Objective
Achievements in genetic research produce ethical dilemmas which need to be subject of reflection and debate in modern societies. Ethical dilemmas are seen as situations in which a person has a strong moral obligation to choose each of two alternatives for action, but cannot fulfil both. Denial of ambivalences that ethical dilemmas arouse constitutes a threat to societies as well as to individual persons.
The study tries to investigate these dilemmas in detail in a field which seems particularly challenging: prenatal diagnostics (PND). PND confronts women and their partners with ethical dilemmas regarding: the right to know and not to know, the responsibility for their unborn child, about its life and death and, for its well- being even with abnormalities and sufferings. An important aspect is the conflict of individual beliefs and obligations and those of society's specific cultures. These dilemmas have not received full attention in our societies and often remain latent, creating a source of distress for couples and may be a burden on the relationships. However, more research is needed to identify those with vulnerability to psychopathology as a consequence to abortion after PND results or to giving birth to severely handicapped.
The study will describe existing care systems across participating centres. Data is collected in 2 sub-studies. All results are integrated into a discourse on ethical dilemmas. Study (A) recruits two groups of couples (positive/negative PND, n=300). Experiences with PND and connected dilemmas will be explored. Results will be discussed in interdisciplinary research groups. Study (B) interviews therapists and their patients who showed severe psychopathologies as reactions to the dilemmas mentioned. Results of the study will be discussed with participating couples, experts, general public, and politicians in order to develop adequate clinical practice in this field within the EU, taking into account cultural differences.
Fields of science (EuroSciVoc)
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Keywords
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Project’s keywords as indicated by the project coordinator. Not to be confused with the EuroSciVoc taxonomy (Fields of science)
Programme(s)
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Multi-annual funding programmes that define the EU’s priorities for research and innovation.
Topic(s)
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Calls for proposals are divided into topics. A topic defines a specific subject or area for which applicants can submit proposals. The description of a topic comprises its specific scope and the expected impact of the funded project.
Call for proposal
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
Procedure for inviting applicants to submit project proposals, with the aim of receiving EU funding.
FP6-2004-SCIENCE-AND-SOCIETY-9
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Funding Scheme
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Funding scheme (or “Type of Action”) inside a programme with common features. It specifies: the scope of what is funded; the reimbursement rate; specific evaluation criteria to qualify for funding; and the use of simplified forms of costs like lump sums.
Coordinator
KASSEL
Germany
The total costs incurred by this organisation to participate in the project, including direct and indirect costs. This amount is a subset of the overall project budget.