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A stepping stone approach towards the Genetics Clinic of the Future

Objective

The Genetics Clinic of the Future (GCOF) project aims to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all. It offers a stepping stone approach towards the genetics clinic of the future, engaging all stakeholders involved in a process of mutual learning and information exchange.

The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by:
1. Envisioning the Genetics Clinic of the Future (WP1)
2. Mapping out the concept of data control (WP2)
3. Considering ethical and legal dimensions in the consent framework (WP3)
4. Exploring novel models for use of clinical data in research and vice versa (WP4)
5. Initiating public engagement, mutual learning and dissemination (WP5)
6. Engaging policy makers (WP6)

The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.

Field of science

  • /medical and health sciences/health sciences/public and environmental health
  • /medical and health sciences/basic medicine/medical genetics
  • /natural sciences/biological sciences/genetics and heredity
  • /social sciences/political science/government systems/civil society
  • /natural sciences/biological sciences/genetics and heredity/genome

Call for proposal

H2020-HCO-2014
See other projects for this call

Funding Scheme

CSA - Coordination and support action

Coordinator

UNIVERSITAIR MEDISCH CENTRUM UTRECHT
Address
Heidelberglaan 100
3584 CX Utrecht
Netherlands
Activity type
Higher or Secondary Education Establishments
EU contribution
€ 201 250

Participants (11)

THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD
United Kingdom
EU contribution
€ 102 500
Address
Wellington Square University Offices
OX1 2JD Oxford
Activity type
Higher or Secondary Education Establishments
OPEN SCIENCE - LEBENSWISSENSCHAFTENIM DIALOG VEREIN
Austria
EU contribution
€ 92 187,50
Address
Rennweg 95B
1030 Vienna
Activity type
Research Organisations
EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION
France
EU contribution
€ 72 543,75
Address
Rue Didot 96
75014 Paris
Activity type
Other
OBSERVA ASSOCIAZIONE
Italy
EU contribution
€ 85 000
Address
Viale A Fusinieri 65
36100 Vicenza
Activity type
Research Organisations
UNIVERSITY OF LEICESTER
United Kingdom
EU contribution
€ 134 250
Address
University Road
LE1 7RH Leicester
Activity type
Higher or Secondary Education Establishments
TERVEYDEN JA HYVINVOINNIN LAITOS
Finland
EU contribution
€ 105 312,50
Address
Mannerheimintie 166
00271 Helsinki
Activity type
Research Organisations
INSTITUTET FOR FREMTIDSFORSKNING FORENING
Denmark
EU contribution
€ 70 000
Address
Amaliegade 5 C
1256 Kobenhavn
Activity type
Research Organisations
BIO.LOGIS GENETIC INFORMATION MANAGEMENT GMBH
Germany
EU contribution
€ 72 500
Address
Altenhoferallee 3
60438 Frankfurt
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
UNIVERSIDADE NOVA DE LISBOA
Portugal
EU contribution
€ 127 500
Address
Campus De Campolide
1099 085 Lisboa
Activity type
Higher or Secondary Education Establishments
AGILENT TECHNOLOGIES BELGIUM NV
Belgium
EU contribution
€ 65 000
Address
De Kleetlaan 5
1831 Diegem
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)
SCHUURBIERS DANIEL
Netherlands
EU contribution
€ 67 062,50
Address
Josef Israelslaan 63
6813JB Arnhem
Activity type
Private for-profit entities (excluding Higher or Secondary Education Establishments)