Project description
Transforming lives after childhood cancer
In Europe, 35 000 children, adolescents, and young adults face the harsh reality of cancer each year, with survivors grappling with increased health risks and reduced quality of life. With this in mind, the EU-funded e-QuoL project will use e-health tools to ensure Equity in Quality of Life for survivors and their families. Spanning 15 countries, e-QuoL engages in participatory research to identify unmet needs and adapt accessible tools, promoting a person-centred approach. From medical follow-up to psychological support and preventive behaviours, e-QuoL empowers survivors to actively manage their health, fostering a brighter future for Cancer Survivors (CAYACS). This initiative aligns with the Cancer Mission cluster's focus on Quality of Life.
Objective
Cancer affects 35,000 children, adolescents and young adults (CAYAC) in Europe each year. Current 5-year survival rates are 80%, but the intensive oncological treatments leave CAYAC Survivors (CAYACS) at increased risk of cancer or treatment-induced late health effects, excess morbidity and mortality, and reduced quality of life (QoL). Follow-up care of survivors includes monitoring of cancers, managing all types of late effects, and maintaining overall health. It should also involve considering the needs of families whose functioning has been disrupted by cancer. There are several challenges providing follow-up care for CAYACS and their families: i) it is resource-demanding in an overburdened healthcare system, ii) psychosocial and supportive care needs are often unmet, and iii) access is inequal between European countries.
The overall goal of e-QuoL is to use e-health tools to promote Equity in Quality of Life for CAYACS and their families. It will adapt an existing interoperable personalised e-Health tool that can be used alone or as an add-on module to existing tools such as digital survivorship care plans already used in several European countries. Through participatory research, involving CAYACS, families, associations, networks, health institutes, social sciences and humanities researchers and industrial partners from 15 different countries and backgrounds, we will i) identify the unmet needs of CAYAC families and survivors’ (including vulnerable groups: young age and cognitive impairments) and ii) adapt accessible and affordable tools to address these needs. These tools will provide a person-centred approach from medical follow-up, preventive behaviours (e.g. physical activity, nutrition), psychological and social support (e.g. education, employment) to related health information (e.g. on reproductive issues). Ultimately, e-QuoL will improve CAYACS’ QoL by enabling them to actively engage in their care and better self-manage their health and well-being. This action is part of the Cancer Mission cluster of projects on “Quality of Life.
Fields of science
Not validated
Not validated
Programme(s)
- HORIZON.2.1 - Health Main Programme
Funding Scheme
HORIZON-IA - HORIZON Innovation ActionsCoordinator
49100 Angers
France
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Participants (25)
Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
49100 Angers
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
49100 Angers
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1094 Budapest
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0313 Oslo
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42055 Saint Etienne
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16147 Genova
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75017 Paris
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
0450 Oslo
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8200 Aarhus
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8000 Aarhus C
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20520 Turku
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00029 Helsinki
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08036 Barcelona
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51000 Rijeka
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69373 Lyon
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40033 Casalecchio Di Reno Bo
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45147 Essen
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78000 Banja Luka
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1000 Ljubljana
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75011 Paris
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
400372 CLUJ NAPOCA
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1200 Bruxelles / Brussel
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75012 Paris
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55131 Mainz
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1401 AZ Bussum
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Partners (6)
Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
6002 Luzern
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Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
94805 Villejuif
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Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
1021 Budapest
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Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
75014 Paris
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Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
400372 Cluj Napoca
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Partner organisations contribute to the implementation of the action, but do not sign the Grant Agreement.
SW3 6JJ London
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