During the first years of the project, the content, healthcare organisation, working behaviour, and structure of the digital MyPath solution have been developed iteratively by experts: clinicians, social and implementation scientists, ICT experts, patients, and families.
All aspects of using MyPath in clinical practice have been analysed to optimise development and implementation, including onboarding processes, patient use of ePROMs, and clinical consultations.
To validate the structural elements, we used pain, nutrition, and emotional/social distress as demonstration symptoms and functions. Expert groups were established and involved in the development process alongside other stakeholders. A demo version of the digital solution was developed, and feedback was gathered from all clinical sites and external stakeholders. The content of the ePROMs and digital support for clinical consultations underwent co-creation and testing sessions. Insights into patient flow and PCC practices were collected through interviews, observations, and workshops. These activities informed the digital architecture, clinical workflows, and scientific content of the first MyPath version, which will be implemented and refined through continuous feedback and iterations.
Key clinicians treating the selected patient cohorts at each site have been identified, and preparatory activities carried out to ensure necessary workflow adjustments and readiness for implementation. A mapping of ICT infrastructure at each centre has been completed to identify the best path for introducing the digital solution. This involved close collaboration between site management, clinicians, researchers, DNV Imatis, and local ICT departments.
The protocol for the implementation study has been finalised. An implementation tutorial is being developed, covering three dimensions (technological, clinical, and research-related) and will be shared with all nine centres. It will outline, step by step, the requirements each site must meet to implement MyPath and include training materials for healthcare providers and patients to support usability and understanding. A staggered roll-out is planned, with the first site going live in May 2025.
