Deliverables
Situations map and catalogue, existing responses to rebuild the trust at institutional level, unethical use of research results avoidance mechanisms and their nature (whistleblowing, ethical guidelines…) and limits of the existing processes
Compilation of the output of the second thematic workshops This task is aimed at soliciting the opinion of the stakeholders per thematic category as the first series of workshops on the draft of the proposed framework In these particular consultation workshops the main objective will be to seek the recommendations of the stakeholders on the draft framework elements of WP3 Each workshop will be chaired and organised by the partners as task 22 Each workshop will produce a workshop report detailing the recommendations on the framework
produce an Impact Assessment toolbox to measure both the risks image market opportunity losses financing and financial losses related to nonethical implementation of research results as well as the benefit of honest by the book deployment
analyse existing data sources and map markets expectations in terms of research results misuse avoidance strategies of practices taking into account the level of observation of the latter MacroMesoMicro level and granularity
The report will capture the online consultation It will consist of a questionnaire of around 2025 questions both tickbox and openended take about 10 minutes to complete it will not collect any personally identifiable information eg name email or date of birth It will ask about occupation and sector of work and discipline for researchers
EPC will produce a report detailing the exchanges and recommendations from the exchange with policy makers throughi online dialogue with networked policymakers to assess the draft framework The lead partner will attempt to secure policymakers recommendations related to application of the framework ii dedicated workshops will also investigate this issue WP2
Report capturing the outcome of a series of interviews physical or via skype with a renowned experts from the scientific fields covered by the project as defined by the Thematic Focus Groups of PRORES b policy makers from EC organizations and c specialists from Research Ethics Committees RECs The foreseen number of interviewees is 10 for renowned experts 5 for policy makers and 10 for specialists in RECsObjective is to act as the horizon scanning module of PRORES that will identify current research trends in the nonmedical field covered by the project scan current research strategies on a global scale while envisaging incipient ethical risks
The key elements of a provisional framework will be set up and tested first with consortium partners and then with the broader range of stakeholders. This task will be linked with Tasks 4.4 to 4.6 in WP4.
Final PRORES framework incorporating incorporate all the feedback from Tasks 4146 as well as the reports from WP2 The task will also include effort to seek endorsements for its implementation from key stakeholders
This task will study the existing range of codes and guidelines on ethics and integrity across disciplines, the existing literature, codes and documentation - what is currently recognized as reference documentation on the topic, the different approaches, and existing good/best practices in place in the non-medical field. Existing codes and guidelines will be mapped, codifying the common elements (values, principles, standards) and conflicting values and standards will be explored, building upon work already done by e.g. Nathan Emmerich for AcSS Project; RESPECT; Kathinka Evers’ EU work on standards. This work will enable the partners to assess the potential for an Oviedo/Helsinki type statement of ‘universal’ guidelines/principles/values/standards that would be transnational and across disciplines and would prepare ground for the consultation process.
Brochure, leaflet and poster for the project to be used in communciation activities
Output from the midterm conference
Integration of the thematics workshop exchanges and in particular The main focus would be per theme toInvestigate the issues that arise in a particular community regarding evidencebased policy making for example conflict of interest privacy issues ethical reviews etc Identify prioritised if possible elements that need to be covered in the framework per community of practice Investigate possible solutions that are proposed by the stakeholders
Outcome of the dissemination with the Science Advisory network
Summary and lessons learned from testing the frameworkBench testing of the framework in vitro will be conducted in thought experiments with a working group selected from the partners More in vivo testing of the framework can be conducted with the selected case study sites see WP5 Further in vivo testing of the draft framework will be tested in education and continuing professional development CPD training modules designed and delivered by consortium partners Feedback and amendments to the framework will be sought from the participant evaluations after delivery of the training
This deliverable synthesizes the outcomes from the interactions between the ProRes project and various agencies policy makers and science advisors that were undertaken under WP4 Interactions with SRA AZOP UKRIO the Estonian Research Council and national research councils and other governmental organizations with influence on research governance and conduct are includedThe aim of the report is to detail the nature of the interaction for each stakeholder capture all the feedback that ProRes received from them and include any recommendations andor lessons learned from the interaction
Suggested ‘research ethics principles’ to be built upon agreed values by: adding to and drawing on resources related to research ‘principles’ in the platform; ensure the principles relate to the agreed research values; sustain an online dialogue between all partners to propose principles;
Establish standards that are based on the agreed values and principles add to and draw on resources related to research standards in the platform ensure standards conform with the agreed research values and principles engage online dialogue between all partners to propose and agree standards seek agreement on standards from stakeholder groups during the workshops of WP2 first exchange workshops produce draft discussioncommentary paper based on this 43 process Finally the specification of the nonmedical research framework will be produced and a draft framework based on Tasks 4142 work will be generated This draft will be circulated broader stakeholders and other interested parties for comments and amendment It will be presented in the midterm conference and will be used as input to the consultation process second series of workshops
grasp probable upcoming ethical issues connected with foreseen yet unachieved technology Envisaged novel ethical requirements will be treated under the umbrella of the building PRORES framework in WP3 This task will articulate a series of ethical requirements based on the input of Task 51 Special care will be paid in order for these requirements to be smoothly integrated into the framework that will be built by PRORES that will be produced based on the current state on nonmedical fields
Report to capture the output of the final event taking place in Brussels and its main audience will be policy makers funding agencies and public figures In this conference all the results of the project will be presented and a final dialogue with the participants will take place on the validity of the framework
Report on the RRI implications of the framework will be produced based oni relevance of framework to innovation test sites and SMEs as suggested by stakeholders and partnersii WP2 workshops
Project website and framework for project social media presence (LinkedIn, Facebook, Twitter, Youtube, Research Gate, Academia)
see WP
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Publications
Author(s): Ron Iphofen and Donal O'Mathuna (editors)
Published in: Research Ethics Forum, 2023, Page(s) 190
Publisher: Springer Cham
Author(s): Ron Iphofen and Donal O' Mathuna (editors)
Published in: Interdisciplinary and International Research, 2022, ISBN 9781447363958
Publisher: Bristol University Press
DOI: 10.51952/9781447363972.int001
Author(s): Ron Iphofen and Dónal O'Mathúna (editors)
Published in: 2021, ISBN 978-1-80262-414-4
Publisher: Emerald Publishing Limited
DOI: 10.1108/s2398-6018202108
Author(s): Emmanuel Detsis
Published in: The Project Repository Journal, 26324067, 2021, ISSN 2632-4067
Publisher: EDMA
Author(s): Fabian Zuleeg
Published in: EURACTIV, 2020
Publisher: EURACTIV
Author(s): Livia Puljak, Anamarija Mladinić, Ron Iphofen, Zvonimir Koporc
Published in: Biochemia medica, 30/3, 2020, Page(s) 363-370, ISSN 1330-0962
Publisher: Hrvatsko drustvo medicinskih biokemicara
DOI: 10.11613/bm.2020.030201
Author(s): Anamarija Mladinić (Co-author), Livia Puljak (Co-author), Zvonimir Koporc (Corresponding Author)
Published in: Biochemica medica, 2021, ISSN 0000-0000
Publisher: Biochemica medica
DOI: 10.11613/bm.2021.030703
Author(s): Ilse De Waele,
David Wizel,
Livia Puljak,
Zvonimir Koporc
Published in: Plos One, 2021, ISSN 0000-0000
Publisher: Plos ONE
DOI: 10.1371/journal.pone.0259582
Author(s): Donal O'Mathuna
Published in: World Congress of Bioethics, 19-21 June 2020, 2020
Publisher: WBC