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Quality of care and quality of life for people with intellectual and physical disabilities

Objective

The proposed programme of research will investigate the quality of care for people with disabilities in regard to developments in social policy and typical examples of service practice, but will focus also on the subjective experience of individuals with d isabilities within these frameworks. The consortium will establish the range of options available for the care and support of people with physical and intellectual disabilities across the lifespan, within the context of European and other partner countri es. The project will investigate the extent to which these typical care and support options promote integrated living, social inclusion and service user participation; the role of attitudes to disability and persons with disabilities in relation to the delivery of care and service user's experience of social justice; and the impact of different service models and care practices on the quality of life of individuals with disabilities. Three cross cultural measures will be developed within the project and subsequently tested within both European and non-European participating centres: an index of the 'fit' between disability linked needs and available accommodation and care packages (the Accommodation and Care Fit Index - ACFI); a measure of attitudes to d isability and to persons with disability (the Attitudes to Disabilities Scale) with three related versions for direct use with individuals with intellectual and physical disabilities (ADS-D),indirect use with proxy carers (ADS-P), and direct use with mem bers of the general population (ADS-G); and a measure of the quality of life of disabled persons based on the existing World Health Organisation's quality of life measure, the WHOQOL, but adapted and extended for use with disabled persons and their carers (WHOQOL-DIS). The project outcomes will inform social policy and practice in relation to intellectual and physical disability in the European Union, and more globally.

Call for proposal

FP6-2003-SSP-3
See other projects for this call

Funding Scheme

STIP - Specific Targeted Innovation Project

Coordinator

THE UNIVERSITY OF EDINBURGH
Address
Old College, South Bridge
Edinburgh
United Kingdom

Participants (11)

WORLD HEALTH ORGANIZATION
Switzerland
Address
20 Avenue Appia
Geneva
FUNDACIO INSTITU CATALA DE L'ENVELLIMENT.
Spain
Address
Sant Antoni Maria Claret 171
Barcelona
CENTRE NATIONAL DE LA RECHERCHE SCIENTIFIQUE
France
Address
3 Rue Michel Ange
Paris
PSYCHIATRICKE CENTRUM PRAHA/PRAGUE PSYCHIATRIC CENTRE
Czechia
Address
Ustavni 91
Praha 8 - Bohnice
SAGLIKTA YASAM KALITESI DERNEGI (SOCIETY OF HEALTH RELATED QUALITY OF LIFE)
Turkey
Address
117/2 S.n: 3
Bornova - Lzmir
LNSTITUTE OF EXPERIMENTAL AND CLINICAL MEDICINE VU
Lithuania
Address
Zygimantu 9
Vilnius
CENTRO PER LA FORMAZIONE PERMANENTE E L'AGGIORNAMENTO DEL PERSONALE DEL SERVIZIO SANITARIO
Italy
Address
Via G. Mulè N. 1
Caltanissetta
UNIVERSITY MEDICAL CENTRE HAMBURG EPPENDORF
Germany
Address
Martinistrasse 52
Hamburg
TILBURG UNIVERSITY
Netherlands
Address
Warandalaan 2
Tilburg
SCHOOL OF PUBLIC HEALTH, SUN YAT-SEN UNIVERSITY
China
Address
74 Zhongshan Road Ii
Guangzhou
UNIVERSITY OF TROMSØ
Norway
Address
Universiteitsveien Breivika
Tromsø