Dementia: Intersectorial Strategy for Training and Innovation Network for Current Technology (DISTINCT)

Informazioni relative al progetto

DISTINCT

ID dell’accordo di sovvenzione: 813196

DOI 10.3030/813196

Progetto chiuso

Data della firma CE 18 Giugno 2019

Data di avvio 1 Maggio 2019

Data di completamento 31 Luglio 2023

Finanziato da

• EXCELLENT SCIENCE - Marie Skłodowska-Curie Actions

Costo totale € 3 998 048,04

Contributo UE € 3 998 048,04

Coordinato da

THE UNIVERSITY OF NOTTINGHAM
United Kingdom

Risultati finali

Documents, reports (16)

Report on cost and effectiveness of FindMyApps tool to find usable apps for self-management and social participation
Reports on public engagement work

Initial + final reports on public engagement work

Report on design, development and testing of a low cost pet-like care-bot to support daily tasks with reminders
Report of effectiveness and implementation of Acceptance and Commitment Therapy and usability of momentary assessment technology
Report on ethical issues and implementation strategies around social robotics in dementia care to promote social health
Report on use of mini-robot for enhancing mood and social participation
Report on evaluation of the use of home-based technology using tablets as a learning system for communication, participation and enhancing the relationship of community-dwelling caregiving dyads

Report on evaluation of the use of home-based technology using tablets as a learning system for communication, participation and enhancing the relationship of community-dwelling caregiving dyads

Report on acceptance and adoption of social robots into everyday life for people with dementia
Report on the adaptation of recovery-oriented approaches and technology in dementia
3 scientific papers per ESR
Report on health and wellness coaching technology for older adults with dementia and their carers in rural areas
Report on using Geographic Information System-based intervention to assist social participation
Final report on DISTINCT Training Programme
Report on technology to assist disclosure of dementia by the diagnosed individual to their social networks
Report on the best practice implementation of Ambient Assisted Living (AAL) technology for communication across Europe
Report on impact of person-centred touch-screen based photo-activity for social participation in people with advanced dementia

Open Research Data Pilot (1)

Data Management Plan

Websites, patent fillings, videos etc. (3)

Report on improving peer support for people with young onset dementia (YOD)
Interactive peer support website for ACP for people with dementia

Interactive peer support website for ACP for people with dementia evaluated using a feasibility trial looking at benefits to mental wellbeing

Website

DISTINCT website up and running

Other (3)

1st DISTINCT School in year 1

1st DISTINCT School in year 1 (M9, MU-NL + VUMC-NL + VUB-BE)

3rd DISTINCT School in year 2
2nd DISTINCT School in year 2

Pubblicazioni

Peer reviewed articles (41)

Can Use of Digital Technologies by People with Dementia Improve Self-Management and Social Participation? A Systematic Review of Effect Studies

Autori: David Neal, Floor van den Berg, Caroline Planting, Teake Ettema, Karin Dijkstra, Evelyn Finnema, Rose-Marie Dröes
Pubblicato in: Journal of Clinical Medicine, Numero 10/4, 2021, Pagina/e 604, ISSN 2077-0383
Editore: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/jcm10040604

Exploring Barriers and Facilitators to the Implementation of Pet robots for People with Dementia in Nursing Homes: A Qualitative Research Protocol

Autori: Wei Qi Koh, Elaine Toomey, Dympna Casey
Pubblicato in: BMC Geriatrics, 2021, ISSN 1471-2318
Editore: BioMed Central
DOI: 10.1177/16094069211047059

Online peer support: views and experiences of people with young onset dementia (YOD)

Autori: Gerritzen, E.V., McDermott, O., & Orrell, M
Pubblicato in: Aging and Mental Health., 2023, ISSN 1360-7863
Editore: Carfax Publishers
DOI: 10.1080/13607863.2023.2205833

Randomized controlled feasibility study of FindMyApps: first evaluation of a tablet-based intervention to promote self-management and meaningful activities in people with mild dementia

Autori: Yvonne Kerkhof, Gianna Kohl, Melanie Veijer, Floriana Mangiaracina, Ad Bergsma, Maud Graff & Rose-Marie Dröes
Pubblicato in: Disability and Rehabilitation: Assistive Technology, 2022, ISSN 1748-3115
Editore: Taylor & Francis
DOI: 10.1080/17483107.2020.1765420

The impact of Covid-19 for occupational therapy: Findings and recommendations of a global survey

Autori: Viktoria Hoel, Claudia von Zweck, Ritchard Ledgerd
Pubblicato in: World Federation of Occupational Therapists Bulletin, 2021, Pagina/e 1-8, ISSN 1447-3828
Editore: WFOT Bulletin, Taylor and Francis Groups
DOI: 10.1080/14473828.2020.1855044

Bridging gaps in the design and implementation of socially assistive technologies for dementia care: the role of occupational therapy

Autori: Wei Qi Koh, Pascale Heins, Aisling Flynn, Aysan Mahmoudi Asl, Lesley Garcia ,Camilla Malinowsky & Anna Brorsson
Pubblicato in: Disability and Rehabilitation: Assistive Technology, 2022, ISSN 1748-3115
Editore: Taylor & Francis
DOI: 10.1080/17483107.2022.2111610

Online peer support for people with Multiple Sclerosis: a narrative synthesis systematic review

Autori: Gerritzen, E.V., Lee, A.R., McDermott, O., Coulson, N., & Orrell, M.
Pubblicato in: International Journal of MS Care, 2022, ISSN 1537-2073
Editore: Consortium of Multiple Sclerosis Centers (CMSC)
DOI: 10.7224/1537-2073.2022-040

Psychometric characteristics of comprehensive geriatric assessments (CGAs) for long-term care facilities and community care: A systematic review

Autori: Molinari Ulate, M., Mahmoudi Asl, A., Franco Martin, M., & van der Roest, H.
Pubblicato in: Ageing Research Reviews, 2022, ISSN 1568-1637
Editore: Elsevier BV
DOI: 10.1016/j.arr.2022.101742

Factors associated with disclosing a diagnosis of dementia to one’s social network: A systematic review

Autori: Kohl, G., Ulate, M.M., Bhatt, J., Scior, K. and Charlesworth, G.
Pubblicato in: Alzheimer's Dementtia, 2021, ISSN 1552-5279
Editore: Wiley
DOI: 10.1002/alz.056146

Insights on conducting digital patient and public involvement in dementia research during the COVID-19 pandemic: supporting the development of an “E-nabling digital co-production” framework

Autori: Mauricio Molinari-Ulate, Rebecca Woodcock, Isabelle Smith, Henriëtte G. van der Roest, Manuel A. Franco-Martín & Michael P. Craven
Pubblicato in: Research Involvement and Engagement, 2022, ISSN 2056-7529
Editore: BMC
DOI: 10.1186/s40900-022-00371-9

Technology-driven solutions to prompt conversation, aid communication and support interaction for people with dementia and their caregivers: a systematic literature review

Autori: Viktoria Hoel, Carine Mendom Feunou, Karin Wolf-Ostermann
Pubblicato in: BMC Geriatrics, Numero 21/1, 2021, ISSN 1471-2318
Editore: BioMed Central
DOI: 10.1186/s12877-021-02105-0

Barriers and facilitators to the implementation of social robots for older adults and people with dementia: a scoping review protocol

Autori: Wei Qi Koh, Simone Anna Felding, Elaine Toomey, Dympna Casey
Pubblicato in: Systematic Reviews, Numero 10/1, 2021, ISSN 2046-4053
Editore: BioMed Central
DOI: 10.1186/s13643-021-01598-5

Social Health among German Nursing Home Residents with Dementia during the COVID-19 Pandemic, and the Role of Technology to Promote Social Participation

Autori: Hoel V, Seibert K, Domhoff D, Preuß B, Heinze F, Rothgang H, Wolf-Ostermann K
Pubblicato in: International Journal of Environmental Research and Public Health, 2022, ISSN 1661-7827
Editore: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/ijerph19041956

Social Isolation and the Use of Technology in Caregiving Dyads Living With Dementia During COVID-19 Restrictions

Autori: Hoel,V., Wolf-Ostermann, K. & Atieno Ambugo, E
Pubblicato in: Frontiers in Public Health, 2022, ISSN 2296-2565
Editore: Frontiers
DOI: 10.3389/fpubh.2022.697496

The ethics of pet robots in dementia care settings: Care professionals’ and organisational leaders' ethical intuitions

Autori: Wei Qi Koh, Tijs Vandemeulebroucke, Chris Gastmans, Rose Miranda, Lieve van den Block
Pubblicato in: Frontiers in Psychiatry, 2023, ISSN 1664-0640
Editore: Frontiers Research Foundation
DOI: 10.3389/fpsyt.2023.1052889

Was a global pandemic needed to adopt the use of telehealth in occupational therapy?

Autori: Viktoria Hoel, Claudia von Zweck, Ritchard Ledgerd
Pubblicato in: Work, Numero 68/1, 2021, Pagina/e 13-20, ISSN 1051-9815
Editore: IOS Press
DOI: 10.3233/wor-205268

Information on advance care planning on websites of dementia associations in Europe: A content analysis

Autori: Monnet, F., Pivodic, L., Dupont, C., Dröes, R. M., & Van den Block, L
Pubblicato in: Aging & Mental Health, 2023, ISSN 1360-7863
Editore: Carfax Publishers
DOI: 10.1080/13607863.2022.2146051

Design and implementation framework of social assistive robotics for people with dementia - a scoping review

Autori: Deniz Ozdemir, Jaroslav Cibulka, Olga Stepankova, Iva Holmerova
Pubblicato in: Health and Technology, Numero 11/2, 2021, Pagina/e 367-378, ISSN 2190-7188
Editore: Springer Verlag
DOI: 10.1007/s12553-021-00522-0

Usability and impact of a low-cost robotic pet for older adults and people with dementia: A qualitative content analysis of user experiences and perceptions on consumer websites

Autori: Wei Qi Koh, Sally Anne Whelan, Pascale Heins, Dympna Casey, Elaine Toomey, Rose-Marie Dröes
Pubblicato in: JMIR Aging, 2022, ISSN 2561-7605
Editore: JMIR Publications
DOI: 10.2196/29224

A scoping review using the Almere model to understand factors facilitating andhindering the acceptance of social robots in nursing homes

Autori: Felding, Simone Anna; Koh, Wei Qi; Teupen, Sonja; Budak, Kübra Beliz; Laporte Uribe, Franziska; Roes, Martina
Pubblicato in: International Journal of Social Robotics, 2023, ISSN 1875-4805
Editore: Springer Nature
DOI: 10.1007/s12369-023-01012-1

Cultural adaptation of the iSupport online training and support programme for caregivers of people with dementia in Castilla y León, Spain

Autori: Molinari-Ulate M, Guirado-Sánchez Y, Platón L, van der Roest HG, Bahillo A, Franco-Martín M
Pubblicato in: Dementia, 2023, ISSN 1471-3012
Editore: SAGE Publications
DOI: 10.1177/14713012231165578

Publicly Available, Interactive Web-Based Tools to Support Advance Care Planning: Systematic Review

Autori: Dupont, C., Smets, T., Monnet, F., Pivodic, L., de Vleminck, A., van Audenhove, C., & Van den Block, L.
Pubblicato in: Journal of Medical Internet Research, 2022, ISSN 1438-8871
Editore: Journal of medical Internet Research
DOI: 10.2196/33320

Read and accepted? Scoping the cognitive accessibility of privacy policies of health apps and websites in three European countries

Autori: Neal D, Gaber S, Joddrell P, Brorsson A, Dijkstra K, Dröes R-M
Pubblicato in: Digital Health, 2023, ISSN 2673-253X
Editore: SAGE
DOI: 10.1177/20552076231152162

The cultural adaptation of the go wish card game for use in Flanders, Belgium: a public health tool to identify and discuss end-of-life preferences.

Autori: Dupont, C., Smets, T., Monnet, F., Eneslätt, M., Tishelman, C., & Van den Block, L
Pubblicato in: BMC Public Health, 2022, ISSN 1471-2458
Editore: BioMed Central
DOI: 10.1186/s12889-022-14523-9

Impacts of Low-cost Robotic Pets for Older Adults and People With Dementia: Scoping Review

Autori: Wei Qi Koh, Faith Xin Hui Ang, Dympna Casey
Pubblicato in: JMIR Rehabilitation and Assistive Technologies, Numero 8/1, 2021, Pagina/e e25340, ISSN 2369-2529
Editore: JMIR
DOI: 10.2196/25340

The Effects of Technological Interventions on Social Participation of Community-Dwelling Older Adults with and Without Dementia: A Systematic Review

Autori: Pascale Heins, Lizzy M. M. Boots, Wei Qi Koh, An Neven, Frans R. J. Verhey, Marjolein E. de de Vugt
Pubblicato in: Journal of Clinical Medicine, Numero 10/11, 2021, Pagina/e 2308, ISSN 2077-0383
Editore: Multidisciplinary Digital Publishing Institute (MDPI)
DOI: 10.3390/jcm10112308

Implementing Active Assisted Living Technology in the Long-term Care of People Living With Dementia to Address Loneliness: European Survey

Autori: Budak KB, Laporte Uribe F, Meiland F, Felding SA, Teupen S, Bergmann JM, Mueller-Widmer R, Roes M
Pubblicato in: JMIR Aging, 2023, ISSN 2561-7605
Editore: JMIR
DOI: 10.2196/45231

Strategies for implementing pet robots in care homes and nursing homes for residents with dementia: Protocol for a modified Delphi study

Autori: Wei Qi Koh, Dympna Casey, Viktoria Hoel, Elaine Toomey
Pubblicato in: BMC Implementation Science Communications, 2022, ISSN 2662-2211
Editore: Springer Nature
DOI: 10.1186/s43058-022-00308-z

Limitations of the new ISO standard for health and wellness app

Autori: David Neal, Thomas Engelsma, Josephine Tan, Michael P Craven, Romaric Marcilly, Linda Peute, Tom Dening, Monique Jaspers, Rose-Marie Dröes
Pubblicato in: The Lancet Digital Health, 2022, ISSN 2589-7500
Editore: Elsevier
DOI: 10.1016/s2589-7500(21)00273-9

Methodologies Used to Study the Feasibility, Usability, Efficacy, and Effectiveness of Social Robots For Elderly Adults: Scoping Review

Autori: Mahmoudi, A., Molinari Ulate, M., Franco Martin, M., & van der Roest, H
Pubblicato in: Journal of Medical Internet Research, 2022, ISSN 1438-8871
Editore: Journal of medical Internet Research
DOI: 10.2196/37434

Online Peer Support for People With Parkinson Disease: Narrative Synthesis Systematic Review

Autori: Gerritzen EV, Lee AR, McDermott O, Coulson N, Orrell M
Pubblicato in: JMIR Aging, 2022, ISSN 2561-7605
Editore: JMIR
DOI: 10.2196/35425

Known in the nursing home: development and evaluation of a digital person-centered artistic photo-activity intervention to promote social interaction between residents with dementia, and their formal and informal carers

Autori: Josephine Rose Orejana Tan, Petra Boersma, Teake P. Ettema, Laurence Aëgerter, Robbert Gobbens, Max L. Stek & Rose-Marie Dröes
Pubblicato in: BMC Geriatrics, 2022, ISSN 1471-2318
Editore: BioMed Central
DOI: 10.1186/s12877-021-02632-w

The usability and feasibility validation of the social robot MINI in people with dementia and mild cognitive impairment; a study protocol

Autori: Mahmoudi, A., Toribio-Guzmán, J. M., van der Roest, H., Castro-González, Á., Malfaz, M., Salichs, M. A., & Martin, M. F.
Pubblicato in: BMC Psychiatry, 2022, ISSN 1471-244X
Editore: BioMed Central
DOI: 10.1186/s12888-022-04418-9

Enrichment of dementia caregiving relationships through psychosocial interventions: A scoping review

Autori: Viktoria Hoel; Wei Qi Koh; Duygu Sezgin
Pubblicato in: Frontiers in Medicin, Numero 18, 2022, ISSN 2296-858X
Editore: Frontiers
DOI: 10.3389/fmed.2022.1069846

Potential facilitators and barriers to implementing the MINI robot in community-based Meeting Centres for people with dementia and their carers in the Netherlands and Spain

Autori: Mahmoudi Asl A, Kouters S, Castro-González, Henriëtte van der Roest H, Franco Martin M, Dröes RM
Pubblicato in: Journal of Medical Internet Research, 2023, ISSN 1438-8871
Editore: Journal of medical Internet Research
DOI: 10.2196/44125

Can technology impact loneliness in dementia? A scoping review on the role of assistive technologies in delivering psychosocial interventions in long-term care

Autori: Kübra Beliz Budak, Golnaz Atefi, Viktoria Hoel, Franziska Laporte Uribe, Franka Meiland, Sonja Teupen, Simone Anna Felding & Martina Roes
Pubblicato in: Disability and Rehabilitation: Assistive Technology, 2021, ISSN 1748-3107
Editore: Taylor & Francis
DOI: 10.1080/17483107.2021.1984594

A Neuropsychological Rehabilitation Program for People with Mild Cognitive Impairment and Mild Dementia. Results of a Randomized Controlled Trial After 4 and 12 Months of Treatment

Autori: Angie A. Diaz Baquero; Manuel A. Franco-Martín; Esther Parra Vidales; José Miguel Toribio-Guzmán; Yolanda Bueno-Aguado; Fernando Martínez Abad; María V. Perea Bartolomé; Aysan Mahmoudi Asl; Henriëtte G. van der Roest
Pubblicato in: Journal of Alzheimer's Disease, 86(2), 711 - 727. IOS Press, Numero 36, 2022, ISSN 1387-2877
Editore: IOS Press
DOI: 10.3233/jad-215350

Evaluation of FindMyApps: protocol for a randomized controlled trial of the effectiveness and cost-effectiveness of a tablet-based intervention to improve self-management and social participation of community-dwelling people with mild dementia, compared to usual tablet use

Autori: David Peter Neal, Yvonne J. F. Kerkhof, Teake P. Ettema, Majon Muller, Judith Bosmans, Evelyn Finnema, Maud Graff, Karin Dijkstra, Max L. Stek, Rose-Marie Dröes
Pubblicato in: BMC Geriatrics, Numero 21/1, 2021, ISSN 1471-2318
Editore: BioMed Central
DOI: 10.1186/s12877-021-02038-8

Strategies to implement pet robots in long-term care facilities for dementia care: A modified Delphi study

Autori: Wei Qi Koh, Viktoria Hoel, Dympna Casey, Elaine Toomey
Pubblicato in: Journal of the American Medical Directors Association, 2022, ISSN 1525-8610
Editore: Lippincott Williams & Wilkins Ltd.
DOI: 10.1016/j.jamda.2022.09.010

Peer support through video meetings: Experiences of people with young onset dementia

Autori: Gerritzen, E.V., Kohl, G., Orrell, M., & McDermott, O.
Pubblicato in: Dementia, 2023, ISSN 1471-3012
Editore: SAGE Publications
DOI: 10.1177/14713012221140468

Development of Best Practice Guidance on Online Peer Support for People With Young Onset Dementia: Protocol for a Mixed Methods Study

Autori: Gerritzen, E.V., McDermott, O., & Orrell, M.
Pubblicato in: JMIR Research Protocols, 2022, ISSN 1929-0748
Editore: JMIR Publications
DOI: 10.2196/38379