Objective
Despite significant recent progress in the field of hematological malignancies (HMs), with increasing survival rates and improvement in quality of life, many children and adults with HMs still die from these disorders or experience disabling complications. Therefore, improvement of health care of HMs is an unmet medical need. Thus, it is important to define and align standard and efficient sets of HMs outcomes to measure and evaluate HM data for clinical decisions, long term risk/benefit profile, reimbursement, value analysis, and clinical trials design. Improving outcome measures and endpoint definitions by taking into account “real-life” data and differences in cross-national healthcare practice will undoubtedly result in an optimized, sustainable and effective treatment delivery, as well as in desirable and innovative accelerated pathways for novel drug availability. All these challenges will be addressed within a pan-EU perspective by HARMONY (Healthcare Alliance for Resourceful Medicines Offensive against Neoplasms in HematologY), a comprehensive public-private European consortium of excellence.
HARMONY consortium is made up of 51 partners: 44 participants from 10 European countries and 7 pharmaceutical companies from the EFPIA. HARMONY aims to assemble, assess, connect, and analyze heterogeneous HM patient derived Big Data sets to define sets of outcome indicators that can be used for decision-making by key healthcare stakeholders. The consortium will orchestrate leading experts and working cooperative groups in HMs, European study alliances, pharmaceutical market leaders, patient advocacy groups, HTA and regulatory agencies, to: (i) optimize Europe-wide data collection and create a high-quality HM data repository for further explorative studies; (ii) establish a clinical data-sharing platform that empowers clinicians, patients and policy stakeholders to improve decision-making procedures and identify appropriate treatments to patients with HMs
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RIA - Research and Innovation actionCoordinator
42002 Soria
Spain
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Participants (57)
46026 Valencia
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89081 Ulm
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40126 Bologna
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
00044 Frascati
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2514 AA Den Haag
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69469 Weinheim
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28760 Tres Cantos Madrid
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2000 Maribor
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1090 Wien
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3015 GD Rotterdam
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31080 Pamplona
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10124 Torino
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1081 HV Amsterdam
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CB2 1TN Cambridge
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00133 Roma
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60323 Frankfurt Am Main
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69495 PIERRE BENITE
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08916 Badalona
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50931 Koln
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601 77 Brno
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08035 Barcelona
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69310 Pierre Benite
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Legal entity other than a subcontractor which is affiliated or legally linked to a participant. The entity carries out work under the conditions laid down in the Grant Agreement, supplies goods or provides services for the action, but did not sign the Grant Agreement. A third party abides by the rules applicable to its related participant under the Grant Agreement with regard to eligibility of costs and control of expenditure.
69310 Pierre Benite
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80539 MUNCHEN
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E1 8PR London
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75010 Paris
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40225 Dusseldorf
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40122 Bologna
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NE1 7RU Newcastle Upon Tyne
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10115 Berlin
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00165 Roma
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YO10 5DD York North Yorkshire
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1200 Bruxelles / Brussel
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2333 AA Leiden
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9052 ZWIJNAARDE - GENT
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00014 Helsingin Yliopisto
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75012 Paris
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CB10 1SA SAFFRON WALDEN
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00100 Helsinki
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81377 Munchen
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The organization defined itself as SME (small and medium-sized enterprise) at the time the Grant Agreement was signed.
85521 Riemerling
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M1 4BT Manchester
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28022 Madrid
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53175 Bonn
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28006 Madrid
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4056 Basel
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2017 Boudry
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1831 Diegem
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2340 Beerse
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13353 Berlin
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00071 Pomezia
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WC2B 4AE London
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60064 North Chicago Il
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10117 Berlin
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CT13 9NJ Sandwich
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51373 Leverkusen
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8152 Glattpark
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