Objective
Rare diseases, defined as diseases affecting less than 5 out of 10 000 people each, affect 6 to 8% of the European population. For many of these there is presently no treatment. Recent European legislation (Regulation 141/2000 on Orphan Medicinal Products) has created incentives to researchers and companies to develop treatments for rare diseases, the so-called orphan drugs. The proposed international conference on Rare Diseases and Orphan Drugs will focus on the opportunities created by various orphan drug legislations. The conference will stimulate international cooperation and translation of scientific research in the rare diseases area, by promoting SME participation and networking activities between private and public partners. Research on rare diseases involves very small patient groups, thus international cooperation is of utmost importance. Mutual benefit would be derived from increased cooperation between academic scientists and the pharmaceutical industry. For SMEs in particular, the orphan drug route can be a way of bringing new products to the market. Furthermore, it is necessary to increase the awareness among policymakers in healthcare and politics, and among the general public, in order to increase political and economical support in this area. This conference will feature presentations by policymakers in the EU and the US, and describe the present situation regarding rare diseases and orphan drugs research. There will also be descriptions of some success stories from both academic investigators and pharmaceutical companies (both large pharma and SMEs). Finally, there will be discussions on funding and cooperation with patient organisations. In addition to an abstract book and a scientific report from this conference, journalists from scientific journals as well as from daily European papers will be invited to cover this conference. This will result in an increased official, professional and public awareness of this major health problem.
Fields of science (EuroSciVoc)
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
CORDIS classifies projects with EuroSciVoc, a multilingual taxonomy of fields of science, through a semi-automatic process based on NLP techniques. See: The European Science Vocabulary.
- social sciences media and communications journalism
- medical and health sciences basic medicine pharmacology and pharmacy pharmaceutical drugs
- engineering and technology mechanical engineering vehicle engineering aerospace engineering satellite technology
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
FP6-2003-LIFESCIHEALTH-II
See other projects for this call
Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Coordinator
STOCKHOLM
Sweden
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.