Journals at Case Western Reserve University School of Law Scholarly Commons

Hvem skal bruge sundhedsdata – og til hvad?

Auteurs: Klaus Hoeyer
Publié dans: 2019
Éditeur: Informations Forlag

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